Newly diagnosed with Hodgkin’s lymphoma

Hey..

A few days before my 30th birthday on the 19th April I was diagnosed with Hodgkin's. Since then I've had one session of chemo and it's all been a lot to take in. I've gone from someone with very little health anxiety to basically being paranoid to leave the house in case I pick up infections. 

Just wandered how best people coped with risk of picking up sepsis/infections and to balance actual real life. 

  • Welcome to the Cancer Chat community Rosannalucy although I'm sorry about your diagnosis. It must have been very tough to hear.

    Hopefully some of our HL members will share their advice and experiences with you soon but do feel free to reach out to the community and join in on their discussions when using the 'search forum' option in the purple bar above. They're a very supportive and friendly bunch who I'm sure will do all they can to help.

    If you'd like to discuss this with one of our cancer nurses, they're just a phone call away on 0808 800 4040, Monday - Friday between 9a.m - 5p.m.

    Wishing you all the best with your treatment.

    Kind regards,

    Steph, Cancer Chat Moderator

  • Hi. 
    Im 15 and have been recently diagnosed with classical Hodgkin's lymphoma. I haven't started any treatment yet but may start chemo at some point in the near future...not too sure yet. For that reason, I can't relate entirely on how you are feeling but I thought I'd try to help. 
    When I got diagnosed I cried, not because I had cancer and was worried of what the future would hold, but I felt so fortunate that there was (and still are) options. 
     

    We (my family and I) started looking into how to boost my immune system and make me as strong as possible. I know that there's no evidence that these work but, why not try? If it may have positively affected other people's treatment then I'm up for it.

    I've gone vegan and eat no dairy or meat. 

    I drink up to two cups of juices veg and fruit which we juice ourselves with a juicer. This is amazing since chemo can make you loose your appetite. All you need is one cup of veg juice followed by one cup of fruit (I love one with lots of apples, pineapple and mango). You'll have all the nutrients your body needs and it will help your body. It helps since I'm experiencing some lack of appetite from time to time. 
     

    I drink chuga tea every night. This helps with constipation. It doesn't taste very nice but if you drink it with juice or water and get it down quick it's not that bad.

    I do breathing/meditation. I do the Wim Hof method three times a day. m.youtube.com/watch If you have a read of the comments, you can see how people react to it, some of them going through similar things as us. 
     

    Ive just started having Manuka honey. This helps with inflammation and has been said to help with cancer too. You can buy this in Holland and barret. When my dad got it, the person working there said to get a MGO high number.
     

    I also have meditation sessions weekly on zoom and am going to start doing yoga soon. You might know sometime who does meditation or yoga or you could look some up on YouTube. 
     

    I do cold showers and cold baths. This doesn't have to mean that you sit in a bath full of ice. It's just to give the body a shock and make you be in an alkaline state. 
     

    Stay positive. Any time you feel overwhelmed or stressed, do a wim hod breathing. And if your tired or not hungry then do a cold bath or shower. I've been looking for some inspirational films which make me feel like getting up and going out. One film which is unbelievable is called "miracles from heaven". It's on Netflix and probably a few other places. I definitely recommend watching it. 

    This experience has taught me so much and I've become a very open minded person. Sometimes I find that when doctors talk to me, they say things in a negative way and make me feel ill. You said you were diagnosed with this only a few days before your birthday? That must've been hard, but yesterday I thought of something. Either someone ruins their life, or life ruins them. Basically, someone can make wrong decisions or life makes it tough for you. Don't worry, whenever you feel alone or stressed or overwhelmed, remember you're not alone. I'm there somewhere fighting and you can too. We can do this and will do this. I don't mind if you use the infomation I gave or not but I hope you can give them a try. Think of the goal and not the hard times. Any questions, feel free to ask?
    By the way, do you have classical or non Hodgkin's lymphoma? And is there anything that you're doing to help, it's ok if your not? 
    Hope your doing ok. 
    :happy:

  • Hi there would love to see how you are getting on with treatment, I was diagnosed in the middle of June and am finding it all very hard. What type of chemo are you having?

    Atm with covid and that I have decided to isolate as much as possible to stop the risk of treatment being delayed how are you coping? 

  • Hey - so sorry to hear about your diagnosis - I'm 8/12 sessions of the way through now - was told I needed AVDB for 6 months but after two months got to drop the B drug as my scan was looking promising. I know how scary it is, but you do start to find a routine which makes the time go faster. I haven't been isolating but I am only meeting people outside not getting public transport etc etc mainly as I needed to find ways to stay sane. I've only just shaved my head - was putting it off for ages. The biggest help has been talking to other people with it on Instagram - it's been a really lovely community. More than happy to chat about anything.  :-)