Hello everyone, I hope you all well (as can be anyway) 

I'm 34 and have recently been diagnosed with ET after having various tests due to my platelets being over 1000. I still have a lot to learn and it all feels pretty uncertain but I'm hopeful that other than regularly feeling like a pin cushion, I can live a fairly normal life. 

In 2014 I had a blood clot on my brain (celebral venous sinus thrombosis) which they thought was down to the contraceptive pill at the time. For that reason I'm being treated with Peg inferon Alfa which I have to inject once a week and blood thinners. Is anyone else having similar treatment?

I've read a couple of things where people have been given a life expectancy of ten years so that's scary but hopefully with treatment and monitoring this won't be the case. This is all new to me at the moment and I'm not too sure how to feel but just trying to deal with it the best I can. It would be good to chat to people going through the same thing 

Chelsey