Hi there I have just been diagnosed with bowel cancer I had a colonoscopy Ct and MRI scan over the past 2 weeks I am waiting to find out what my treatment plan will be . Anxious times is anyone else going through the same on here ?
Hi, how are you doing? I remember you saying that you're booked in for surgery on the 24th, how did your Consultant appointment go?
I had an appointment last week and thankfully there wasn't t any evidence that it's spread. They can't promise about the lymph nodes until they test them. I'm just awaiting a date for surgery now. So once they've removed the tumour then I'll know more xx
Hi, lovely to hear from you. So glad it hasn't spread, it's such a relief isn't it? I wonder how soon you will get your date? Hope it's not long. Consultation went well last week, he seems a really lovely guy. Explained everything to us in a way we could understand. All the possible complications are scarey but just want this thing out of me now! Even the chance of getting COVID doesn't put me off wanting to get on with the surgery. Only 2 weeks tomorrow now. I am apprehensive but have no choice!, sending positive thoughts your way xx
No still not got a date for surgery, I saw my consultant 2 weeks ago now and was told 2-4 weeks for a date, I just need it sorted now as obviously you worry about it spreading the longer it's there. I had my covid jab this week so I'm ready now, just waiting for the call, then it'll be pre op and another covid test.
I bet you're feeling mixed emotions, anxious for the surgery but relieved to get it out and done with xx
Hi, thank you so much for your message. Apologies for not replying sooner. Been very ill and forgot my password to the cancer chat! The operation itself went very well. No stoma so that was a bonus. However through that first night my bowels went into involuntary spasms, it was horrendous, and I was losing a lot of blood. Most scarey time of my life I have to say. This happened 3 times during the course of the night, I was mortified. Then on day one post op I started being very sick so out of both ends! God I just sat and cried. Couldn't keep anything down so didn't eat for 4 days solid. Then they moved me to another hospital and the journey nearly killed me I was in so much pain. Going to complain about that when I feel up to it. Finally got back home today but I am exhausted and still in pain but very, very happy to be home. Have you got your date yet? X
Aww firstly I'm so happy that you're done and home safely. Also no stoma, I pray I don't need one too. Sorry you had to go through all that though, it sounds horrific. They shouldn't be transferring a seriously ill patient just been through surgery to a different hospital, definitely complain when you feel up to it. No I'm still in limbo!! Fed up now, I'm going to phone the hospital again tomorrow for an update. It's been 4 weeks now since my scans and consultations appointment, I should at least have a date by now instead of them just leaving me without any treatments xx
Yes I finally got a letter last week, I go for surgery next week on the 17th March, I'm absolutely petrified. My prep op is this week. Apparently I have to go into hospital the evening before, not sure how that will even work if I'm meant to take the moviprep? I'm going to mention that during the prep op.
Hi, I am so pleased that you finally got your date. I understand your fear but try concentrating on the fact that soon you will be on the other side of all this like me. It's not pleasant but just knowing that the cancer is finally out of you is such a relief and then just try look forward with optimism. I know it's easy for me to sit here now and say that but you do know that I fully understand your fears and concerns. Message me anytime if you need to talk.
I am getting stronger each day and look upon everything I achieve, even if it's having a shower and washing my hair, making the bed, making myself a cup of tea, I look upon this an an improvement and an achievement and it's proof I am getting stronger. Still waiting for news from the hospital to see if I need further treatment but hoping not.
