Tonsil Cancer - Whirlwind Week

Hi All 

Firstly Hats Off to the NHS in Wales, they have been super amazing since my diagnosis on New Years Eve. Thank you all 

The title of the post is Whirlwind Week and this is why:

New Years Eve I have a phone call from ENT confirming tonsil cancer.  Very apologetic confirmed over the phone.  Wants me in for a biopsy.   Later the same day I get calls from ward team and covid test centre booking appointments.

Monday 4th January i have a covid test at 9.30am. Results back same day, negative for Covid19.  On route to test centre call from pre assessment team asking me to go in straight after my covid test for my biopsy pre assessment.   Forgot to mention biopsy booked for 7th January. 

Tuesday 5th January have an ultrasound at 9.30am and an MRI ar 11.00am.  The ultrasound was an external ultrasound of my neck. They decided to take two needle biopsies of lymph nodes which took some doing as the nodes were so solid they couldn't get needle in... Thank goodness for local anesthetic :)

From ultrasound they decided to send me for a 3d scan of my jaw.  This was done primarily in case I need any teeth removed pre radiotherapy treatment.  Apparently radiotherapy can cause your back teeth to crumble.  Don't panic not everyone has this done.  i believe it totally depends on size, position of tumour and the amount of radiotherapy you need.

After the jaw scan I went straight for my MRI.  Think I  had two 10 minute sessions,  the second 10 with dye injected into my blood.  I had also had this done for a CT scan on 18th December.

Wednesday 6th January day off.  Which I used to eat as many nice things as possible :)

Thursday 7th January 07.30am its minus 4 degrees c and I'm back at the hospital with my overnight bag ready for another biopsy, I was told to expect to be in hospital overnight.  Due to covid we have to wait at the entrance.  Just 3 of us, asked lots of covid related questions and temperature checked before being escorted to the clean ward.

The ENT surgeon comes to see me to explain the procedure.  Remember everyone is different.   So for me they are going to remove the good tonsil and send it for tests.  What? Not the bad tonsil?  The reason for this is because when you have cancer in one tonsil it is pretty much a done deal that you will get itin the other.   Also by leaving the cancerous tonsil in it allows for more treatment options.  If they cut it out there will only be one treatment path.

During the tonsillectomy they also took biopsies of my bad tonsil and my tongue.   After the op ENT told me that it would take about 7 days for the results so they expect to be calling my Wife and I in a week on Wednesday. 

I was allowed to go home as long as I had eaten something, drunk something and had a pee.  I was home by 7pm the same day.

Sunday 10th January its 6am and I am sat in bed writing this post.  Next to me is a glass of water which I sip all night, my 6am pills and a lip balm.  My bottom lip took a battering during surgery and is very swollen and sore.   The cancerous side of my throat and shoulder is still painful and the right side is even more painful from the tonsillectomy.  Even my lymph nodes seem to be complaining  :)

But you know what, I don't feel sorry for myself,  I don't feel sad.  I'm going to lose weight, but hey I'm 5ft 6inch and 13 and a half stone (male) i could do with shedding a few pounds ;) 

I know this is just the start of a long hard journey,  but I'm ready... bring it on I say!

  • Hi all

    Sorry its been so long had a bit of a rollercoaster with the treatment, the chemo made me really ill the first week just slept couldn't eat cause felt sick all the time had the anti sickness tablets changed which helped but then my ulcerative colitis flared so then had chronic diarrhoea that was bloody so was admitted to hospital for 5 days to get it under control and had a colonoscopy to check there were no other problems thankfully not, on steroids and lots of medication so feeling better but have blisters in mouth and throats very sore but that's to be expected, after today's treatment I'm halfway through doctor said that its probably to damaging to have any more chemo but the tumours shrunk so the radiation should be enough so fingers crossed, hope you are all well 

    Take care Alli x

  • HI Alli 

    Sorry to hear about your journey so far you are very brave and sounds like you are doing well glad tumours have shrunk that is good news so hopefully as you said the radiation will do the job. Wow you have been through the mill but so pleased you are feeling better. We are here for you all the way through if we can xxx Half way through thats good that means the light is getting bigger at the end of the tunnel xx 

    stay strong as AL says and keep smiling xx

    how are the birds on your table?

  • Morning to a sunny day (we hope!)

    both hubby and i are having a reasonably lazy day both of us are tired although we dont know why. i could easily have stayed in bed today and slept for longer but forced myself up. so the job for today is simple to make a corn chowder for tea. 

    We have decided to give myself something different as well as a job a day or instead of we chose a country to cook a dish from. This week is American week. I love cooking and this is to hopefully bring myself something to smile at and enjoy when being tired you cannot be bothered. So far this week we have had 'naked' chicken burger - a chicken fillet marinated in tomato sauce, paprika, italian herbs, onion powder and garlic powder then griddle panned added to toasted burger with lettuce and pepper mayonnaise. We had bacon and cheese seed waffles yesterday and corn chowder today. Tomorrow is pasta making day we hope! 

    Just got Pedro a new pair of clippers. We invested in a pair of oster clippers - we use them at the vets so i know they work - and the old pair i had took me two weeks to clip the boy and i dont have that energy so need something good. They arrived today (very expensive but worth it ) and tried them out boy wow and wow took me 5 minutes to clip Pedros legs. all four of them too !!!! Bless him he was soo good he just sat there. (that was my other job and will be to finish him by the weekend or over it so he can have his bath). 

    the birds are being greedy little so and so's they got through another whole fat square yesterday - am down to only two left so will have to see if we can get some more!! It is wonderfula watching them and the fighting squabbling starlings so funny and so noisy!!!! 

    mini mafia have been constructing a new palace at the bottom of the garden I nearly fell throught their ceiling yesterday when i was looking at my veggie patch to one side i noticed a new pile of freshly excavated soil! took a step forward and felt myself sink slowly and slowly further and further into the ground!! their ground work has now been flattened at one point so hopefullly they will change direction but am not sure about that. we will keep an eye out. The builders were shouting explenatives at me at the time as well as running in all directions they were definately not amused but then they did have their hard hats on and the soil was soft since it was new compost. 

    have a good day and take care. 

    Alli if you feel up to it sometime please write all your esxperiences here even how emotional tyou feel it will help others to read everything how are the burns and what it was like etc. We know everyone is different but am not sure people write enough down as they try to forget or get through and therefore people are not totally armed with all the information. Hope you are feeling ok today. xx 

    AL and Sam hope you are both ok 

    Al bit concerned have not heard from you xx

    keep smiling all xx

     

  • Morning - what a lovely morning it is! sun is shinning lots of people out in gardens gorgeous. Have just been up road to get a couple of bags of compost to finish of my water feature surrround and then will plant my little plug plants. 

    today am feeling bit brighter so am aiming on making raviolo later with my new machine - chicken and chorizo ravioli. our neighbour is spanish and he and his wife are coming round for dinner sunday so will be doing some spanish dishes for them. 

    pedro was naughty last night he barked at 5.30am so have had to get a plant for the other neight=bours as a sorry she is a light sleeper and unfortunately when hubby lets him out early he can be a little noisy for her. most other people would not notice so typical but thankfully she has not really complained yet.... does not help that the naughty sister initiates it hmmmmm ...

    blue *** and black bird were waiting for fat square this morning but they will have to wait i didnt realise how expensice it is they have good taste typical for this household never a cheap animal!! thankfully we did get some seed with bogof. 

    hope everyine is feeling ok and getting some healing sun. catch the rays this weekend if you can and relax and start to heal. 

    have a good weekend 

    keep smiling x

  • hope everyone has enjoyed the sun today. managed to plant the plugs so pleased. now just have to wait for the water feature and it willl be finished. did not get to do pasta but have made the filling, so job for tomorrow but am really tired now. planning a cooking day tomorrow if i can for friends who are now coming sunday. 

    have a good evening x

     

  • what a lovely sunny day so instead of going inot garden decided to change the living room round lol. never did do things the right way round. trip to currys to get tv extension aerial and the moving of the tv unit with all assessories on began .... 4 hours later....... manged to get it moved now the reasemble ..... another hour later yay!!! no humax doesnt work move out the unit andother fiddle around had not plugged something in phew! everything else can wait until another day including the hubbies 500 records ...

    tortoise has got confused moving around he is trying to get into corners he definately cannot and getting quite stroppy about it the silly ***. the bengal boys have not been through yet so they have yet to find their way around. the room certainly looks bigger or longer now. we will sleep well tonight. 

    mind you have still got pasta to make and cheesecake looks like i wont be getting a break anytime soon tomorrow will probably see me in bed most of the day lol x and shoff we used to say. in other words all or nothing. 

    hope people are having a good restful day and are ok. 

    mini mafia were responsible for letting down one of my tyres yesterday. Grandpa informed the hubby it was his sons Sniffy, Stiffy and Spiffy, - Sniffy has a cold, Stiffy has all the children in the household and Spivvy is a spiv selling watches nylons etc. this was the start of their revenge by playing pranks like youngsters instead of being the adults they are now. thankfully the tyre was ok this morning after bine pumped up yesterday so we will see. 

    right back to cooking. 

    x

     

  • morning, 

    well i was right am tired and sore this morning lol, neighbours turned up for a game of canasta last night so it ended up a late night as well. they very kindly said they would help us move the records tomorrow. 

    the sun is already shinning and it looks gorgeous but there is quite a wind. hope for everyones sake it settles because so many people have been needing this nice weather. hoping to get things ready for later then go outside for a short bit. 

    hubby is still asleep lol hoping he recovers for later!! 

    have a good day keep smiling x

     

  • evening 

    hope everyone is ok and enjoying the sun. 

    A day of moving things around and sleeping lol! 

    hubby decided that he could quite happily loose his 'mancave' at the end of the living room - i should say he lives in the living room and sleeps in a recliner so for him to say that i could alter the room around that is a double room one side being our dinning area ws qjite a coop. 

    bonus for him was to move the tv away from the window so he could look out that did it and it actually does look good. it has taken all day since 6 am with couple of hour sleep breaks inbetween lol a few tweakings and it should look good and easier to clean now too. also when i get round to decorating the other end of room will be easier now too. 

    hopeing tomorrow i can just go into garden play with dog and rest. 

    next door unfortunatly broke into the rat hotel and upset a new family who had decided the garden room was nice and comfortable for them, unfortunatly not for the plant so it was dug up reveling them. the room next door was the sauna since it was under some garden slabs and gets quite warm so the hotel is now having to be renovated. We are hoping this might give them the opportunity to move location and get a new location worth a bit more!! after all location location location !!!

    the birds have been out in force tody too it has been lovely seeing them all. the mealworm fat square certainly goes down well and i have moved the bird table nearer the pond away from the house but where i can still see it. there was a wood pecker yesterday on our fence, our other neighbours saw it. they have a lot of feeding stations and i thinnk it feeds there. 

    really hoping people are ok its a bit quiet here so hoping my ramblings are giving people things to smile about. 

    keep smiling x

  • morning all

    hope everyne is getting better and feeling more positive and enjoying the sun, let the suns rays heal and make you all smile. 

    summer is getting here at last and the plants are all coming out and beginning to show colour. flowers are coming out and looking good and there are more to come. garden is looking really pretty. will need to get the hose out later to water the garden the breeze dries out the plants quite quickly. 

    furlough is now extended again so i dont have to worry about work yet until my hospital appointment. 

    relazing day is going to be had by all (except pedro who will no doubt give me aball to chiuck to him all afternoon)!!! 

    tske care 

    keep smiling x

  • Morning

    another lovely day albeit still a little breezy. Tortoise has been put outisde to enjoy the warmth. the dogs have the door open which is lovely so they can come in and out as they like. I might do a little weeding later and more watering. 

    job though is to do a little of the entrance porch area of bungalow to do a little sanding if i have energy. i have not done any for ages. chanigng the living room round took it all out of me i fell asleep again yesterday afternoon with the hubby. 

    all quiet outside the mini mafia have been having a holiday and some of them have decided to visit the seaside because of course a lot of peopple have also been visiting so it seemed there maybe a lot of pickings there and they could sun bath too. they took with them a sun umbrella an empty picnic basket for forage and gatherings. they took a huge blow up ball and cricket set to have games with and of course their swim suits. this means we have had a few days of peace and quiet. the hotel is also slow since the renovations are having to go ahead. 

    have ordered some home covid tests so i can test myself before i go to my appointment end of month. not going to test every week seems pointless when we dont go out. the last appointment letter even says to test using the home tests before appointment now. will be interesting doing it. 

    managed to also get blue baadge sorted for hubby but can taek four weeks to arrive no wonder we have to order it way in advance. 

    starlings are growing up they still squabble on the fat square which is hilarious shoving and bickering to get an appropriate place for a bigger mouthful!! they are definately ready to fly becasue they are as big as the parent!! 

    hope people are getting some healing rays and watching the flowers grow and the birds fledge and relaxing. 

    take care peeps

    keep smiling x