Bile duct cancer diagnosis to treatment

Hi there. My dad has this week been diagnosed with stage 2 moderate grade cancer at the end of the bile duct, after a week long hospital admission for severe jaundice. He was discharegd at the end of last week. He was told over the phone this week by I think a nurse, and we've been trying to glean more information from the hospital regarding further details. My mum was able to speak to the Macmillan nurse at the hospital yesterday and got some more info. He is going to be referred to a specialist cancer centre in London. At the moment, he is waiting for contact from the hospital for an appointment to meet with the consultant and discuss next steps. The Macmillan nurse said this could take a week or so before he hears from the hospital. For those who have been through a similar experience, could you shed light on the following:

- how long did individuals wait between point of diagnosis and appointment with a consultant to discuss treatment options?

- with all of the COVID stuff, will my mum be able to attend with my dad for his appointment with the consultant? My dad is quite deaf and also is not good at asking questions so would likely struggle on his own

- I am expecting that they might propose surgery as the next option. How long have others waited between agreeing to undergo surgery and actually having an operation? I am assuming it will be a Whipple procedure

Many thanks

  • Hello Fairy_Dust,

    I'm sorry to hear about your dad's diagnosis. The wait for appointments can vary and due to the pandemic health services have been in high demand. The best thing to do is speak to his nurse about your questions, they are probably the best to speak to about your concerns and whether your mum can attend the appoinment with the consultant. Hopefully it's possible. There is some information here on bile duct cancer and the possible next steps. We also have a team of nurses available to speak to if you need more medical advice. You can call them for free on 0808 800 4040. Lines are open Monday to Friday between 9am and 5pm.

    Best wishes to you,

    Moderator Anastasia

  • Hello, i hope you dont mind me asking but i am going through the same thing with my dad, he has jaundice and has just been fitted an external drain bag, we are still waiting for stage etc, my dads tumour is in the third section of the liver, how is your dad x