DCIS experiences

Is there anyone that could give me more information/ experience about high grade DCIS please? I feel like I'm Googling and the information isn't  the same . My lump has grown large quite quickly so I know that's why it is high grade but I was also told about chemo but what I've read it's an over treatment. Still got to wait for another appointment as I still haven't had ct results and I know they will be discussing me in next team meeting .

I was diagnosed Monday and just want more insight so I know what I need to ask for myself at next appointment it's just confusing sorry

thank you 

  • Hi I was diagnosed with DCIS in feb 2019 . Had a lumpectomy and though they thought it was around 2cm it was actually 4.2cm . Mine was then sent for an oncotype test which is only done in the US so had a 3 week wait for results. This is to try and help decide if chemo would be of any benefit. Mine came back at a score of 23 which was borderline so I then had to decide if I wNted chemo or not. To be honest that was Tough, I wanted my team to tell me what was best but after a lot of researching and asking questions I decided that it wasn’t for me. Chemo would have given me a 3% better chance of non reoccurrence and I just couldn’t make the numbers add up.i spoke to numerous people who had defiantly been over treated with chemo. This was obviously a very personal choice but 2 years later I’m still happy I made the right decision. I’m sure if your team thought chemo was your best choice they would say so and to be honest if they had said that to me I would have gone with it. Happy to answer any questions if I can and wish you you lots of luck , let us know how you get in and take care nicky xxx

  • Hi thank you for info. Mine is 9x5cm Wasnt that big when I found it and got a letter through saying DCIS MICROINVASION biopsy results was last Monday and got a call today to go in Monday coming for ct scan results so hopefully have clearer details of what's what. I know be mastectomy as cannot save my  small booby  

    thanks again 

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