Essential thrombocythaemia

Hi there I was told I had essential thrombocythaemia 4 weeks ago in currently on vitamin D but I'm getting more tired every day all my joints ache too my level is staying around 700 I feel terrible whats next no treatment yet as I'm attending clinic every 4 weeks.

  • Hello Cra-123

    I'm sorry to hear about your recent diagnosis of essential thrombocythaemia (ET). We've quite a few members here on the forum living with ET and you might find it helpful to have a look through this thread and make a post there to connect with others. 

    I'd also recommend having a look at this page on the Blood Cancer UK website where you'll find lots of information and be able to connect with others living with the condition. 

    If you'd like to chat things through with one of our team of nurses ahead of your next clinic appointment you're most welcome to give them a call. They're available Monday to Friday from 9 am to 5 pm on 0808 800 4040 and I'm sure they'll be able to help with some information and support. 

    I hope that this helps in some small way and that the team responsible for your care is able to improve things for you quickly. 

    Best wishes, 
    Jenn
    Cancer Chat moderator