Grade 3 cancer, HER2 borderline. Am I getting crazy?

Hi everyone.

Thank you Cancer Research for this chat. I was diagnosed last week and people's posts really helped me cope with the shock!

I have two tumors in my left breast. A 4cm grade 2, and a 1.8cm grade 3, plus lots of calcification in between - "lot is going on in your breast" as the doctor put it. The doctor has so far suggested mastectomy (OK, fine).

My ER is positive and HER2 is borderline, they are now doing a FISH test.

The lymph nodes are not affected.

I am still getting the other tests done, I had a CT scan, a bone scan and I am now waiting for an MRI scan. It is only 4 days away but feels like an never ending wait.

Because the lymph nodes are not affected and HER2 is borderline, I am quite adamant that if the test results are OK, I want to have the operation as soon as possible. Irrespective of the FISH result. I will lose the breast anyway, and I am really really scared that if I have the chemo first and it does not work, the cancer will have time to spread to the lymph nodes and I will be faced with a bigger problem than what I have now. I just want the cancerous tissue out of my body as soon as I can.

Am I unreasonable? (I know they will monitor me, but it's only in retrospect - and once the cancer has spread in the nodes, it is there and I can't undo it).

:(

Thank you.

 

  • Hi [@Verity123]‍ , I thought i’d contribute. I was diagnosed in late December with a HER2-positive ‘small’ tumour, it turned out to be two, now fully diagnosed as grade 3  with an overall size of over 4cm once removed. As it was originally thought to be only 6mm, pre surgery chemo was not on the cards for me. Pre surgery chemo is excellent, the reason being it can shrink your tumours to virtually nothing which COULD turn a full mastectomy (which I had 3 weeks ago today) into a lumpectomy. Chemo before surgery is definitely not a negative thing -  it is immediately full on destroying the cancer cells in your tumours. I hope this helps with at least some of your fears. I chose the mastectomy with reconstruction on the day as it gave me total peace of mind. My surgery results are nothing short of amazing, I’m thrilled so far. If you want to refer back to me with any questions you may have please do. I wish you the very best with everything. Stay positive, and strong. Optimism helps greatly in dealing with this awful disease. We are all here for you. Lyn. X

  • Hi [@yorkiegal]‍ 

    thank you Lyn. That's great that you're so happy with your surgery! It's really great to hear.

    Where did you get it done, if you don't mind me asking. And did you go for an implant or your own tissue? I am in London and was told that mastectomy with reconstruction is not an option now because the operation is too long and they don't do that because of covid.

    I have an FF cup so loads of tissue so I am quite keen to make them smaller, particularly if there is a risk of getting cancer again.

    I am just concerned that with HER2 being borderline, the chemo may not do the job. I spoke to my GP this morning and got a referral for a second opinion so hopefully that will make me feel better.

    It's so many decisions and they all have a significnat impact ..

     

    Thank you. V. x

     

     

  • Hi [@Verity123]‍, Sadly we are not able to give actual names of hospitals, health authorities etc, a moderator would remove it, but I’m in Lancashire. I have a large boob too 38e. I have an expander in at the moment that is 2/3 full of the actual finished size,  I will probably end uo with a good C cup, I am thrilled with that, no more under boob sweating in the summer,  looking ‘large’ etc. The consultant did say from the outset he couldn’t replace the E cup because of the weight of it - me, I was THRILLED. The op for the sentinal lymph node removal and mastectomy took 4.5 hours for one surgeon. I chose the implant for a number of reasons, A. my hospital don’t do the own tissue re-construction, I was given an alternative hospital though. B. It is a 7.5 hour op, and C. You have an extra wound site to heal where the tissue has been taken from - primarily lower abdomen. I didn’t want to put my body through that in my 50’s, I don’t sweat the small stuff, and have a different mindset at this time in my life. HER2 has nothing to do with chemo not doing the job, it will absolutely do the job regardless of the cancer ‘type’. And, would you believe If you are HER2 positive, the news isn’t all bad, we have an extra thing in our arsenal purely for HER2 (POSITIVE only)  girls, a revolution called Herceptin a targeted therapy that has revolutionised the not so brilliant prognosis for HER2 girls. It came along in the last 20 years. Chin up Verity, fight for that reconstruction, I know hospitals are really strapped due to covid, but be persistent, incidentally how old are you? Keep positive. Chemo first is a GOOD thing for the reasons i’ve given, it will be on that cancer immediately. Remember, there is a time lag if you have surgery first, it takes time for the wounds to heal, so you could lose a month there. A big hug to you. lyn. x

     

  • [@yorkiegal]‍ 

    Hi Lyn,

    thank you so much for such an uplifting post! :happy::happy:

    I am 46.

    If there is a C cup at the end of all this, it is definitely worth the fight! Thank you also for sharing your reasons. A very good point regarding the extra wound. 

    I will sleep better tonight.

    Take care and have a great evening!

    Vx

     

  • [@Verity123]‍ , Glad to be of help, I am a pragmatic individual, though as scatty as anything at times. I never left the consultants office after the cancer diagnosis in floods of tears, though I was pretty shocked. My advice, if you are going to search Dr Google, only look at things relevant to ‘our’ tyoe of cancer, don’t judge anyone elses outcome, yours may be way different - better even, and keep your mood light if at all possible, it can be difficult but it’s obsolutely doable. Get a good nights sleep, sleep is mega important now and during recovery. Have a great evening too. Do let me know how you get on with things, remember the old BT ad? - it’s good to talk. Lyn. x