Diagnosed with sarcoma

After 8 weeks from the removal of a lump from my arm I have had the diagnosis todsy that it is a sarcoma. I had a ct scan last week and that has thankfully come back clear too.

I didn't get much more information as it was the dermatrologist who phoned me as I was originally under him. He said the next stage now was another operation to have further skin removed. 

Sarcoma seems to very rare and not much information out there.

I am just wondering has anyone been diagnosed with sarcoma? 

Parents
  • Hello nat-l-d-1988

    I'm sorry to hear that you've recently had your diagnosis. I know it's been a long wait for the results and it's great to hear that the CT scan didn't show any other concerns. 

    We do have some information about soft tissue sarcoma on our website here which may be of help. I'm not sure that we have any members active at the moment who have had a soft tissue sarcoma but hopefully if we do they'll post to share their experiences with you. I did want to let you know though about an organisation called Sarcoma UK and I'm sure that you'll be able to connect with others through their support services. 

    If you'd like to chat things through with one of our team of nurses you're most welcome to give them a call. I'm sure they will be able to give you some support and information ahead of your next surgery. They're available Monday to Friday from 9 am to 5 pm on 0808 800 4040. 

    I do hope that your surgery goes smoothly. 

    Best wishes, 
    Jenn
    Cancer Chat moderator 

Reply
  • Hello nat-l-d-1988

    I'm sorry to hear that you've recently had your diagnosis. I know it's been a long wait for the results and it's great to hear that the CT scan didn't show any other concerns. 

    We do have some information about soft tissue sarcoma on our website here which may be of help. I'm not sure that we have any members active at the moment who have had a soft tissue sarcoma but hopefully if we do they'll post to share their experiences with you. I did want to let you know though about an organisation called Sarcoma UK and I'm sure that you'll be able to connect with others through their support services. 

    If you'd like to chat things through with one of our team of nurses you're most welcome to give them a call. I'm sure they will be able to give you some support and information ahead of your next surgery. They're available Monday to Friday from 9 am to 5 pm on 0808 800 4040. 

    I do hope that your surgery goes smoothly. 

    Best wishes, 
    Jenn
    Cancer Chat moderator 

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