Thyroid cancer

Hi, 

I'm looking for some help and advice really,

So I had a needle biopsy on a lump in my neck last week, then a few days later the doctor called and said I have thyroid cancer (papillary) and have to have surgery to remove my whole thyroid asap! (Within a few weeks probably), then probably radioactive treatment!?

It's all been a bit of a shock and I'm worried about.... well everything really! 

I'm 30, Im very active and enjoy playing sports and being outdoors and so am really worried that I'm not going to be able to do these things anymore as I've heard that with no thyroid even with the replacement medication you can gain weight, and feel exhausted and weak

I'm also worried about possible fertility effects

Also really worried about the actual surgery too and if the cancer has spread  (I've read this is quite rare)

So just looking for any advice or help really, would be really greatful of any replies,

Thanks

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  • Hi there,

    I hope you're doing ok. I got the same diagnosis in feb and had my thyroid removed in March and just wanted to reassure you that it's all going to be ok and you will be able to do all of those things again! Just give yourself some time to process everything as I totally get it's such a shock and lots to get used to!

    I've found the medication fine so far but I think this will be monitored and they'll make sure you've got the right dose. 
     

    Do ask your team any questions as I found this more useful than googling! 
     

    Sending you lots of luck for your recovery! 

  • Hi Eve712,

    Thank you so much for replying, means a lot and is definitely reasurring hearing from someone who's recently been through the same, Thanks so much for taking the time to reply x

    How are you doing now? Hope you're ok and healing and recovering well

    Do you have any advice for the surgery recovery etc? 

    Or just any general tips/advice that helped you through?

    I've got a million questions bit don't want to bombard you haha

    I haven't really seen my hospital 'team' yet.... basically I met the ENT doctor, had scan, needle biopsy all on the same day, then he called me a few days later to say its cancer and I need surgery to remove whole thyroid, I was a bit shocked on the phone so stupidly didn't really ask much, I'm not really sure what happens next to be honest, I guess wait for a surgery date letter? 

    Thanks again for replying 

    Kind wishes x

  • No worries! It's all a bit crazy and there's so much to take in isn't there! I also felt a bit sick the next day and the nurses gave me some anti sickness medication and that worked really quickly so I would just ask for this if you start to feel sick. I think in terms of general advice just wear baggy tops that aren't too tight at the neck and also there will be a drain there which is a pain but only temporary! I found it useful that I knew to expect that. I was referred to a Macmillan nurse who is great to ask any questions I have!

    I am doing ok I'm having the radioactive iodine treatment now and it's been fine just weird having to isolate!! 
     

    margaretmary it's great to hear about your recovery and experience also! 

  • Hi Eve712

    Thanks for replying :happy:

    How are you doing? Hope your iodine treatment is going ok still and you can be out if isolation soon, are you in the hospital or at home? 

    Thanks for the advice regarding asking for anti sickness, ill definitely keep that in mind incase I need it. Also wearing baggy tops that dont touch your neck is great advice- thanks.

    The neck drain sounds scary! 

    Thanks for your help x

Reply
  • Hi Eve712

    Thanks for replying :happy:

    How are you doing? Hope your iodine treatment is going ok still and you can be out if isolation soon, are you in the hospital or at home? 

    Thanks for the advice regarding asking for anti sickness, ill definitely keep that in mind incase I need it. Also wearing baggy tops that dont touch your neck is great advice- thanks.

    The neck drain sounds scary! 

    Thanks for your help x

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