Tonsil Cancer - Whirlwind Week

Hi All 

Firstly Hats Off to the NHS in Wales, they have been super amazing since my diagnosis on New Years Eve. Thank you all 

The title of the post is Whirlwind Week and this is why:

New Years Eve I have a phone call from ENT confirming tonsil cancer.  Very apologetic confirmed over the phone.  Wants me in for a biopsy.   Later the same day I get calls from ward team and covid test centre booking appointments.

Monday 4th January i have a covid test at 9.30am. Results back same day, negative for Covid19.  On route to test centre call from pre assessment team asking me to go in straight after my covid test for my biopsy pre assessment.   Forgot to mention biopsy booked for 7th January. 

Tuesday 5th January have an ultrasound at 9.30am and an MRI ar 11.00am.  The ultrasound was an external ultrasound of my neck. They decided to take two needle biopsies of lymph nodes which took some doing as the nodes were so solid they couldn't get needle in... Thank goodness for local anesthetic :)

From ultrasound they decided to send me for a 3d scan of my jaw.  This was done primarily in case I need any teeth removed pre radiotherapy treatment.  Apparently radiotherapy can cause your back teeth to crumble.  Don't panic not everyone has this done.  i believe it totally depends on size, position of tumour and the amount of radiotherapy you need.

After the jaw scan I went straight for my MRI.  Think I  had two 10 minute sessions,  the second 10 with dye injected into my blood.  I had also had this done for a CT scan on 18th December.

Wednesday 6th January day off.  Which I used to eat as many nice things as possible :)

Thursday 7th January 07.30am its minus 4 degrees c and I'm back at the hospital with my overnight bag ready for another biopsy, I was told to expect to be in hospital overnight.  Due to covid we have to wait at the entrance.  Just 3 of us, asked lots of covid related questions and temperature checked before being escorted to the clean ward.

The ENT surgeon comes to see me to explain the procedure.  Remember everyone is different.   So for me they are going to remove the good tonsil and send it for tests.  What? Not the bad tonsil?  The reason for this is because when you have cancer in one tonsil it is pretty much a done deal that you will get itin the other.   Also by leaving the cancerous tonsil in it allows for more treatment options.  If they cut it out there will only be one treatment path.

During the tonsillectomy they also took biopsies of my bad tonsil and my tongue.   After the op ENT told me that it would take about 7 days for the results so they expect to be calling my Wife and I in a week on Wednesday. 

I was allowed to go home as long as I had eaten something, drunk something and had a pee.  I was home by 7pm the same day.

Sunday 10th January its 6am and I am sat in bed writing this post.  Next to me is a glass of water which I sip all night, my 6am pills and a lip balm.  My bottom lip took a battering during surgery and is very swollen and sore.   The cancerous side of my throat and shoulder is still painful and the right side is even more painful from the tonsillectomy.  Even my lymph nodes seem to be complaining  :)

But you know what, I don't feel sorry for myself,  I don't feel sad.  I'm going to lose weight, but hey I'm 5ft 6inch and 13 and a half stone (male) i could do with shedding a few pounds ;) 

I know this is just the start of a long hard journey,  but I'm ready... bring it on I say!

Parents
  • H

    Had results today from biopsy on tonsil and now know its cancer, its all been really quick what with scans and hospital visits so not really had time to think about it now it's just starting to sink in but I'm pretty positive, I'm told its spread to a lymph node has anyone else had this 

  • HiAli

    I am sorry to hear your diagnosis, but the first thing I would say is there is always hope. Al my friend here has the same and is currently undergoing all the treatment. He is having a six week course of radiotherapy and chemotherapy over most of the week meaning daily trips. The first thing they have to do is make sure you have no teeth that will get corroded by treatment so need removing first,. They then measure you for the mask this apparently is quite comfortable. They then arrrange the neginnings of the treatment. It will not be easy so you will need a good support system around you - family, macmillans, friends especially when you have down days. Some people loose taste buds during treatment some can find swallowing hard but if you look back on our talks there are mouth exeercises to do. 

    Find all the exciting food things you love that are highly flacoured and stock up you will need to keep your weight up and need things that are exciting to make you smile. 

    good luck i am here is you want to talk. 

    stay strong x

  • Morning

    Another sunny day a bit of cloud but hopefully will clear later as I plan to get out and have a read after I've done my jobs, thanks  All for giving me an idea of what to expect I do believe that knowing means less of a shock later and I will take anything they give me if it gets rid of this, funny you should mention frazzles I've just had a bag bought them to put in sons pack lunch but have been munching my way through them, so much for healthy diet lol, still haven't heard anything from mdt about appt I'm wondering if Macmillan nurse got it wrong hopefully will hear by Monday, the new hairstyle sounds lovely Elona don't know whether to cut mine as its really long now and not sure if it will fall out during treatment, try not to overdo it the garden lugging stones around spend some time relaxing 

    Hope you have a fab day

    Alli x

  • I think we did :laugh:

    my energy comes from years of boom and bust training lol.  No matter how energised I feel I plod along, resting in between.   I do get fatigued by around 4pm ish.  I doze on and off in the evening and then sleep on and off through the night.  I probably get at least 10 hours sleep in every 24.  I also make sure that I have rest days no matter how I feel.   

    I am now sat out the front on the day bed with the dogs watching the world go by.  Lots of cyclists,  posh cars and motorbikes passing by.  All headed up the mountain roads and onto the Brecon Beacons.  The wife is painting the bathroom. 

    We will be watching the funeral in a bit.  I liked Prince Philip,  one of my favourite royals.

    Al x

  • We reached 200 posts on this thread yesterday!

  • congratulations on the 200 posts.  

    the funeral was lovely to watch and really personal for Prince Phillip. Feel for the Queen she will miss him. 

    I also painted yesterday lol i painted a wall in the living room in the dinningroom area. it is gettting there. Might do the bit of skirting underneath day. 

    sun is shinning and did get outside yesterday moved 2 stones but they are heavy and i should not really move them due to my back but am like a bull in a cina shop plough on regardless !! you need that determination to get through anything you have to in life. it was quite cold outside and looks like the same today. 

    Hair done - yay respectable again !! not that iam the sort of person who really cares what people think about my looks but feels good and long side hides my lump nicely. Not sure what made me go radical perhaps I need a new episode in my chapter now. Things to mell over. 

    Glad Al you liked the day bed i love watching the world go by so i bet that was fun and relaxing. 

    Alli dont worry about the appointment - try to chill it will come when it does. as Al says enjyoy the time you have at this moment find something lovely to do today with your son, or on your own and enjoy every minute. 

    finishing cuppa with pedro lying next to me. have a good day. 

    keep smiling x

  • Morning

    A lovely sunny day hope it is sunny by you Al and you have a fab day with your friends today on your lovely day bed, I couldn't watch the funeral just looked at bits it was to sad but he had a long and wonderful life, just feel so sorry for the queen, off out for a drive today I'm a bit nervous going anywhere were its to busy but maybe we will find somewhere quiet will just be nice to be out, finally managed yesterday to rake up last of leaves and went for a walk to I'm paying for it now I ache in places I forgot I could ache lol, hope your new hairstyle turned out nice Elona I'm sure it looks lovely and good luck with the doctor tomorrow hopefully they can give you an idea of treatment and when it will start the waiting to know is no fun

    Have a great day

    Allison x

     

  • HI

    had a good day yesterday watched coming 2 America and laughed no end it was a really good and funny film. If you liked the first one then you will like this one only it is on Amazon unfortunately so you have to have that. A good distraction. 

    hope Alli you enjoyed your drive it is good to get out hubby and I are planing to go into town Wednesday. 

    Hope Al you had a good enjoyable day with your friends yesterday.

    Dismantled the old hen coup yesterday boy it opens up the garden no end with space !!!! hard work so no heavy moving around today. as it is quite glum outside will concentrate on doing a job indoors. still sticking to a job a day keeps me going or i probably wouldnt bother!! Have also started writing the chapter on hedgehog diets quite interesting finding out that the first person to discover what hedgehogs ate was part of the Bronz zoo. 

    Hubby is entertaining Pedro outside who is being a true adolescent dog these last couple of days!! a true pain in preverbial lol constantly wanting attention and barking at everything. even the dog bone i got him yesterday didnt work lol. So iam left drinking my cuppa with Rasputin curled up next to me. He is an adult cat i rescued before i moved. he had been coming round to eat and was getting a bit used to me then one day i noticed a lump on his face and swelling poor man he wouldnt let me see then and it wasnt until a week before we moved that i grabbed him got him in to be castrated and notied that the injury had been from hitting a car and breaking his jaw so now he dribbles all the time has hi tongue out and a lumo on chin. We called him Rasputin after the Russian and because as an adult he had probably sown a few oats in his time lol. 

    sun is trying to emerge so enjoy, have a good day everone. 

    keep smiling x

  • Morning

    Rasputin sounds adorable Elona, Gary has a cat hes called Softlad he was a stray I had been feeding at mine and we couldn't find his owners so Gary adopted him, he's very friendly and very vocal I didnt know cats could meow so much lol he's quite a character, a bit more action on the bird table a couple of jackdaws were monopolizing it yesterday as the wood pigeon looked on with disgust from the roof of the shed but they didn't stay long and normal activity resumed and the wrens came back but no sign of my robin. Hope you had a lovely day with your friends Al and the weather stayed nice yesterday for you, the weather was nice here so after we had a drive up to witchurch and through all the lovely villages we went to Garys he lit the fire pit and made a scrummy dinner and we sat in the garden for rest of day which I thoroughly enjoyed, off to see my mum and dad today he's not been very well hes 81 and was in hospital before Xmas and is very frail, going with Gary and my daughter Emma so another nice day planned, Elona I will look out for that film is it the one with Eddie Murphy in ? I've been stocking up on dvds and will put a tv in my room with DVD player for days I feel rough during treatment

    Hope you have a lovely day 

    Allison x

  • morning, 

    apologise if writing gets a bit dyslexic looking but have woken up feeling really dizzy got up at 4am with the world spinning so much quite scary and is still abit yuck. Bed day me thinks lol. Ecuse not to do anything anyway. 

    Love Softlad what a wonderful name and how original. Cats are my first love i ahve always had them i currently have six and they have theor own individual characters. Rum Tum Tugger has just jumped of my lap he is one of my bengal cats and named after tS elliott cherico cats. full of mischief and amazing. the three of them were picked up from kids that werere throwing them at brick walls so Rolo Lee Haggis and Rumpleteazer had to loose both of their eyes and Rolo has lost some of his orbital bione but boy he does not behave like a blind boy he jumpos at you and is really brave. the problem is he does not sit on your lap but trys to sit on youjr face!!!!

    your bird table Alli sounds fantastic mine has been quiet recentlhy or perhaps have not been looking at right time. 

    AL hope your ok and not been over doing things?

    phone call with doctors a disaster yesterday so came of feeling sad. Apparentoy the biopsies shoould have been stained to identify the cause so i should not have had to wait for cause. the referral should have happened so doctor is going to try and chase up for me. Hace to speak to work this afterniin as doctor said cannot go back until i have had the referral. more hassle. 

    anyway sounds like Alli you are goung to have a goo dday - brilliant hope you will have a good day to Al. 

    cuddle a cat day!!

    keep smiling 

    - oh uyes Eddie Murphy.

    x 

  • Hi Elona and Alli :)

    Had a great day with our friends, seeing them again on the 22nd May.  We always meet up for Eurovision - please don't judge me :laugh:  When we lived in the same place we would go to each others houses each year, sadly couldn't do it in 2020 so will make up this year.  Don't think I will be able to drive to theirs, so they are going to be coming back to us.   I was so tired yesterday, slept through most of it.  Found out today that my iron levels are low, so that's not helping with the fatigue.

    We loved Coming to America, so will definitley give number 2 ago.  Another film worth watching (Netflix this one) is Love and Monsters, it's very silly but very well made.

    Elona you tell me to take it easy, but reading your posts I think one needs to take a leaf out of ones own book lol.  So sorry to learn that doc didn't go well, more waiting :(  The NHS are either brilliant or rubbish, there seems to be no inbetween.  I hope that you manage to sort out your dizzy spell, finger crossed it was a one off.

    Alli it's a good idea to get a stock of films etc.  You'll be glad of them over the coming weeks, though if you end up being anything like me you'll end up sleeping through half of them :)  A few posts back you mentioned not feeling ill, that's the thing with this pre treatment, you feel great some days, like there is nothing wrong, almost to the point of feeling guilty.  Enjoy it is my advice to you.  I also forgot yo mention that after you have your mask fitting you go for a pre radio appointment where they set up the machine, when I had mine they also gave me a tiny tattoo on my chest.  They use this to help correctly line up the machine each time.

    One of my favourite cats that we had was a stray that adopted us, Stumpy was his name.  We called him stumpy as he had a silly stumpy tail.  He was the most lovable cat with a huge permanent smile.  Sadly he passed with an unknown illness.  They tested him for everything, but to no avail.  We now have two cats Twonky and Bubble, two dogs Eggie and Spoonie and 5 birds Popty & Ping (Lovebirds), Cheesecake (Cockatiel), Monet and Da Vinci (Budgies).   The wife says no more pets lol.

    Another beautiful day here in the valleys, apparently we are in for a week of it :)  I hope that the sun is shinning with you both too.

    Stay Strong.

    Al x

     

     

     

  • Hi

    That's not good Elona hope your feeling better, what will happen now about your treatment hope they sort things out soon it's making you really poorly, I can't believe how cruel people can be to hurt animals like that unfortunately in your job you probably see a lot of it. Finally got phone appt with oncologist its tomorrow 10.30 so will know what's ahead with a bit of luck, had a lovely day at mums and the weather was glorious so we sat outside for hours my eldest daughter came as well who I hadn't seen for months,and have just spent a lovely couple of  hours chatting to my friend in the garden so think I have well and truly topped up my vitamin d. Hope your ok Al and you had a lovely day Sunday 

    Have a lovely day

    Alli x

Reply
  • Hi

    That's not good Elona hope your feeling better, what will happen now about your treatment hope they sort things out soon it's making you really poorly, I can't believe how cruel people can be to hurt animals like that unfortunately in your job you probably see a lot of it. Finally got phone appt with oncologist its tomorrow 10.30 so will know what's ahead with a bit of luck, had a lovely day at mums and the weather was glorious so we sat outside for hours my eldest daughter came as well who I hadn't seen for months,and have just spent a lovely couple of  hours chatting to my friend in the garden so think I have well and truly topped up my vitamin d. Hope your ok Al and you had a lovely day Sunday 

    Have a lovely day

    Alli x

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