Tonsil cancer

Good morning everybody, I am still in shock at somebody telling me I have cancer, and all the people I have met so far is so overwhelming, I'm so nervous for myself and my family.  I have cancer in 1 tonsil they are pretty certain it hadn't spread anywhere else which I am so thankful for, having a panendoscopy done this week then will see how big this is, but have been told I will need the tonsil removed and 1cm either side of the tumor and possible some of the tongue, and my lymph nodes in my neck on the same side, just looking for advice in recovery.  

 

 

 

 

Parents Reply Children
  • Hiya

    Not a case of feeling sorry for yourself as its a shock to the system and also going into the unknown regarding treatment and recovery, so undertsandable.
    I was told from the get go from my consultant that he was looking for a complete cure and thats what he did and thats why I had such a positive outlook as well and I think that really helps.
    He also told me one of the toughtest treatments but one with the highest success rates of complete cure so I took that on board from day 1 and accepted I was about to go on a journey but I would come out the other end.

    have a read of my blog as that will give you some insight/plenty tips into the road ahead and although I dont sugar coat and some challenging times, I often said there is light at the end of the tunnel and the same light at the end of the tunnel is there for you ahead.
    Helps to chat to others who have actually been though it as we know how tough it can be at times but also know the positve outcomes

    I feel great now and lead a normaly perfectly healthy life with no lingering side effects now.

    I also started a thread on here called Radiotherapy for Throat Cancer and under Living with Cancer ( Anchor 1707 ) Lots of info/posts and shared experience from others on there as well but also quite a few new other posts around this type of cancer as well.
    Plenty help and support available and will help you through your journey.

    Just let me know if I can help in any way and happy if you want to friend request for 1-1 help or my email details are on my blog link if you ever want to ask any questions or seek help/advice in anyway.


    kind regards
    Ian

  • Hello, I wondered how you're doing now? My son, aged 42, had chemo plus radiotherapy on Monday, then radiotherapy the rest of the week. He has 6 more weeks of radiotherapy, with 1 more chemo day in the middle. He is sleeping more or less constantly, and not eating much at all. Is that pretty much what you experienced?

  • Hi I am on week 4 of 6 of radiotherapy with no chemo, it is a long haul and also very tired, I stopped eating about a week and a half ago but that's why they fitted the peg, I'm having 3-6 fortisips into my peg a day and really keeping up the loads and loads of fluid through the peg too, I'm having both sides of my neck treated, and look very sunbunt all up my neck and have lost my underneath hair, please feel free to message for any information it's nice to be able to let people know how the journey is going, I hope your son doesn't find it too hard as I did to start with x

  • Hi, thanks for the swift reply, the fatigue is, I think, the biggest problem. My son also has a peg, so that will provide his nutrition, though the nurse is saying that because he is still able to eat at the moment, he might need to start on ensure. He also has the cancer in both sides of his neck, I don't know if it's the chemo that has exhausted him, but he has probably only been awake 2 hours today. I know it's a tough journey, I'd take it from him in a heart beat.

    Wishing you a speedy recovery when your treatment is finished.