Chemo before mastectomy

Hi all,

Hope you're all ok :) I met the consultant today after weeks of scans, appointments and the usual dreaded waiting after being told I had breast cancer and lymph node involvement. Good news that the ct scan showed no spread anywhere else in my body. That has been my main worry so now I am concentrating on getting this horrible C bomb out of me!

The plan I was told a few wks ago was lumpectomy and then chemo but today he told me it has changed to chemo first and then mastectomy. I totally trust my breast team and am happy to do whatever he thinks is best for me, although it was a shock to hear I'll lose the whole breast but it's better than worrying about the tumours as he found more and quite large.

Not totally sure why I'm posting here but it's just to see if anyone else has had chemo first and how it all went. If truth be told, the thought of chemo scares the *** out of me :( But obviously I know it's going to help me!

What a long, strange road we all find ourselves on.

I'm 40 and healthy and happy! Hate how it just strikes any of us whenever it feels like it!

Anyway, thanks for listening to my big rambling message. Sending every single one of you strength and so much love!xx

Parents
  • Hi my story sounds similar to yours two lumps which are larger too, lympth nodes are involved ( just two though I think) but everything else clear on CT. I'm also having my chemo first just had my first one on Monday and haven't felt bad at all but heard it can be day 4 or 5 so I'm not holding my breath! How many cycles are you having? Good luck with yours xxx

  • Sounds like we are on the exact same journey! Thanks so much for taking the time to reply to me. It's so good to hear we're all not alone in this. So glad to hear that you are feeling good after your first chemo! Have you done it with the cold cap? Just asking as keep hearing loads about it and thinking I may try it.

    I have invasive ductal carcinoma and they found more tumours in the same breast when they did the mri so that's why the plan changed for me I think.

    Sending love and positive vibes your way x

  • I went in after finding a lump and then they found the second one on ultrasound and then mammogram I don't think mine are huge but Definitely not small. When there's two I think they add it together? But not certain on that. I used the cold cap nurses said it doesn't work for everyone but I thought I'd give it ago. I can't telL if it has or hasn't worked for me yet as it's too early but I shall keep you posted. I didn't find it painful in the slightest though it's just a little bit heavy. My nurse told me that sometimes they do The chemo first so they can see the chemo working and sometimes the cancer can be 100% gone just from the chemo so that's really positive. How many rounds of chemo are you having? 

  • That's brilliant that the cold cap wasn't painful or anything! You're doing so well! You're my inspiration now :)

    Sorry I completely forgot to answer your how many rounds question. I saw surgeon yesterday and he said I'd have chemo for 6mths before surgery, every 3wks so I'm guessing 8 or 9 rounds. How many are you having? I am meeting oncologist this wk or next to find out more about the chemo I'll be having.

    Thanks so much again for your replies x

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  • That's brilliant that the cold cap wasn't painful or anything! You're doing so well! You're my inspiration now :)

    Sorry I completely forgot to answer your how many rounds question. I saw surgeon yesterday and he said I'd have chemo for 6mths before surgery, every 3wks so I'm guessing 8 or 9 rounds. How many are you having? I am meeting oncologist this wk or next to find out more about the chemo I'll be having.

    Thanks so much again for your replies x

Children