Lymph nodes treatment

Hello everyone,

I have a multi-focal grade 3 breast cancer. ER+, HER2 negative. I am now waiting for my operation. 

The scans show that my lymph nodes are clear, however, the surgeon is telling me that they will take 3 nodes during the operation and if they find cancer, they will automatically remove all my lymph nodes (during the same operation, before I wake up). 

I have read that some hospitals do not do this, they either remove only nodes with cancer or offer radiotherapy to the armpit instead. Which does, apparently, decrease the risk of lymphedema from 30% to some 5%.

Can I ask my surgeon not to take all my lymph nodes automatically and think of a "smarter" solution? Or would I need to go to a hospital where they do the radiotherapy option? (I am an NHS patient.)

Losing healthy lymph nodes and subsequently developing lymphedema does not sound like a great prospect.

Thank you.

Verity

 

  • Hi Verity123

    I had a lumpectomy in Sept 19  in Doncaster and they removed 3 lymph nodes to check for cancer cells. They found cancer in 1 node and I was offered the choice of removing all the lymph nodes or not. After discussion with the surgeon and considering the risk of developing Lymphodoema ( about 1 in 5 chance), I decided not to do that, However I was not offered radiotherapy specifically to the lymph nodes but had radiotherapy on my breast and I suppose this would have covered the underarm  area too.

    I think you should definitely be asking to be given the choice of whether you have all your nodes removed.

    It is strange that different surgeons and hospitals take different approaches but we always have the right to question why and make decisions about our own treatment

    best of luck and lots of love xx