H

Had results today from biopsy on tonsil and now know its cancer, its all been really quick what with scans and hospital visits so not really had time to think about it now it's just starting to sink in but I'm pretty positive, I'm told its spread to a lymph node has anyone else had this 

HiAli

I am sorry to hear your diagnosis, but the first thing I would say is there is always hope. Al my friend here has the same and is currently undergoing all the treatment. He is having a six week course of radiotherapy and chemotherapy over most of the week meaning daily trips. The first thing they have to do is make sure you have no teeth that will get corroded by treatment so need removing first,. They then measure you for the mask this apparently is quite comfortable. They then arrrange the neginnings of the treatment. It will not be easy so you will need a good support system around you - family, macmillans, friends especially when you have down days. Some people loose taste buds during treatment some can find swallowing hard but if you look back on our talks there are mouth exeercises to do. 

Find all the exciting food things you love that are highly flacoured and stock up you will need to keep your weight up and need things that are exciting to make you smile. 

good luck i am here is you want to talk. 

stay strong x

Hi 

hope eveyone is having a good weekend. 

Lovely to hear from you Alli glad you are feeling better , hope the blisters and sore mouth clear up soon. 

consultant mentioned sarcoidosis a rare disease to me there is no cure but it can go dormant and have flare ups, some people can recover and a very small percenage go to stage 4. i looked it up and fit all the symptoms to a T so i joined their face book site and it sounds more and more like me - unfortunately it is not well diagnosed - sign - one of those and is often missed out or ignored. thankfully my consultnt knew about it but seemed to think it was curable so even his knowledge is debaitable. no news fromxray so chest is obviously fine so just waiting on CT now. yes on pain killers and anti inflammatories, hvaing to keeo the dose high so that does not help with the chronic fatigue. 

mini mafia are all getting ready for the BBQ and carnival, the "boats" are looking fanbtastic and very colourful. one floral display has been pinched from the garden and consists of a lot of oxbow daisies surrounding the king and queen seats. some patches of next doors lawn has been dug up for the flooring. (not sure the neighbours are impressed with their lawn at the moment - wll we know why!). there is b oat made out of litter dumped by cars so it consists of macdonald bags blown hoisted up as parasols, tin can tables, sweet wrappers table cloths and bubble wrap chairs that are covered in moss and really comfotable. the rock dudes have of course a cool looking boat with their leather jackets, sun glasses and huge music speakers blaring out already even before theings ahve started. you can smell the start of the BBQ fires now even thought htye too are early - its not kicking of until 6pm tonight. 

we cancelled the neighbours tonight the hubby wants to watch his footie and ia m too tired so it suits us we said they could come round monday or tuesday instead. 

managed to get some gardening done yesterday and that pushed me over the edge lol serves me right!! 

well have good day stay safe and keep sminling xx

morning 

bit more gloomy today and we had a litle rain last night but not really enough to water the garden as required. 

mini mafia had the most amazing summer carnival boy they rocked!! the girls all worm 60 esk dresses with the fullest of skirts and huge waist belts to accenuate their figures!! lots of floral prints and bright colours - you needed sun glasses!!!. there were amazing floats and a surprise one hidden undder wrapps by the Americal crocodiles who made one look like a swamp with ice mist machine and creeping ivy hanging down from the ceiling. it was decreed creepy because every now and then all the rats could see was either a face and beedy eyes, a claw comng through the mist of a tail swipping down. this float was the best design so won a prize of a large barrle beer!! Grandpa was part of the judging and had the final say. there were a lot of aaaahs when the nursery float went past and showed all the families little uns in their cots and play pens laughing and gurgling happily. the fire brigade went past on their lorry and  sprayed water everywhere people screamed with delight. the food went down well the roast corn was yummy and juicy and went in seconds! strawberries were picked from the garden and given to each person with either a cream or chocolate topping. like most mafia events it went on until late - the kids didnt mind missing their bed time lol and they all went home happy to meet again today to begin the clear up.

i on the other hand am  not aiming on doing much today maybe a little painiting - feeling a little more with it today so thats promising. 

habe a good day keep smiling x

morning all

hope everyone is getting there. 

another glorious day contrary to weather forecast! managed to get ten mins gardening done with break so pleased nearly weeded the path amongst the veggie poatch - really pleased. going for rest now then may do a little painting. this porch area is taking fior ever lol. 

the jackdaws were on the birdtable have a right squabble lol they only just fit on there it was quite amusing , - makes you realise all species are really quite similar in their behaviours!!, they all have the family reactions to each other and against each other we call jealousy we think they call resource! its like us putting words into other peoples mouths what we presume sometimes. 

other good news hubby thinks he aw hedgehog poo last night that would be great if the little uns have come back to visit. 

anyway have good day keep smiling xx

morning - boy the weather has changed - its actually cold!! just when i had put the jumpers away lol. hope everyone is wrapping up warm too - very important as part of recovery keeping warm. 

pedro has a new toy - a friend brought over some hedgehog supplies she had been gathering for us and gave him a squeeky aubergine - it is a hit he would not stop retrieveing it even with the new chewed top (am expecting that to come out the other end lol). 

the plants have gone nuts again the wisteria reminds me of the triffids with their creeping tentacles. i took a photo of hubby dozing in his wheelchair in front of one who looked it like it was creeping towards getting him !!

no news from hospital yet - aparently can take for ages to get diagnosed especially when not straight forward sign the waiting game is being played. 

keep safe and keep smiling xx

morning - definately cooler so watching someone eating the hottest chicken wings lol 

hubby has had to put on a sweat chirt hahaha and he hardly ever wears anything thicker than T shirt.

off to hospital today not for neck but spine this time lol will be interesting to hear what they have to say about my spinal stenosis. hve decided will probably still wear masks even after the 19th dont trust the rate of infection and cannot afford to catch anything. 

crocs went home yesterday after having a great time with the mini mafia. surorising really that they both get on but it takes all sorts. they had a good sending off everyone cheering and hugging each other and the crocs even invited the mini mafia over to America at some point. After  a bit of spluttering and black smoke from the camper van exhaust the crocodiles left leaving the mini mafia laughing and coughing in the fumes. 

keep smiling x

morning 

promises to be nice today the weather is so unpredictable so i suggest we all enjoy what we can!! 

already had a sit outside getting the rays - lovely. 

well got CT scan date for 22nd and agreed to have more injections in spine before opting for operation. 

time to start trying a job a day again in preparation for work - the idea makes me sink lol dreading having to cope for 6 hours on the trott. - needs a boost up the back side lol - like the fireworks that go fizz all over the place! 

now got three hedgehogs back in my care - this is good preparation lol. two have been attacked in the disabled garden by rats i suspect and have got cuts and abscesses so i had to clean them all up yesterday and give antibiotics. then i have a little baby called Terry who we arre having to half syringe feed because he is wee only 121g up 9g since yesterday. he is absolutely adorable and cute so fingers crossed. was not aiming to have any but our co founder is on holiday and one of the hogs was one i had previously looked after called Bigfoot, the other is a frisky girl we have called Wendy. we have madde up a big pen for those two with logs, a roll of grass turf, and igloo houses. 

of for a rest. 

keep smiling x

morning, lovely day again so we have been outside already with the dogs and caught some rays!! going to watch wimbledon later and just relax. 

the mini mafia have also ccaught the wimbledon fever, the girls have their little white dresses and the boys arre in their shirts and they are hitting their rackets around, trouble is no one is any good so the balls are going all over the place, one even dented a cars windscreen, another a green house thankully the humans are just prsuming it is cars flicking up pebbles!! so the mini mafia think its quite hilarious much to the disgust of the parents who are trying to bring them up properly!! kids will be kids!! 

keep saffe and keep smiling xx

what a sticky morning !! it cannot make its mind up. 

good news baby Terry is doing well and ate reasonably well lat night so pleased hes gained 17g!! slow and sure!!

Bigfoot is getting there but being a fiesty little man lol decided he did not want injections last night - not that i can blame him probably remembering lasttime. wendy took things in her sttride which s good.

keep smiling and have a good day x

morning - weather has changed again a lot cooler todday lol. does not know what it wants to do lol. a bit like me this morning!!! 

mini mafia had a pool party last night - they all got into their swimming cossies and went to the large puddle down the road which is a bit like a lake to them for a midnight splash and BBQ at the beach edeg. they had grilled worms and more corn with lots of lemonade - alcohol banned as they get too over board on it and no one wanted any drownings!! (especially with children around). the show of group were habving races to see how many laps they could do, the toungsters just splashed at the edges and the slightly older ones had their rubber rings on and arm bands and were swimming slowly up to the centre and back. the parents sat and did their usual mother chats and the dads played basket ball. it was fun. 

hubby is already had collie wobbles about the game tonight and being a bit over optimistic!! i am more looking forward to the mens wimbledon!! 

have a good day keep smiling x

Morning

Glad to hear the mini mafia had a good time and there were no accidents at the pool party lol, hope your ok Elona and the lumps not causing to much trouble, sounds like you hubby looking forward to the football later I must admit I enjoyed watching the last game my son and daughter watched it to and there was much shouting at the tv, all ok with me blisters still in mouth so still sore but throat a lot better thankfully, starting to worry a bit if the treatment has worked and what next if it hasn't but no point going there have to be positive, hope everyone is doing well take care

Allison x

Morning

Glad to hear the mini mafia had a good time and there were no accidents at the pool party lol, hope your ok Elona and the lumps not causing to much trouble, sounds like you hubby looking forward to the football later I must admit I enjoyed watching the last game my son and daughter watched it to and there was much shouting at the tv, all ok with me blisters still in mouth so still sore but throat a lot better thankfully, starting to worry a bit if the treatment has worked and what next if it hasn't but no point going there have to be positive, hope everyone is doing well take care

Allison x

morning all

Glad to hear your ok Allison, try not to worry if your mouth is feeling better must be a good sign, the blisters will probably take some time to go I imagine - the important thing is to remain positive so you dont get stressed and go backwards. How long until you have your follow up??

hubby got over the disappointment of the footie failry quickly because he said we did not play well so really didnt deserve to win although he said you could say they had a draw since they were both one all and not to count penalties. 

i find things very difficult with chronic fatigue and have to try and work out how to cope becuse i have to go back to work in three to four weeks time. 

i have been putting out food for the outside hogs and i think next doors cat has also been heloing herself lol because she has been leaving me presents next to the bowl!! these have been throw. into field for fox so hopefully also acting as deterrent for mini mafia. (think they have nticed as therre is a big red cross marking the area and only the thrill seekers are venturing across!

take care keep smiling. x

morning 

hope everyone is getting on ok and enjying the weather. Pedro is loving having me at home at the moment he goes intot he garden loads of times - of course on his terms - however, the pigeons were not so impressed they had to wait for their tea yesrterday because he wanted to play!! think their tummies were girgling a lot by the time they got to their tea!! 

try8ng to improve my energy levels but not easy - have an appointment for TB test tomorrow - bloods to see if i have been in contact with TB that is. lovely nurse phoned me up today. 

enjoy the sun keep smiling x

morning 

a breeze this morning which is quite nice. Had to get up early to go and get C spot bloods done, should get results next week when i get CT scan. also have the fun of sputum pots to do lol. got a little emotional due to tiredness Rolo decideed that fter my meds at 2am i had to be kept awake until he got fed at 6am then i had 2 hours sleep before i had to get up. Met the respiratory nurse too, who is also the TB nurse for assessment to see what she thought. she will then retell back to the consultant with whatever she thinks. - another limbo. 

hoping everyone ok. 

the hotel a la mafia is coming along the builders got threatened yesterday that if they did not finish by the end of the month they would not get paid. they nearly walked out until they realised that this was actually a profitable job and they wouldnt get another one that good in the area. (susopect the wifes also had a voice in their descicions - another kind of threat!!). the main structure is not nearly done so it looks like it is on track and the manah=ger is pleasantly pleased he is going round beaming and being nice to everyone to the relief of the habitants. 

little Terry has put on weight still he is now 202g really pleased he is doing well. the other two hogs are also ok, they had a bit of a tiff last night obviously because they were separate last night. the pgeons were waiting for their breakfast this morning whilst we were outside. 

have a good day keep smiling xx

morning 

snuck up to garden centre early this monring to get a roll of turf as we boardedof a section of garden for tortoise to wander around and get some sun. he is now exercising (looking for escape route!) out of the cornerred gqrden, but he ha turf to walk over, food, water, pebbles, slabs, dandelion leaves and sun. 

i couldnt resist some plants too - one of which is a bright yellow lupin the hubby liked so they are now in the garden too and that flower boarder is now nice and colourful. need to finish weeding and start on front garden. 

hve good day and enjoy the weather, keep smiling xx

morning = hope your enjoying the sun need to make the most of it as it wont last. 

Missie had an argumane twith her biy yesterday, the oys of young love! she is now being comforted by her girlie friends while reciting the story over and over again - and it wasnt even important but to her it was a huge big deal. he wanted to got to a drive through where there were several friends going and they could have a get to gether but she wanted a one to one date so he basically went by himself and she ended up going home and when he did not follow her to apologise she ended up crying. he plans to go round later with a bunch of flowers but did not really think it was such a big deal goes back to the men are from mars and women from venus synario!! 

tortoise has been out side again this morning for a short while until he decided to climb the stones and escape but he ate some cucumber for the first time in years !! was quite impressed. i gave him a little plate of tomoato, salad, cucumber and strawberry and he ate a reasonable amount. will try again tomorow; 

five minutes of sanding this morning now resting as my eyes dont want to stay open. sigh feel in a catch 22 dont know how i am going to get over this to go back to work but have to try. 

have good day keep smiling xx

morning 

going to be hot so sun cream on folks!!! 

not going to be outside much in fact watered the back garden when i got up for early morning meds lol couldnt see what i was doing much but they got some water!! 

have a slight heaahe now so going to rest and just do the required things. 

keep smiling xx

morning what a scorcher!! 

its already so hot we wont venture out today!! - if you do keep safe and sun creamed!! 

mini mafia have got their paddling pools out again - no natural ones this time they have all dried up so they went and bought several and used peoples hoses to fill up over night - hoping people will put it down to watering their plants. lots of parasols up that look like the oxbow daisies in the field so no one will notice and a lot of splashing about. there are a few trying to bomb the water with their bods to the parents dismay but kids will be kids. lots of water pistols as well poor Grandpa ws reading his newspaper and got suddenly wet with a water pistol. at this pojnt everyone went silent - shock horror - the most respected member of the clan - thankfully he just smiled with a glint in the eye and moved away - the child were quite sheepish for a moment before suddenly going mad again. 

no madness here even the dog is having a lie down!! 

keep smiling xx

afternoon - short note to say hi and hope everyone is ok. very hot today and tired got up early as i have to try to get up at this time for work - have to go back soon but was a struggle.good news thiugh lump on neck has gone down again now a pea size so thats promising but i do want smething to show on CT or i will get one of those we dont know nothing to worry about answers that are useless so bit worried about that. also need an answer for work rather than we dont know if they can say was or is but imptoving etc will be good. fingers crossed. anyway thats thirsday. sent in sputum test am what joys!! 

keep smiling xx

feel i have done a days work already!watered the garden, fed next doors cat and managed to get up early again!! going to be a scorcher again and the thunderstorms we are broadcast may just miss us by the looks of things. 

pedro is already lying around despite having gone out several times already! Shugs is too warm she did not want to eat much - until that is I showed her some ham!! Pedro never needs encouragement to eat in fact he waits patiently until she has finished to see if he can polish of anything else on the plate. 

my sweetcorn is so high it reminds me of the the Stephen king film in the tall grass where the people got lost and could not find their way out. it towers over me that if it was in a field i would certainly get lost lol. 

the pigeons were desperate for food aghain last night they even ignored Shugs barking at them to come down and eat! 

have good day and keep smiling x

keep cool today its sweltering!! keep safe and keep smiling x