Help i am petrified, just been diagnosed with breast cancer

I found pain and a lump in my left breast . Had tests done came positive I have cancer . Yesterday met the consultant and he said we need a mri or pet scan not decided yet because somethings are not clear . They also can see a cyst most likely in my left breast so they will take a biopsy if needed. It was too much for me. Also I did not want to know what stage or grade iam in . Pathology reports said that iam er positive, hers2 negative . Putting on a brave front fir my 3 children and husband who is distraught . Please feel so empty feel so list. Consultant said would start with chemo  then maybe surgery . Why is that ? terrified . Can't sleep can't eat . Going again today . Love to you all 

  • I am so touched by the fact you are helping us through in this fight . Well now they have asked for a pet scan . I will be starting chemo first meeting oncologist next week . How did you go with treatment ? How did chemo go . 

  • Been to the oncologist . He said he needs a mri scan to see 2 lesions which need to be cleared. He also wants a biopsy of left Breadt cyst which looks benign but needs to be ruled out. The Pet ct scan still hazy so need mri to confirm if it's in my bones . Iam terrified if it's in my bones , 

  • Hi there ... so sorry not been on much as I've got my two little grandkids for a couple of days...  I found I didn't need chemo as it was sent to America cancer university ... and came back low risk ... couldn't do radio therapy as my bones are really weak any way ... so I'm going on a wing and a prayer.... 

    Let us know how you go ... don't panic till you know ... fingers crossed for you ... Chrissie xx

  • Hi, that sounds similar to myself.  They initially thought I had 2 lumps, then the MRI showed it was one.  But as it was bigger than 5cm, I was referred to a CT scan to check it hadn't spread.   I was terrified that it had spread, but a friend who is a radiologist reassured me that all lumps over 5cm are referred as standard and it was not because they suspected anything.   I got the CT scan quickly and was releaved when it came back clear.  
     

    It's such a worrying time so all I can say is try and be positive and keep busy and push to get the scans as quickly as you can.    Wishing you luck x

  • Hey come on you would fight someone if your kids got hurt so get your fighting head on you can do this, it's early it's all a shock don't be too hard on yourself. 2017 it was me so we are all here for you xxx

  • Thinking of you [@Soreal]‍ I know it's terrifying, the waiting for tests and a treatment plan, hang in there, all these things move really quickly, and hopefully, you have some definite answers soon. I know it's really scary and we have all been there when we all thought the absolute worst. Breast care teams are amazing they work quickly to get us the best treatments and outcomes, all of the ladies on here are testament to that. I've got everything crossed for you xx

  • Hiya

    Hope this helps, I was diagnosed with grade 3 invasive ductal cancer, ER positive, Her negative.  My lump was 4.5cm and had to have a total of 3 surgeries to get clear margins.  My lymph nodes were clear.  I was told by the breast care team that being ER positive meant that I would take tamoxifen which gives another layer of protection so to speak to minimise the risk of it coming back.  I was touch and go with regards to chemo but following my oncotype test score being 20 this meant that there was only 1.6% benefit so I have decided not to have it which I felt the medical team agreed with.  I am just about to start radiotherapy 5 sessions plus 4 boost sessions.  Stay positive as there are lots of positive outcomes on here and the prognosis I have been given has also been really positive.

    Talk to your breast care nurses if you are worried, they have been great with me. 

    Sending positive thoughts xx

     

  • So sorry to hear about your diagnosis. Where you are is actually the scariest part as you don't know what to expect. Your mind starts imagining all sorts and it doesn't help if you're having to wait for more scans and results, bless you. I was diagnosed in Nov and my world fell apart, I too have young children and you feel like you're going to die. Cancer is a *** and it's a scary word. I had lumps in my left breast that came bk as cancerous and spread to lymph nodes. Was supposed to start chemo beg of Dec 2020 but scans showed "grey areas" so they needed to investigate further. I had a benign lump on right side (thx god!) and all biopsies were fine. Until you get your treatment you have no visibility of what to expect. So it really helps when they tell you all the steps to take. I started chemo mid Jan 2021 and I have 6 rounds, I was petrified! But here I am having just completed the 4th round, only 2 more to go!! Yes it's hard but on the actual day I felt totally ok, it hit me on day 2/3 until day 5. So I literally have 1 bad week and 2 good weeks (I'm on a 3 wk cycle). It's been hard emotionally as I'm a mum and I feel bad for being in bed so much. Get family help and take whatever help anyone offers, this is not a time to go it alone. You need support, love, meals and help. I had 3 cycles of Docetaxel which gave me muscle and bone ache but it fades and when I took ibuprofen I felt like I could cope with it. They do give you meds for most of the side effects, I haven't had any vomiting or anything, each of us are different. My next 3 cycles are EC and with this I have had less side effects but the fatigue is real! Just rest, sleep and listen to your body. After chemo I am having surgery and will have mastectomy and reconstruction at the same time hopefully. This is more painful but means I get a new boob at the same time. Recovery time is 6-8 wks and then 3 wks of radiation. Hopefully finish in time for my sons birthday in Sept! When I look back to Nov 2020 yes it was hard, they told me 10 months of treatment until I'm hopefully ok. I'm still on my journey but it's do-able, it's by far the hardest thing ever...I break down at times. But I'm not on the floor for all this time, you have dark days (allow yourself to be down/sad/cry) and average days, then better days. What also helped was connecting with women who have beat it, gone through it, or going through it - that way you feel like someone understands. I've met some incredible women and they are cheering me on. You too should try to have some support system in place - buddy up - ask your breast nurse to introduce you. If not you will meet some at your chemo sessions. Don't suffer alone or try to be brave, let it out. We are lucky to have this diagnosis during a time when meds and treatments are available, so many women have recovered and that gives me hope. It sucks, but pls don't be scared, you will be ok. Sending lots of hugs your way xxxx

  • Thank you my beautiful meant a lot of relief to me 

  • Thank you my lovely will stay strong