Hi Samcleo2,

Sorry to hear you're going through this. I was diagnosed with BIA ALCLnin 2017.  First and foremost, I want to emphasise that's it's impossible to diagnose BIA ALCL by sight. It's also not a common cancer and specifically white liquid is not a symptom I've heard of before. I hope that gives you some comfort that it's far too early to draw a conclusion. Having said that, liquid (although most commonly with a yellow tinge from my own experience and from stories of other diagnosed women) is a common symptom so you're absolutely right to want to go through the proper testing and hopefully rule out BIA ALCL. 

Do you know if your implants had a smooth or a textured surface? So far, there hve been no reported cases of BIA ALCL in women who hve never had a textured surface implant  

I encourage you to search for the NCCN Guidelines on BIA ALCL. If you can't find it, there is a link to it on www.BIAALCL.com. There are very specific tests that need to be done to diagnosed (CD30 cells) so you'll need to ensure your current doctor has requested the correct testing. There is also a lot of other helpful info on the website. It's full of great material. If you'd like more info, there's also a great Facebook group called "ALCL in Women with Breast Implant BIA ALCL". There are over 200 women diagnosed with BIA ALCL and it's a great resource to learn more about it. 
 

I hope you're able to rule it out and move on but in the unlikely situation where that's not the case, it's most often very treatable and there is a ready made network of support and experience from women who have been through the same. You're not alone. 
 

Please let us know how you get on. I'll be thinking of you.  
 

Carla

Hi Samcleo2,

Sorry to hear you're going through this. I was diagnosed with BIA ALCLnin 2017.  First and foremost, I want to emphasise that's it's impossible to diagnose BIA ALCL by sight. It's also not a common cancer and specifically white liquid is not a symptom I've heard of before. I hope that gives you some comfort that it's far too early to draw a conclusion. Having said that, liquid (although most commonly with a yellow tinge from my own experience and from stories of other diagnosed women) is a common symptom so you're absolutely right to want to go through the proper testing and hopefully rule out BIA ALCL. 

Do you know if your implants had a smooth or a textured surface? So far, there hve been no reported cases of BIA ALCL in women who hve never had a textured surface implant  

I encourage you to search for the NCCN Guidelines on BIA ALCL. If you can't find it, there is a link to it on www.BIAALCL.com. There are very specific tests that need to be done to diagnosed (CD30 cells) so you'll need to ensure your current doctor has requested the correct testing. There is also a lot of other helpful info on the website. It's full of great material. If you'd like more info, there's also a great Facebook group called "ALCL in Women with Breast Implant BIA ALCL". There are over 200 women diagnosed with BIA ALCL and it's a great resource to learn more about it. 
 

I hope you're able to rule it out and move on but in the unlikely situation where that's not the case, it's most often very treatable and there is a ready made network of support and experience from women who have been through the same. You're not alone. 
 

Please let us know how you get on. I'll be thinking of you.  
 

Carla