Hi all,
I've been diagnosed with tongue cancer and I'm waiting to see if it has spread. Have had CT scan and MRI scan.
Had a biopsy where they took a scrape of the lesion. 1 week after the biopsy I took a look at the lesion and it was there, still the same, oval shaped, tongue tissue eroded into a little red crater and with white edges.
Then a week later I looked and it had shrunk (but same description as above).
But now the lesion has gone!
No red oval crater, no white, just gone!
Haven't had any of the 10 possible symptoms either.
So it has put me into denial mode.
Can a cancerous lesion disappear 2 weeks after a biopsy?
I stress the lesion wasn't cut out during biopsy.. just a tiny mm sample and the lesion looked just the same after the biopsy.
Thanks for replying, there was no notification sent.
What type of cancer has the Consultant said you've got?
I hope it is something minor and that you'll be okay. Maybe I can help depending on your situation.
My cancer was supposedly 'SSC of oral area of tongue' (HPV-related), and it's now 14 months since the biopsy & surgery to remove one third of my tongue. I was sent to surgery also to have a bigger operation for neck dissection and then probable radiation & chemotherapy but the last minute change of plan & the new Surgeon decided not to do the neck dissection (in agreement together), as the lesion had now disappeared since the time of the biopsy.
Luckily I can now speak well and have no restrictions with eating.
So very good outcomes can happen to anyone.
Although I am still very confused of why the new pathologist (after the operation) has told that there was NO cancer found in the resected tissue and that I indeed do NOT have the HPV either!
I''d been told by the previous Consultant that it was HPV-cancer and his Advanced Nurse told me (privately) that "this type of SCC/HPV cancer has most likely gone straight to your lungs", adding that he's "seen this all before".
Over the past 12 months my new Consultant has sent me for 2 ultra-sound scans to the neck and they've been clear.
The last scan was Feb 2022 and the Consultant told me that it was going to be my LAST scan.
I then heard nothing from anyone for the next 4 months and was basically thrown off their systems. My sister told me the NHS always follow-up for 5 years! So I phoned the hospital last week to ask about this and they couldn't find me on their systems.
I then got a call from the hospital telling me that "the Consultant would NOT have told me the Feb scan would be the last one".
But he DID say this!
I've now been booked a ultrasound scan but if I'd not bothered to phone up then I wouldn't have heard from the hospital ever again.
Thanks for replying, there was no notification sent.
What type of cancer has the Consultant said you've got?
I hope it is something minor and that you'll be okay. Maybe I can help depending on your situation.
My cancer was supposedly 'SSC of oral area of tongue' (HPV-related), and it's now 14 months since the biopsy & surgery to remove one third of my tongue. I was sent to surgery also to have a bigger operation for neck dissection and then probable radiation & chemotherapy but the last minute change of plan & the new Surgeon decided not to do the neck dissection (in agreement together), as the lesion had now disappeared since the time of the biopsy.
Luckily I can now speak well and have no restrictions with eating.
So very good outcomes can happen to anyone.
Although I am still very confused of why the new pathologist (after the operation) has told that there was NO cancer found in the resected tissue and that I indeed do NOT have the HPV either!
I''d been told by the previous Consultant that it was HPV-cancer and his Advanced Nurse told me (privately) that "this type of SCC/HPV cancer has most likely gone straight to your lungs", adding that he's "seen this all before".
Over the past 12 months my new Consultant has sent me for 2 ultra-sound scans to the neck and they've been clear.
The last scan was Feb 2022 and the Consultant told me that it was going to be my LAST scan.
I then heard nothing from anyone for the next 4 months and was basically thrown off their systems. My sister told me the NHS always follow-up for 5 years! So I phoned the hospital last week to ask about this and they couldn't find me on their systems.
I then got a call from the hospital telling me that "the Consultant would NOT have told me the Feb scan would be the last one".
But he DID say this!
I've now been booked a ultrasound scan but if I'd not bothered to phone up then I wouldn't have heard from the hospital ever again.
