I have my appointment with the mdt in an hour to tell me what stage my ibc is and what happens next.

Maybe we can do this together. Good luck with ur tests.

Ani xx

Hi sorry to read your news. I totally understand how you feel I was diagnosed with breast cancer in March. At the time I was upbeat, positive its happened I can't change that but now I'm going through chemo and it's awful side effects I do have days where I just can't be positive and that's totally acceptable.

It's taken a while for me to get some people to understand this (not family tho) as they just don't understand. 

My son and daughter are both married and I did have a wobble saying I won't see grandchildren  but I know I will. My cancer was caught early and I'm not ready to go yet. 

All you can do is take it a day at a time. Don't look too far ahead, it is hard not being able to plan or book things whilst everyone around is enjoying life. Talk with your wife about your fears, is there family she can lean on. 

I have insisted my partner still does things he enjoys ie golf, pub etc fir his own mental health and its helping us both.

Good luck 

Louise xx

I used to be the rock for others, it can and is difficult when life is at a pause 

How did your appointment go? Hope you have some light at the end of the tunnel.

I would like to journey together. Thank you. Ash

You are right and I should be behaving with more positivity, I feel the not knowing elements are causing my emotional rollercoaster.

I am keeping a daily journal, which can be read by my younger children as they get older regardless if I am there or not.

I am yet to find the strength that you have and some hours I want to fight it, and other hours I am planning the inevitable. 

Well I have grade 3 invasive breast cancer, but need scans to establish if is actually inflammatory breast cancer.

So chemo in five to six weeks time ova five months ( another cracking Christmas lol ) then mastectomy, hormone therapy and radiotherapy!

I have three adult children who came ova for an update last night, they are all so supportive. I have had other health conditions for the last 15 years so everyone is used to seeing me sat on my bum in PJ's .

Sorry if I sound like I'm not taking this seriously, I am of course but we all cope in our own way don't we?

Yes I'm encouraging my husband to keep up with his friends for his sanity, bless him I've had to stop my hrt too so even more stress.

Good luck everyone, we are all in this together.

Big hugs, Ani x

I like the way you cope and I use to use humour when my RA was diagnosed 10 years ago. Coming to terms with cancer is a new ballgame for me which I am still learning, each person will find their own way of coping unfortunately I seem to be going through the 5 stages of grief and feel angry in myself if I miss my younger childen becoming adults. 

Had a talk with my cancer keyworker earlier on 5th and have been given appointments for CT scan and appointment with consultant to discuss plan of treatment which was reassuring. We have my daughters 8th birthday this week which gives me something to look forward to and learning to take things 1 day at a time.

Ok so a busy couple of weeks of scans and appointments. Just seen my oncologist and confirmed ibc, but my CT scan also found a one cm lump in my lung. Without further test they are not sure if it's cancer, primary, or secondary to the breast cancer. Plus it could be benign.

So I'm going to be on harsh chemo and biologicals so it's going to be a very hard road.

We were shocked about the lung lump and are trying to get our heads around it. 

Oh well never mind just one more thing to deal with I guess just got to keep fighting xx

Sorry to read about the situation your in and the harsh chemo, the lump in lung has been found early hence treatment should help.

Will there be surgery after chemo?

I am waiting for another appointment in a different hospital where they specialise in the surgery that I need. We spend s lot of time waiting which just fuels one worry or another. The positive I take is strength from others who are going through this and from those who have been through this, but yeah, we need to keep on fighting.

Hi, yes I'm going to having a mastectomy and possible surgery on the lung lump.

But yeah only one lump which is a good sign and the chemo should hopefully help that too.

My mum was upset and actually cried and wanted to hug me ( not normally touchy feely ). She feels guilty that me and my sister have been through this, she wanted it to be her bless her.

Yeah I have lots of support and everyone is more than happy to support my poor husband too, I worry about him and my son most.

But we are a positive bunch and will laugh and be silly at times to get us through

My Gosh Ani you are a breath of fresh air...your positivity shines through 

You have made me give myself a kick up the ar$e to stop sitting around whinging. 
 

I don't know for certain if I have cancer yet but I have found myself practically organising my own funeral. I have surgery in next 2 weeks to remove a 20cm mass on my ovary and then they will test it. 
 

I would like to stay in contact if that's ok as I think I could do with a dose of your positivity when feeling low and hopefully I can do the same for you and others. 
 

Take care, hope the chemo goes as well as possible x