Hi on Wednesday I was diagnosed with high grade DCIS. I found a lump in my left breast and then was referred for an ultrasound and then a biopsy which confirmed the DCIS. They then sent me for a mammogram where they found some more calcification in one area of the same breast and I am waiting to have a biopsy of that one done. 

I have since spoken to the breast care nurse who has been very relaxed about the whole matter and said as long as I have surgery within the next 20 years that should be fine even though everything I've read if you have high grade then it can change to invasive within 3 to 5 years and we don't know how long I've already had it for. I've also been worried about my age being young at diagnosis the nurse also said that doesn't affect things but again everything I have read shows that the younger you are at diagnosis more chance of recurrence of the DCIS or even invasive breast cancer. I said that I was thinking about having a mastectomy and potentially a double one to me as I never want to go through any of this again I also don't want radiotherapy. She was very cross with me even saying this as she said they wouldn't do this they would do a lumpectomy and probably not radiotherapy. And this goes against what I have been reading and I feel like I have no control over what is going to happen now. I understand that the prognosis with having a lump ectomy and Mastectomy is the same as in survival but it's not the same in recurrence rates.

If anybody has any advice it would be very welcome thank you very much.

x