Ovarian cancer

So I have been thrown into turmoil again. Had my hysterectomy last Thursday. Consultant said couldn't find any sign of diseased tissue so was quietly confident that my outcome was good. Today he gets histology report and it informs that cyst was cancerous and rogue cells were found in the omentum wall. Now I have to stay chemo. Absolutely terrified about what this means. Has anyone else gone through or going through similar???  Any support would be so helpful. Thank you 

  • Hi there

    My situation is similar to your own.  I had my hysterectomy over 5 years ago and was told after the op by the surgeon that they did not notice anything sinister.  I choose to get the phone call and was told there were cancerous microscopic cells and I would need chemo! I was devastated!! Then I lost my dear mum just before my final chemo 5 years ago and was total heartbroken.  I found McMillan Cancer Support amazing. U could off load your worries and concerns. I hope I have been some help to you.

    Take care. x

     

     

     

     

     

     

     

  • Hi caledonian

    thankyou so much for replying. 

    Iam struggling with the loss of my mother in October and then this diagnosis. The fact that you said 5 years ago gives me so much hope. I have lying in my bed crying thinking it's all over for me.  I dread the chemo. Was it really gruelling?  I have been told it is the harshest treatment there is. Do you mind sharing that information?

    ihave yet to meet the oncologist to discuss my treatment plan. In my head it's all incurable and yet I know there are stages. 
     

    many thanks 

  • I felt exactly the same thinking it's all over for me too! You feel in such a dark place. I take antidepressants and also have a psychiatrist. I was extremely anxious starting my very first chemo treatment but the nurses are great. Everyones experience of going thru chemo is different but just keep thinking its killing the cancer cells.  I have been told I am incurable but treatable. I just keep thinking one day they will have found a cure for this awful disease.

    Hope this helps. 

     

  • Thank you. You said you had your last chemo 5 years ago. How has your cancer been managed since?  I don't personally believe any cancer is curable as there is always a chance of it coming back.  I like the sound of it being treatable  I would take that as a positive.  Just 2 replies from you have brought my anxiety levels down. I am so grateful to you. Thank you 

  • Hi

    Its 5 years this July since I finished my chemo. After that, remission for over 3 years returned a year past in December and put on Letrozole. This eventually stopped working. Then I was on watch and wait x then ca125 test started to rise and thats why Im back getting treatment.

    Im glad to hear I have helped a bit x just remember there are new treatments on the horizon. Well thats what I keep saying to myself.

    Take care x stay safe.

     

     

  • Hi sorry to jump on I had my ovaries taken out 2 weeks ago this firday comeing and a mutiloclated cyst on right ovary and a small hemorrhagic on lefted ovary. Two days befor that had a lump removed on breast and it was at this appoment that he said I should be seen again as the hemorrhagic cyst was found in October and hadent seen anyone sinse was in alot off pain losing weight as well as so much other stuff I then got a call the next day to have a scain then thay found the other cyst and said thay need to operate at 7.30am next day so that's wot happend I cant rember anything after op apart from them tilling me thay tock my ovaries and thay all need to be tested .i had keyhole. I phoned gp week after he dident even know i had a op.and dident know if i should be on h.r.t or not even know I'm now menopause as was told in oct that I was going few premature menopause and now have no overys. Phoned today to get told that g.p probably wot get my results thay prob got sent off to london I'm in essex I'm so confused and scared and feel like I'm in the dark . On the good note my brast came back clear . G.p also said thay must be worred to rush op  and send them off for testing ..hope this was ok to post . Did you phone up your g.p to get your report please.im so sorry to hear what you are going few and good luck sending lots off love xxx

  • Hi. You poor thing. A lot has happened very quickly and I can understand your anxiety.

    The wait for results is agonising and I am sorry that your GP is not able to give you more information about when you should expect results.  I would keep calling to make sure they manage this for you,

    on the positive side, you have the all clear on your brest lump so hopefully you will have a good outcome for the ovaries too. They may have needed to do an emergency op to prevent your cyst from bursting,  I am stunned that no one has told you the reason for removing your ovaries,

    mine was done privately and start to finish it was 2 weeks from the scan to getting the op and having a confirmed diagnosis so I didn't need to chase my GP

    ireally hope you get your results soon and that they are good results for you.

    please take care and if you can please will you let me know how you got on

     

    best wishes 

  • Hi Gem

    i was wondering if you got anywhere with your GP and your results?

    I hope you have had your mind put at rest x

  • Hi sorry still up and down at the moment I spent alot off yerstaday calling around to try and find out I have hosptail on tuesday morning found out I allso had my fallopian tubes removed as well xx thankyou for arksing how I am  iv been getting like period pains I'm just hopeing thats normail feel like I have bubbles popping where thay used to be agin not sure if thats normail xxx how you are well xxxxxx and got a phone call with g.p on 8th day befor I'm spose to go back to work I'm a care assistant but I'm so tide all the time just whant to feel better xxx

  • Hi Gem

    were you shocked to hear that they had removed your fallopisn tubes?  I would have hoped that the surgeon would have discussed that with you beforehand!  I can imagine the anxiety of not knowing what is happening.  I really hope you get positive news  

    I have had my oncology meeting and have been advised it is stage 2. I start chemo next week. I am so scared about the effects of chemo. It am keeping positive. I have started Ayurvedic treatment to boost my immunity naturally with juicing and plant based diet. I don't eat meat anyway so this is easier to follow. Let's see if this will help  My hysterectomy was 4 weeks ago and now that my stitches are out I am thinking of returning to my yoga and meditation to just get me emotionally prepared  I just feel exhausted with the worry of it all and yet I know that I am not alone :-( there are so many  rave people on this site who remain positive and determined. 

    please will you let me know what your GP says about your results. Again I hope it's all good news for you. Take good care of yourself xxx