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Just Diagnosed. With Essential Thrombocythemia

Jd999uk
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Hello.

I've had my second consultation (via phone due to Covid protocols)  where E.T was confirmed. My only question is that the consultant said I will have an appointment with a nurse booked as I need to sign a consent form for the medication (Hydroxycarbamide) but he was very vague as to when this was likely to take place. Given the current Covid pandemic issues and the strain it had put on the NHS, I'm not expecting a next day service. However, is there a general timescale for these appointments to take place? Obviously I'm eager to get started on the treatment asap and the waiting is somewhat unnerving.

Kind regards

John

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    [@Jd999uk]‍ Hi John, I just noticed your post, I am posting on here with breast cancer. There are posts on here for Essential thrombocythemia I’ve just checked. Click on the search magnifying glass above and just post Essential Thrombocythemia in the search box, you will be able to read previous posts and contact posters by putting in the @ icon and the posters name, they will receive an email alert that you have posted. I hope you get some answers, the scariest part is not yet having them. You take care, good luck and you are in wonderful hands here, so many giving, helpful, kind and caring people. A big hug to you. All the best. Lyn. XX

  • Offline in reply to yorkiegal

    Thank you Lyn.

     

    I'm reading through the messages that others have posted over the years and although the general theme is positive, it's the waiting that's the worrying thing for me right now. I'll post any updates as and when. 

     

    John

  • Offline in reply to Jd999uk

    [@Jd999uk]‍ , Hi John, Will keep everything crossed you get your appointment and more importantly some peace of mind quick sticks - it’s good of you to post updates. Good luck with things. Lyn. XX

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