Breast cancer diagnosis

Hi,

I was at the breast clinic last tuesday after finding a lump 2 weeks before, i had a mammogram, ultrasound, biopsy and a marker put in me. It was confirmed there and then after looking at all the imaging that I have cancer, I was gobsmacked! I was convinced it was a cyst or something. I have to wait until monday to get the results of the biopsy and a treatment plan but I was told it will definitely involve surgery to remove the lump and then a course of radiotherapy. 

I'm 44.

I was just wondering how usual it is to be told its definitely cancer without biopsy results?

And how did people find radiotherapy and what to expect from it?

Thank you xx

*update*

Had a chat with consultant today and I'm booked in for surgery Tuesday 20th!  She didn't give me much more info other than they are going to take a couple of lymph nodes out too, and also that 1 receptor is hormone positive so I'll probably need chemo too. Not entirely sure what that means?!

They cant tell me what stage or grade until it has been examined after surgery.

Its 3cm so I'll need a bit of reconstructive surgery as they'll have to take quite a bit of tissue out, feeling a bit overwhelmed with all the info, but I have a face to face appt Thursday so I'm hoping by then it will make more sense.

Any advice or similar experiences would be much appreciated xx

Parents
  • Hi YorkieGirl76

    I am unsure how they can tell that it's cancer without biopsy results but will let you know my experience from 5 years ago.  Recalled from routine mammogram in January, 2 biopsies taken, the second was a vacuum assisted biopsy and I watched the bits going down the tube which they said I wouldn't want to watch but I like to know what is happening, they thought that a bit strange. I also had a couple of ultrasounds. Lots of waiting around for results which is normal I understand and is probably the worst and the most worrying part of my experience.  Widespread DCIS in right breast was found so I then decided on lumpectomy rather than mastectomy.  Lumpectomy done then saw consultant after a few weeks, no clear margins so a second lumpectomy performed which again didn't give clear margins.  After this I was asked what I wanted to do and I asked if it was possible to have a third lumpectomy and was told that was also the thoughts at the Multidisciplinary team meeting as I have large breasts so a third lumpectomy performed which thankfully gave clear margins. I saw an oncologist who recommended radiotherapy of which I had 15 sessions which I found to be ok apart from a bit of soreness but I started moisturising my breast 3 weeks before the radiotherapy started and was given packets of honey at the cancer unit to apply to my breast .  I also felt a bit tired during radiotherapy but that may just have been early starts each day to get to my radiotherapy appointment which was Mon-Fri for the 3 weeks and a 17 mile drive for an 08.30 ish appointment.  I then had annual mammograms at hospital for 5 years and I am now back on the 3 yearly routine list for these.  I have been told that if it recurs then it will definitely be a mastectomy.  I know this is a very worrying time for you but I found my good friends really supportive as was my husband, even talking to the other people in the radiotherapy waiting room was nice as you hear their experiences of cancer and realise you are not alone with this awful disease. Hope all goes well for you.  Be kind to yourself and prep meals and freeze them in advance of radiotherapy so that you don't tire yourself.

Reply
  • Hi YorkieGirl76

    I am unsure how they can tell that it's cancer without biopsy results but will let you know my experience from 5 years ago.  Recalled from routine mammogram in January, 2 biopsies taken, the second was a vacuum assisted biopsy and I watched the bits going down the tube which they said I wouldn't want to watch but I like to know what is happening, they thought that a bit strange. I also had a couple of ultrasounds. Lots of waiting around for results which is normal I understand and is probably the worst and the most worrying part of my experience.  Widespread DCIS in right breast was found so I then decided on lumpectomy rather than mastectomy.  Lumpectomy done then saw consultant after a few weeks, no clear margins so a second lumpectomy performed which again didn't give clear margins.  After this I was asked what I wanted to do and I asked if it was possible to have a third lumpectomy and was told that was also the thoughts at the Multidisciplinary team meeting as I have large breasts so a third lumpectomy performed which thankfully gave clear margins. I saw an oncologist who recommended radiotherapy of which I had 15 sessions which I found to be ok apart from a bit of soreness but I started moisturising my breast 3 weeks before the radiotherapy started and was given packets of honey at the cancer unit to apply to my breast .  I also felt a bit tired during radiotherapy but that may just have been early starts each day to get to my radiotherapy appointment which was Mon-Fri for the 3 weeks and a 17 mile drive for an 08.30 ish appointment.  I then had annual mammograms at hospital for 5 years and I am now back on the 3 yearly routine list for these.  I have been told that if it recurs then it will definitely be a mastectomy.  I know this is a very worrying time for you but I found my good friends really supportive as was my husband, even talking to the other people in the radiotherapy waiting room was nice as you hear their experiences of cancer and realise you are not alone with this awful disease. Hope all goes well for you.  Be kind to yourself and prep meals and freeze them in advance of radiotherapy so that you don't tire yourself.

Children
  • Thanks for your reply.

    I did find it strange they told me without waiting for biopsy results, but I guess they see cancer every day and know what it looks like from ultrasounds and mammograms, I was also on my own which was hard too!!

    I'm glad you are through the worst and treatment is over.

    Hopefully monday will bring more information and thanks for the tips, very helpful!

    Xx