Back in December I was diagnosed with the above, very rare basically cancer of the testicle/ovaries but in my chest! 5 confimed cases in the last 10 years!
It's been a tough ride, within 3 days of being diagnosed I was starting cycle 1 of chemo & a long 12 weeks. Being told the statistics I had were 50/50, my head a complete mess my life as a 34 year old mum, working full time, my life seemed to be completely ruined & ripped away from me!
12 weeks later I'm finishing my last bag of chemo this week, it's been the toughest ride I've ever been on, I'm still not eating or drinking properly due to sore mouth & loss of taste buds, fatigue, feeling sick. No matter how much medicine your given for these side effects they just don't work for some people. Covid definitely hasn't helped either only seeing my partner & daughter in my own 4 walls since December is difficult, sometimes it felt a relief spending 5 days in hospital for treatment just to see the regular faces of the nurses & speaking with other patients on the ward.
Although the chemo treatment is near to an end I still have a massive road ahead of me. Scans etc are next to see how much this cancer has actually shrunk! The chest surgeon will not operate to remove if its still too large (before chemo my whole left lung was covered) I know it's still sitting dangerously close to my heart from an xray a couple weeks ago. If the surgeon decides against removing I've been told it will be another 12 week chemo course, I actually don't think I have it in me to go through that process again. I want to eat & be me again!
Again where it is so rare what I have the consultant's & trial teams are discussing everything & anything that could potentially help!
I just wanted to get my story out there & if anyone would like any advice with treatment give me a shout. I'll update this post once I know more!
Cheryl x
