Hi everyone. I have just been diagnosed with ET which, as a 25-year-old who is otherwise fit and healthy, came as a big shock. I'm also a doctor so that doesn't particularly help with things... I was diagnosed after noticing petechiae on my legs (clusters of teeny tiny purplish red dots caused by capillaries bleeding into the skin). Other than that I was asymptomatic. My platelets were found to be >1000 and are still on the rise... meaning that because of the paradoxical increased risk of bleeding I'm not on Aspirin. My Haem team are considering starting me on treatment with interferon. I'm still very much coming to terms with the diagnosis because I would never in a million years have expected to be diagnosed with a condition that typically affects people over 60! Since my diagnosis I've been having a lot more symptoms - strange headaches (I have always been someone who gets headaches but these are very different to those), fatigue and the most bizarre burning/tingling sensations on my skin mostly on my arms, legs and head. Does anyone else experience these? Having this diagnosis has made me really question what I want to get out of life and to make the most of every day. I think something I'm going to find frustrating with ET is the unpredictability... not knowing if you're platelets are going to stabilize or increase and if so when. I just wondered how having ET has impacted on people's lives? Any advice or anything I should be aware of from the point of view of people with first-hand experience of living with this condition? Feeling very grateful to have a place like this to speak with others who understand. Looking forward to hearing your experiences. Charlie