Her2 positive IDC breast cancer

Jus a few weeks ago i was diagnosed with Invasive ducal carcinoma Her2 positive. Mammogram showed fibroadenoma and ultrasound small lesion , when i came for biopsy results i get diagnosis: breast cancer . I wish to find someone with same diagnosis to keep in touch and chat about it . X

  • [@Anna71]‍ Hi Zana, You can definitely call it Blue Monday just for today ;-(. It sounds so similar to my cancer ‘placement’, but they were both biopsied as cancer. I had the 10mm with a 6mm behind. Do you have an operation date? Yes I have the oncologist appointment a week tomorrow, wanting it to arrive, but not, if you know what I mean? What a lovely photo you added! I’m not quite that brave............keep drinking that glass of optimism, I started with a baby tumour, it turned into two, then when removed it was way bigger than expected. It’s been removed and forwards we go, not looking back..........I’m here, check-in at any time. Lyn. X

     

  • Hi@Lyn, yes my date for surgery 11 th of March , but i still have 1st March appointment to see my last five biopsy results. It may turn around everything, waiting and waiting  and waiting.I understand that we waiting for appointment, results, treatment but reality its today and life its every day. At the moment we hope to keep safe and move day by day for brighter future ... thinking of you x 

  • [@Anna71]‍ , Hi Zana, It is a waiting game, it’s so very difficult waiting for information, from day one of that earth shattering, life changing diagnosis, the waiting is every bit as hard for every other upcoming result. I can see that every future related treatment  will be dogged by the same waiting sadly, it’s just the way it is, and every one of us will be affected in the same way by this. Hours seem like days and days seem like weeks. 

    As you say - day by day is the best way to view it. I will be thinking of you on the 1st march and everything is crossed for a good result. I will of course let you know my news on the 2nd. I am clinking a half full glass with you now. All the very best, Lyn. X

  • [@Anna71]‍ Hî Zana, Hope you’re well, did you get your biopsy results on monday? I hope so. Take care, Lyn. X

  • @yorkiegal, Hi Lyn.Yes i saw my surgeon on Monday and it turned up that after biopsy they find 9 cm precancer area around  one 10 mm lump . Surgeon adviced me to change type of surgery to mastectomy so on 12 th i will have it plus breast reconstruction at the same time. He will remove limf node at the same time to check if its there clear. Its mean i will stay in hospital overnight... i was shocked to receive such a report , not what I expected.Im already off work since Monday as i have to isolate myself for 14 days before hospital admission and another waiting tine .Im sure i send msg to you on Monday evening to share my situation as I remember we are very similar with our type of cancer. Thank you Lyn for asking its so good to see that we care about each other . XxxZ

  • [@Anna71]‍ ‍ , Hi Z, Not news you wanted, mine was similar, 10mm had grown to 25mm and 6mm had grown to 18mm. So I am pleased I opted for the mastectomy, every trace of breast tissue gone with surgery, no need to worry about margins and stuff. I am thrilled with the recon so far, it has all settled down, scars are minimal. Don’t be suprised if you are kept in two nights - I was. BUT we are in a private room with our own bathroom, because the room has to be kept very hot to keep the blood flow to the operation site. My treatment path was told to me yesterday TCH chemo for 6 cycles (18 weeks), TC via intravenous, H - herceptin via subcutaneous injection, then 18 cycles (54 weeks) of Herceptin on its own, followed by 3 years of biphosphonate intravenously to help with bone density loss - 4.5 years of treatment, quite a commitment! I wish you well for the 12th, I self isolated for 14 days too, and a covid test 72 hours before surgery day. I will be thinking if you. Take care, a big hug to you. Lyn. X

  • @Lyn, this treatment plan will keep you very busy, our Her 2 need agressive treatment. My team did explain me about future treatment but after surgery when i get pathology results it may change. What i know that chemo its for sure , so I follow you step be step. Iam in London and my surgeon operating in private hospital as they allowed NHS breast cancer patients at a covid time. Unfortunately no one allowed to come to me in hospital so i will be alone ( thats not bothering me) i just want to get out cancer from my breast as soon . Why are we not sleeping? xxxZ

  • [@Anna71]‍ , I am an insomniac! I worked night shifts for 32 years, and now I am retired and living ‘back to front’ I have trouble sleeping! Excellent - private hospital. I wasn’t allowed visitors either, I had to facetime hubby. Still 48 hours for me, not too long, hopefully only 24 hours for you! GET SOME SLEEP!!! Lol! X

  • @Lyn, iam the same no need much to sleep, 5-6 hours more than enough , and at isolation for me its horrible thing stay at home but dealing with it the same how is everyone. I went back to our conversation 10 days ago and read again all your medical story . I believe that you are still won one prize to not have radiotherapy yes? Iam pleased for you . My surgeon said that i may escape or may not depend of my pathology report and he promised me 8 cycles of chemo ... what day its your first chemo? Are you going to use cold cup ? ( freezing head) . Iam thinking of you xZ

     

  • [@Anna71]‍ , The oncologist can’t discuss the radiotherapy as it’s not his department, he said I would see the radiologist in a month or two. It seems it’s not a definite thing, as my nodes were negative, so I’m unsure. I don’t want it to be honest. I have just had a phone call for the MUGA scan on friday. They seemed to think yesterday the first chemo could be next week at some point. I am definitely going to cold cap. I searched ‘cold cap’ on here, the first 15 minutes are apparently the most difficult, but a lot of ladies have had success with it losing 20% to 50% of hair only. I did say I wanted it yesterday and the breast cancer nurse made a note of it for the chemo team. The oncologist did say yesterday it just doesn’t work for some ladies, but you don’t know until you try. I have very thick shoulder length hair, so fingers crossed. I will let you know how it goes. Speak soon, Lyn. XX