H

Had results today from biopsy on tonsil and now know its cancer, its all been really quick what with scans and hospital visits so not really had time to think about it now it's just starting to sink in but I'm pretty positive, I'm told its spread to a lymph node has anyone else had this 

HiAli

I am sorry to hear your diagnosis, but the first thing I would say is there is always hope. Al my friend here has the same and is currently undergoing all the treatment. He is having a six week course of radiotherapy and chemotherapy over most of the week meaning daily trips. The first thing they have to do is make sure you have no teeth that will get corroded by treatment so need removing first,. They then measure you for the mask this apparently is quite comfortable. They then arrrange the neginnings of the treatment. It will not be easy so you will need a good support system around you - family, macmillans, friends especially when you have down days. Some people loose taste buds during treatment some can find swallowing hard but if you look back on our talks there are mouth exeercises to do. 

Find all the exciting food things you love that are highly flacoured and stock up you will need to keep your weight up and need things that are exciting to make you smile. 

good luck i am here is you want to talk. 

stay strong x

Morning 

All good here no reaction to injections just a bit sleepy but nothing like Al. Glad to be done. 

Alli glad your enjoying your days but dont over do the building up that would be the same as doing none. 

sorry to hear about your stepdad Alli hope he will be ok. 

started clearing the carport a little yesterday and hubby did a bot of sweeping when i was in bed. he told me that one of the mini mafia was present and he could distinctly tell that it was swearing at him! well he will be swearing more today when i do a bit more lol. 

hope your not too tired now Al. 

i was impressed with myself as i had the energy to do some proper cooking and made an indian forgetting it was St Georges day and we like to celelbrate that since it is forgotten alongside everyione elses but we feel it is just as important having a person like george even if he technically was not english he was out patron saint. anyway made a chana dhall - yellow split pea curry like a thick soup, paneer and cheese curry and chicken pillaf. two i made in slow cookers so easy to do. trouble is i always make too much so will have a few days of eating up lol. the other good thing is i can microwave if cant be bothered to cook properly later. 

pedro has been a bit energetic this morning so he is blotto next to me with rum tum and rasputin. 

enjoy your days 

keep smiling x

Hi

All that food sounds scrumptious Elona wish I could cook I'm hopeless at least what I make is edible just about lol, glad you and your hubby were ok after the jab and no side effects. Went for another walk today a little bit further this time I'm thoroughly enjoying it and the weather's to nice to sit in, saw the weirdest bird in a field next to a house were I walk I think it was there's,

it looked like a massive peacock but grey without the lovely peacock feathers I'm not sure it was to pleased to see me so I made a sharp exit lol. Will definitely miss the antics of the mini mafia when they are evicted i like the idea of the wedding fisticuffs lol, hope your ok Al and are taking it easy

Alli x

Hi Alli bet you can cook really! 

glad you have had a good walk apparently walking is also a good destressor so all in all a good thing and nice to enjoy the weather. it is beautiful today. 

well i have been cleaning up after the mini mafia in the carport wow the party was a large one and by some little drops of blood there were definately the family fisticuffs!! the carport is now ready for the hedgehogs again all disinfected and looking good. took all day doing it slowly but really pleased will shock the mini mafia later lol when they try and explore. 

have my appointment finally not until 30 th June though with the thoracic consultant really pleased about that. \\

think your bird could be a peahen the female peacock she is ot coloured like the male, but still reasonable size. we have a house donw the road with peacokcs they are magnificent birds. 

my pigeon is as big as i get here lol with the ravens who nest in trees not far away. pigeon is getting fatter on my bird seed but i dont mind see if he can scare the cats again later lol. 

have great evening 

x

morning after cleaning carport feel realy tired today so late waking. 

looks like it should be another good day even though the wind is blowing so it is probably chilly outside. 

one of the mini mafia was desperately trying to emerge last night could hear all the scrapping at the hole (i had filled with polyfilla). hubby says there were graffetti protestations and a lot of swearing to be heard! me thinks the battle has begun!!! am going to have to investigate the area later tis morning. hubby says there may well be a rally later as he maybe gathering recruits lol. 

so pleased i have my appointmnet now just got to hope they can discover the cause. 

Al how are your wifes plants coming along and your veggies/herbs?

hope everyone has a good relaxing day.

keep smiling x

morning 

a bit duller this morning and boy isnt it chilly again would be lovely to have decent weather to sit outside but i suppose it is only April still. 

no mini mafia last night that hubby could detect hope they are not planning the next manoevre! 

cats have finally discovered the bird table through the window lol and you realise sometimes how stupid they can be trying to pounce through a glass sheet - really does not work!! there were a few roll over backwards , straighten themselves up then look cat determined and try again !! 

Al hope your ok 

Alli hope your ok too

Sam hope your ok

tired today so may not do much. watched the suicide squad yestrday with will smith in a gritty super hero film - my sort of action movie and enjoyed it. 

have a good day and keep smiling x

Morning

Glad to hear you finally have an appt Elona but sorry its so far off at least now they will be able to find the cause and treat it, we do seem to spend a lot of time wAiting for appt lol, tomorrow is dental assessment day and was told I should get dates for treatments so scared and happy about that. Didn't go for walk yesterday but was busy went shopping and then back to Gary's for dinner in his garden as the weather was lovely was so pooped when I got home I forgot to post, you were right about the peahen Elona I looked it up online and also found a white peacock I was mesmerized it was so beautiful. I think the mini maffia are determined to stay by the sound of things I think you have a battle ahead had visions off rats in army uniforms planning battle tactics, I read a few posts back Al that you had illustrated a book for your late brother in law maybe you could get together with Elonas hubby and do that book the adventures of the mini maffia lol. Off to New Brighton today hope weather brightens up Gary's off work and my daughter finishes at lunchtime and have even persuaded my son to come to, Im hoping it will be quiet as its Monday just thought it would be nice to have a day at the seaside I intend to have chips and ice cream lol

Hope you have a lovely day to take care

Alli x

Hi Elona

I am ok all things concidered thank you :happy:  Sadly energy levels and chronic fatigue don't allow me to post daily.  I asked the MDT about it yesterday as energy level getting me down a bit, they said it can take 6 to 8 weeks post treatment for levels to return to any kind of normal.  Post treatment is taken from the third week after the last radiotherapy, so although it feels like ages since radio this is technically week one... Humph!

I may also have contracted mucositis.  I say 'may' as although quite common during treatment it is rare to contract it so far after.  I am seeing ENT tomorrow (Wednesday) so they can have a proper look to be on the safe side.  Apparently it is also rare for ENT to look at the throat this soon after treatment so you can't help but worry a bit.

How did you and hubby fair with your second jabs?  Better than me I hope.

A Truffle Kent Cob Tree sounds interesting, I have no idea what they are or how they look.  I would have one just for the fab name! :happy:  If truffles are to grow under it you will need to be on le look out for a rescue pig to snuffle them out.  I believe that with certain trees that truffles favour it takes around 4 years for the first truffles.

Just read your post containing your non reactions to the second jab, so happy for you both :happy:

Your Indian on St Georges Day sounded lovely, can't wait for my first indian.  To be fair to you there is nothing more English than an Indian, it's as English as roast on a Sunday :happy:

So glad to learn that you have finally got your appointment with the Thoracic consultant.  30th June may seem a way off at the moment, but it will soon go by.  Remember the 'Take each day at a time'.  Sometimes more easily said than done, I know.

Plants, herbs, and vaggies.... vaggie? What's a vaggie lol?   Veggies are all doing well, even the sprouts that were transplanted outside last week.  Just love watching things grow, very exciting.  We must be turning into proper gardeners as we are hoping for a bit of rain this week :laugh:

Love the film Suicide Squad!  Took my eldest to the flicks to watch it.  Think it was the last film that I managed to stay awake through, I had a habbit of falling asleep in the cinema.

I hope that your energy levels have returned today, even if just a bit.

Enjoy your day. Stay Strong.

Al x

Hi Allie :happy:

You ask as many questions as you like, I will try and be as helpful as I can.

The feeding tube that I have is an NG Tube, goes up the nose and down the throat.  Sounds worse than it is.  The ones that they connect straight to the belly I believe that they avoid those if they can.  More trauma to the body.

The full body PET Scan does help to ease your mind.  I didn't even mind if they found something, just knowing was enough for me.  

It's good that you are out walking, even better that you are enjoying it :happy:  It all helps, just be careful not to over do it.  Last thing you need going into treatment is to be fatigued.

I will be thinking of you today, dental appointment.  Fingers crossed you need no extractions.  The dentists that I saw at hospital were a breed apart from my regular dentist.  They will do everything they can to save your teeth.  My regular dentist is no longer allowed to remove any teeth.  If they feel that I need one removed I have to go back to the hospital and they will do their best to save it.

Just reading through your posts, I would love to illustrate a mini mafia book :happy:

All the best today.

Be Strong

Al x

Hi 

AL please take things very easily then if you have chronic fatigue and possible mucositis. (hope ENT goes ok tomorrow) seems like you are breaking all rules about being different. hoping this is nothing serious and nothing to worry about. i thnk though people will get a brilliant idea of what you and sam and Alli will be going through by reading this thread. 

am feeling bit better today much like you guys i have good and bad days with fatigue but not so bad as you. trouble is i cannot get to sleep during day very much hence watch a film. 

hahaha we will all be gardeners here!!! should build ourselves another group the cancer chat gardeners lol. well i have always found it therapeutic - yes sorry about spelling, head goes ahead of fingers so sometimes comes out wrong!! my yakon roots are arriving in about a week so that will be exciting to see what they look like. glad to report some of my little plugs are growing yay!! 

going to take hubby into town this morning - my first trip out since christmas - apart from hospital and doctors etc. not sure about wanting to go still even though we have masks and are vaccinated because not sure i should but need to get to bank and he is hankering going round poundland!! he has a sweet tooth lol. i think though he is just looking forward to getting out. At least it is sunny. 

hubby came through this morning to inform me that there was a mini mafia funeral last night (he was truying to make me feel sorry for the mini mafia lol) - the one who had been scrapping a lot to try and get back into carport. he said they made a real racket, had beer cans piled high on top of the coffin, one leg was hanging out, there was a lot of singing and wailing as they walked past. the men were as *** as neuts. (they were faking everything!!!). the protests have begun. as far as iam concerned the carport looks really good now and ready for the hedgehogs. 

am being pestered by rumple teazer now boy he has claws, since he has lost his shyness he has got quite affectionnate but also i need to clip those claws since he pats me with them and they hurt!! - especially at 2am!!! 

well enjoy your day 

keep smiling x

forgot Alli good luck witht he dentist appt

forgot Alli good luck witht he dentist appt