Diagnosed before results

I attended the breast clinic yesterday, for what I thought was a scan on a lump I found 2 weeks ago. I had an examination by the consultant who initially said it's probably a cyst, then was sent for a mammogram, then sent for an ultrasound and then biopsy in which 2 samples were taken. I'm good at reading people so I called out the ultrasound / biopsy doctor out on the awkwardness I was sensing and the fact he'd insisted I bring someone with me for biopsy results, and so I asked to be told straight what they suspected it was. I was told they think it's a cancerous lump. I broke down and ended up in a quiet room with a nurse being told about operation timescales and radiotherapy. My head was spinning. I went from thinking I had a cyst to being told about cancer treatments within 2 hours. I get the official biopsy results this Thursday 11th February. I can't think of anything else other than cancer. I can't concentrate on watching TV or having a conversation. I feel like I've been knocked over by a truck. Any advice? 

  • Hi, I've got a suspicious lump too, and also had a biopsy. I'm due to get my results on the 11th too, my lump is very palpable, but yet didn't show on the ultrasound. I feel how you do, can't focus on anything else, I lie awake all hours. X

  • Hi, 

    I feel for you, same sort of thing happened to us!
    my husband went for an endoscopy for what we thought might be reflux maybe an ulcer or two. He went on his own. Dr's asked him to wait behind until they had finished as they wanted ' a word'

    My husband being a straight talking kinda guy said ' okay, cut the flannel, what is it'. Told him there and then that is was dodgy. Probably Oesophageal cancer, but would know the extent until after further investigations the following week.

    i get a phone call off him in bits. Then I proceed to be in bits etc etc.

    That week was the worst part, the not knowing exactly what was going on and how bad it was etc. Thinking 'oh why us', 'what did we ever do' etc, but actually that changed in time to 'why , not us'? It can happen to anyone for no reason.

    So , give yourself a break, of course you are beside yourself, think about nothing else but the big C. The emotional meltdown is incredible, but come on, you are human and it is allowed. I don't particularly like the words 'coping' or 'staying strong' what on earth do they mean, how do they look. There is absolutely no 'correct or normal' way to deal with these things, somehow you just do.

    As I have said a few times on here- when we got the full picture and treatment plan, I was like " thank goodness it is only the big C!!! , could have been some hideous disease with no treatment or potential cure," how mad is that, but now most of the treatment is over it is kinda true.

    I found this site incredibly useful, not because it could take anything away, I was able to vent and seek other people's experiences (good and bad) in the privacy of anonymity.

    you'll do okay, once you getting cracking on the plan

    best wishes.

     

  • hi manda

    there is a website called breast cancer now very helpful i was diagnosed on the 22/12/20 and im still a mess

  • Hi Talchiamo 

    Sorry to hear that you are in a similar position. Did they tell you anything at your biopsy appointment? 

    It's all-consuming isn't it! Its alot to get your head around too.

    Best wishes, hope you get a good outcome on Thursday

     

  • Hi WestieRuth 

    Thanks for the recommendation; I'll take a look.

    I can see me being the same a few weeks down the line, I have anxiety and dwell on things as it is! Awful feeling isn't it. What an awful time to get diagnosed too, right before Christmas! 

  • So sorry to hear that, sending best wishes for your husband's health.

    Thank you for the advice, I hope I can get my head around it all at some point!

  • Hi, 

    Fully sympathise. We didn't have a specific biopsy appointment. They took them the same time as doing the endoscopy. The he had a CT scan the next day, not because it was overly urgent , just had lots of spaces because of Covid. About a week after he had the PET scan - which is a seriously amazing bit of kit- that is the one that checks for extent of spread - the cancer cells glow like stars on the scan. Luckily, no glows anywhere apart from the primary place.  A week after that we saw the consultant. All cases like that are dealt with by an MDT, and he gave us the extent, prognosis and treatment plan, so in just over a week the whole thing,

    Now we are 5 months on. It has got much easier emotionally, those first weeks were awful. Obviously, it was something that we could do without, but we got to a point quite early on where we decided to just crack on- I mean what else can you do. I found 'distractions' a great help. Work has been very distracting, meeting with my mates .
    As for anxious, I think I was born anxious, but strangely now that I have something to actually worry about I am sort of okay with it. Strange.(:

    anyhows. Crack on and do well.

  • Your situation sounds exactly like mine. I had my appt at the breast clinic on the 21st Jan, they told me they strongly suspected it was cancer. I went back for my results on Tuesday 2nd and cancer was confirmed. I had an MRI on Thursday and then go back on the 16th. All I can say is it's mind blowing but remaining calm and positive helps. I'm 36 and tested negative for the brca2 gene so it's a complete bolt out of the blue. Xxx

  • Hi Em_Duck

    Thanks for sharing your experience. When they told me yesterday, I broke down and was a mess. I feel silly now as waiting biopsy results but they were very sure that it's cancer. I'm desperately trying to calm down and inform myself. There's no history of BC in my family, so like you it's out of the blue. Any tips on being calm and positive are welcome. I keep telling myself Its good that I rang doctors as soon as I found lump, was seen within days and all tests done on the day. The wait though is agony! Even though they've told me already! 

     

  • Great to hear things improve emotionally! Thanks for sharing your experience with me, it's really helpful to hear other stories x