Taken me a little while to want to put something up. Admittedly the last couple of weeks have been extremely difficult. 

My first Chemo and few weeks of radio went OK. My First Chemo I had a few days of Nausea and felt OK. I continued to drive myself to my Radio appointments daily until last Wednesday and my 2nd/Last Chemo.

Strange really as until 2nd/3rdweek I was eating normally still.

2nd round had me vomiting continuously for a few days, the day before I'd had my nasal feed tube fitted which I then proceeded to vomit out several times! They tried to use a bridle to secure it just wouldn't fit.

The Thursday continued to be bad, was taking my Anti sickness and even had the DN come out to give it via injection but we just couldn't get on top of it so ended up as an admission to the Emergency Assessment Unit.

I was given a plethora of Anti Sickness over the next few days and eventually my NG Tube was refitted. Began feeding again at a decent rate last day or so, struggled with it over night so, only feeding during the day.

I'm taking my meds orally now. Been given a combination of Anti sickness and Anti secretion medication as mucus has turned into a big problem with the wrenching. I'm having the odd glass of milk as a drink as well as a means to take meds. Things like nebulisers are helping me too.

I have another 7 Radiotherapy treatments left... I am however still in hospital. There was a bit of concern over nutrition but hoping feeding during the day Will sort that.

Mouth feeling a bit worse for wear. Lots of thick icky saliva and dry mouth.

My mental health has been very much up and down, spending too much time in the down position unfortunately. Trying my best to see ways around that. I'm fortunate to have amazing staff here.

My other half has been visiting almost daily for an hour which does help.

I did lose a fair whack of weight (was about 150kg when I started, always been a big lad) I'm now around the 135kg Mark, was rescanned a couple of days ago and given a new mask.

I have had some optimism, I can no longer feel it in the back of my throat, the actual anatomy of my mouth and throat feel normal. There was some indication in the first couple of weeks from the radiologists that with adjustments they were making that they believed it was indeed getting smaller.

Very much missing home, my girl, my step kids and my cats ready to be back there.

Decided to take some positive and booked me and my good lady a Trip to NYC in February, first class tickets and 4* suite for 4 nights. I'm going for the 4th time (I have so much FDNY merch it's ridiculous!) And the second time for my other half since we went 4 years ago when I proposed to her. Told her were going but she doesn't know were travelling in style this time

Hi Sam

So sorry your having such a rough time of it hope your ok from here on just keep thinking of that fabulous trip away, its my turn soon going to start treatment in a couple of weeks after dental stuff sorted I'm having 30 rounds of radiation and 2 sessions of chemo mine is called carbaplatin, what is it your on

Take care

Alli x

Hi

All that food sounds scrumptious Elona wish I could cook I'm hopeless at least what I make is edible just about lol, glad you and your hubby were ok after the jab and no side effects. Went for another walk today a little bit further this time I'm thoroughly enjoying it and the weather's to nice to sit in, saw the weirdest bird in a field next to a house were I walk I think it was there's,

it looked like a massive peacock but grey without the lovely peacock feathers I'm not sure it was to pleased to see me so I made a sharp exit lol. Will definitely miss the antics of the mini mafia when they are evicted i like the idea of the wedding fisticuffs lol, hope your ok Al and are taking it easy

Alli x

Hi Sam

Lovely to hear from you but sorry you are having a hard time of everything. Its good to see there is that optimism and hope for booking that wonderful holiday definately something to look forward too wow! and what a place to propose in coo you have a lucky girl there. 

glad you are nearly at the end of your course of treatment thats positive and that your mouth is feeling normal thats brilliant news. you must be pleased with that. Hopefully the nutrition and weight will sort itself out so you can get back home to the family. Bet the cats will love purring up to you. 

Try and get as much rest as possible - not so easy in hospital - but try so you can recover well. Keep positive and think of something like your holiday to look forward to, it is to be expected you would feel down so dont worry we are all here for you - even if it is to read the news and not to reply. 

smile at your foe and it will smile back. 

never give up hope. 

take care x

Hi Alli bet you can cook really! 

glad you have had a good walk apparently walking is also a good destressor so all in all a good thing and nice to enjoy the weather. it is beautiful today. 

well i have been cleaning up after the mini mafia in the carport wow the party was a large one and by some little drops of blood there were definately the family fisticuffs!! the carport is now ready for the hedgehogs again all disinfected and looking good. took all day doing it slowly but really pleased will shock the mini mafia later lol when they try and explore. 

have my appointment finally not until 30 th June though with the thoracic consultant really pleased about that. \\

think your bird could be a peahen the female peacock she is ot coloured like the male, but still reasonable size. we have a house donw the road with peacokcs they are magnificent birds. 

my pigeon is as big as i get here lol with the ravens who nest in trees not far away. pigeon is getting fatter on my bird seed but i dont mind see if he can scare the cats again later lol. 

have great evening 

x

morning after cleaning carport feel realy tired today so late waking. 

looks like it should be another good day even though the wind is blowing so it is probably chilly outside. 

one of the mini mafia was desperately trying to emerge last night could hear all the scrapping at the hole (i had filled with polyfilla). hubby says there were graffetti protestations and a lot of swearing to be heard! me thinks the battle has begun!!! am going to have to investigate the area later tis morning. hubby says there may well be a rally later as he maybe gathering recruits lol. 

so pleased i have my appointmnet now just got to hope they can discover the cause. 

Al how are your wifes plants coming along and your veggies/herbs?

hope everyone has a good relaxing day.

keep smiling x

morning 

a bit duller this morning and boy isnt it chilly again would be lovely to have decent weather to sit outside but i suppose it is only April still. 

no mini mafia last night that hubby could detect hope they are not planning the next manoevre! 

cats have finally discovered the bird table through the window lol and you realise sometimes how stupid they can be trying to pounce through a glass sheet - really does not work!! there were a few roll over backwards , straighten themselves up then look cat determined and try again !! 

Al hope your ok 

Alli hope your ok too

Sam hope your ok

tired today so may not do much. watched the suicide squad yestrday with will smith in a gritty super hero film - my sort of action movie and enjoyed it. 

have a good day and keep smiling x

Hi Clarke's

Just noticed your post hope your ok yes its definitely a whirlwind of appointments, you havnt put what your problem is but try not to worry which is hard to say I know I have tonsil cancer that's spread to lymph node and will be starting chemo radiation soon, good luck and hope all is well with you 

Take care Alli x

Hi Elona

I am ok all things concidered thank you :happy:  Sadly energy levels and chronic fatigue don't allow me to post daily.  I asked the MDT about it yesterday as energy level getting me down a bit, they said it can take 6 to 8 weeks post treatment for levels to return to any kind of normal.  Post treatment is taken from the third week after the last radiotherapy, so although it feels like ages since radio this is technically week one... Humph!

I may also have contracted mucositis.  I say 'may' as although quite common during treatment it is rare to contract it so far after.  I am seeing ENT tomorrow (Wednesday) so they can have a proper look to be on the safe side.  Apparently it is also rare for ENT to look at the throat this soon after treatment so you can't help but worry a bit.

How did you and hubby fair with your second jabs?  Better than me I hope.

A Truffle Kent Cob Tree sounds interesting, I have no idea what they are or how they look.  I would have one just for the fab name! :happy:  If truffles are to grow under it you will need to be on le look out for a rescue pig to snuffle them out.  I believe that with certain trees that truffles favour it takes around 4 years for the first truffles.

Just read your post containing your non reactions to the second jab, so happy for you both :happy:

Your Indian on St Georges Day sounded lovely, can't wait for my first indian.  To be fair to you there is nothing more English than an Indian, it's as English as roast on a Sunday :happy:

So glad to learn that you have finally got your appointment with the Thoracic consultant.  30th June may seem a way off at the moment, but it will soon go by.  Remember the 'Take each day at a time'.  Sometimes more easily said than done, I know.

Plants, herbs, and vaggies.... vaggie? What's a vaggie lol?   Veggies are all doing well, even the sprouts that were transplanted outside last week.  Just love watching things grow, very exciting.  We must be turning into proper gardeners as we are hoping for a bit of rain this week :laugh:

Love the film Suicide Squad!  Took my eldest to the flicks to watch it.  Think it was the last film that I managed to stay awake through, I had a habbit of falling asleep in the cinema.

I hope that your energy levels have returned today, even if just a bit.

Enjoy your day. Stay Strong.

Al x