I'm sorry to hear that you've been advised you will need surgery. I've had a good look through the forum but I can't see that we've any gentlemen on the forum who have mentioned having this type of surgery.
I've had a look and I can see that Macmillan has a penile cancer group on their forum so it may be worth posting there to see if you're able to connect with others.
I also wanted to signpost you to an organisation called Orchid who offers support and information about male cancers and also to The Bladder and Bowel Foundation. It may be that one of these organisations is able to help you connect with another man who has had this surgery.
It might also be worth speaking to your clinical nurse specialist who may have some connections.
If you'd like to speak to one of our team of nurses for some advice and support you're most welcome to give them a call. They're available Monday to Friday from 9 am to 5 pm on 0808 800 4040.
I hope this helps in your search and wish you all the best for your surgery.
I'm a penile cancer survivor - https://knob.blog if you're interested in the whole story! I've had surgery on my pelvis to remove lymph nodes, and extensive groin surgery. I'd also recommend the macmillan penile cancer group for connecting with others in a similar situation. There are a surprising number of us! I'm only 41, so penile cancer was a bit of a shock to me too! (orchid are also brilliant)
I'm a penile cancer survivor - https://knob.blog if you're interested in the whole story! I've had surgery on my pelvis to remove lymph nodes, and extensive groin surgery. I'd also recommend the macmillan penile cancer group for connecting with others in a similar situation. There are a surprising number of us! I'm only 41, so penile cancer was a bit of a shock to me too! (orchid are also brilliant)
