I think i will ,wow its gona be hard though but I probably need this as much as he does. I'll have a couple of vodkas first!

Thank you

Alethea x

Sorry to hear about your husband too. I hope he is able to get some periods of relief. My husbands tumors aren't in his stomach. I really wish they were because then I'd know it could be treatable. At the moment we've been told the tumors are in the abdominal wall which doesn't sound good to me. They weren't picked up on any scans which makes me question how they can treat them if they can't see them. 
 

The weird thing is that since he's had the explorative surgery he's been able to eat normally without any flare ups. He's been taking the build up drinks, vitamins & a small amount of morphine since his op. Before surgery he was struggling to eat even a slice of toast. I think one of the hardest things is that I don't understand it. Hopefully tomorrow whatever the outcome is I'll get a better understanding. He's not really putting on weight but he's not losing any more either. 
 

it's just horrible waiting. Neither of us slept well last night & I don't expect to tonight either. I'm nervous, scared &  worried about tomorrow, I just hope I can keep it together enough to be able to take in what's being said. 

Aw sweetheart it must be terrifying for you both,

We're still waiting for a letter from the hospital to find out the outcome of hubby's last tests and what the next step is. Although weirdly I cant show it I am terrified too I cant imagine being without him. I hope it dosent come to that.

I hope it goes better than expected tomorrow and if you're able to please let me know how it went. I wish you both the best of luck.

Alethea x

Unfortunately our news wasn't good. It was as we had a anticipated. The tumors are cancerous & the type of cancer is relatively unknown. They are going to give him Chemo is try to control the tumours but it is not curable. 
 

Its been difficult for them to find due to where it is & the fact that usually this type of cancer comes from somewhere else but they haven't found cancer cells anywhere else & his bloods don't have any markers on them. 
 

basically they are still learning. He has signed consent form for them to use his blood & biopsy for research into this type of cancer. 
 

fingers crossed for your results. X 

Oh no I'm so sorry to hear that. Hopefully the chemo will help and and give him a relatively decent life. I hate that this happens to the good people, the ones that don't deserve it. Its good that they're doing research on his type of cancer it might help other people one day.

Good luck to both of you I hope everything turns out as well as it possibly can.

Alethea x

Hi

I've just finished treatment for my second primary cancer (non related) within 12 months, to be honest...I feel the whole journey has been worse for my partner.

As the patient I had it all going on - even more so during lockdown - as they cant be present in a lot of the interaction with medical staff.

As such it's totally natural for you to find it tough!

Everyone's coping mechanisms are different:

-some dive in and 'take over' ...in fact owning it more than the patient,

- others will avoid it - if they dont confront it head on..then it wont impact them...

From a patients perspective - i found people treating me 'normally' was refreshing and helpful.

Oh....and arguing can be quite helpful...you get things of your chest - get rid of some of that built up pressure - and it's pretty normal that the thing that sparks the argument is pretty trivial and inconsequential.

Hi

This is quite reassuring thank you. It must've been awful for you and your partner. Having cancer is horrible at the best of times but in lockdown it's even worse.

I'm glad you've finished your treatment and hope you are recovering well xx

That's kind of you.

This might sound weird- but in some ways, going through treatment alongside lockdown actually made it easier!

When everyone else was stuck at home - we had to go out on a daily basis, we had routine/structure/purpose- all the things that were taken away from most people!

And hospital parking ... there was no need to add an extra 45mins onto the travel time to factor in parking!!!!