Tonsil Cancer - Whirlwind Week

Hi All 

Firstly Hats Off to the NHS in Wales, they have been super amazing since my diagnosis on New Years Eve. Thank you all 

The title of the post is Whirlwind Week and this is why:

New Years Eve I have a phone call from ENT confirming tonsil cancer.  Very apologetic confirmed over the phone.  Wants me in for a biopsy.   Later the same day I get calls from ward team and covid test centre booking appointments.

Monday 4th January i have a covid test at 9.30am. Results back same day, negative for Covid19.  On route to test centre call from pre assessment team asking me to go in straight after my covid test for my biopsy pre assessment.   Forgot to mention biopsy booked for 7th January. 

Tuesday 5th January have an ultrasound at 9.30am and an MRI ar 11.00am.  The ultrasound was an external ultrasound of my neck. They decided to take two needle biopsies of lymph nodes which took some doing as the nodes were so solid they couldn't get needle in... Thank goodness for local anesthetic :)

From ultrasound they decided to send me for a 3d scan of my jaw.  This was done primarily in case I need any teeth removed pre radiotherapy treatment.  Apparently radiotherapy can cause your back teeth to crumble.  Don't panic not everyone has this done.  i believe it totally depends on size, position of tumour and the amount of radiotherapy you need.

After the jaw scan I went straight for my MRI.  Think I  had two 10 minute sessions,  the second 10 with dye injected into my blood.  I had also had this done for a CT scan on 18th December.

Wednesday 6th January day off.  Which I used to eat as many nice things as possible :)

Thursday 7th January 07.30am its minus 4 degrees c and I'm back at the hospital with my overnight bag ready for another biopsy, I was told to expect to be in hospital overnight.  Due to covid we have to wait at the entrance.  Just 3 of us, asked lots of covid related questions and temperature checked before being escorted to the clean ward.

The ENT surgeon comes to see me to explain the procedure.  Remember everyone is different.   So for me they are going to remove the good tonsil and send it for tests.  What? Not the bad tonsil?  The reason for this is because when you have cancer in one tonsil it is pretty much a done deal that you will get itin the other.   Also by leaving the cancerous tonsil in it allows for more treatment options.  If they cut it out there will only be one treatment path.

During the tonsillectomy they also took biopsies of my bad tonsil and my tongue.   After the op ENT told me that it would take about 7 days for the results so they expect to be calling my Wife and I in a week on Wednesday. 

I was allowed to go home as long as I had eaten something, drunk something and had a pee.  I was home by 7pm the same day.

Sunday 10th January its 6am and I am sat in bed writing this post.  Next to me is a glass of water which I sip all night, my 6am pills and a lip balm.  My bottom lip took a battering during surgery and is very swollen and sore.   The cancerous side of my throat and shoulder is still painful and the right side is even more painful from the tonsillectomy.  Even my lymph nodes seem to be complaining  :)

But you know what, I don't feel sorry for myself,  I don't feel sad.  I'm going to lose weight, but hey I'm 5ft 6inch and 13 and a half stone (male) i could do with shedding a few pounds ;) 

I know this is just the start of a long hard journey,  but I'm ready... bring it on I say!

Parents
  • H

    Had results today from biopsy on tonsil and now know its cancer, its all been really quick what with scans and hospital visits so not really had time to think about it now it's just starting to sink in but I'm pretty positive, I'm told its spread to a lymph node has anyone else had this 

  • HiAli

    I am sorry to hear your diagnosis, but the first thing I would say is there is always hope. Al my friend here has the same and is currently undergoing all the treatment. He is having a six week course of radiotherapy and chemotherapy over most of the week meaning daily trips. The first thing they have to do is make sure you have no teeth that will get corroded by treatment so need removing first,. They then measure you for the mask this apparently is quite comfortable. They then arrrange the neginnings of the treatment. It will not be easy so you will need a good support system around you - family, macmillans, friends especially when you have down days. Some people loose taste buds during treatment some can find swallowing hard but if you look back on our talks there are mouth exeercises to do. 

    Find all the exciting food things you love that are highly flacoured and stock up you will need to keep your weight up and need things that are exciting to make you smile. 

    good luck i am here is you want to talk. 

    stay strong x

  • Good Morning Elona :)

    Hope all is well with you this morning.  I am feeling better each day, my blood counts must be on the up yay!

    With two cats we dare not have a bird table, which is sad as I grew up watching a myriad of our feathered friends from Pigeons to Woodpeckers...  Plus the odd cheeky squirrel.

    Elona have you ever grown sprouts?  I planted some seeds in flat seed trays just a couple of days ago and placed them on a south facing window sill.  Starting them indoors.  They have gone absolutely crazy!  They have pushed all the soil up like a muffin in the oven, loads of shoots have come up already.  Should I transplant them to pots?  Bare in mind they were only planted a few days ago.  We do not have any type of greenhouse and the weather is too up and down to transplant outside.  Even my herbs are still indoors.

    We have some friends coming from England to visit on Sunday, so yesterday we were busyspring clearing the garden, new solar lights up...  so many lights.  My amazing wife has a big delivery of plants coming this week.  She bought me a very colourful metal solar Peacock yesterday.  It shines feather patterns on the walls at night.  We needed a new bench for the front garden, but could not afford one.  Wife has a light bulb moment, you know how we like to repurpose.  We had an old day bed in the shed so a lick of paint and a waterproof matress cover Boom a new bench!  looks so nice I will have to chain it to the house.  We got lucky on FB Market Place too, we found a matching metal and glass table for a tenner.  Just getting outside and doing things is making me feel so much better and I am sure is speeding up my recovery.  Just have to be careful not to burn out.

    Who are mini mafia?  I have missed something whilst I was away lol.

    Sun is shinning here today in the valleys both outside and in my heart.  Can't wait to get out into the garden.  Hope that the sun is shinning with you too :)

    I hope that today is better than yesterday, but not as good as tomorrow.

    Al x

  • Morning Al

    Glad you are feeling good today that's got to be a good sign  but don't overdo it, I know what you mean it seems like its dragging on but I'm using the time to be constructive in preparation for treatment ahead like showing my son how to use washing machine he is 23 so it's about time lol,  I had very restless sleep in anticipation of outcome of mdt meeting but worrying won't help as long as they say I can have treatment like you said let battle commence, I'm being inspired to do some vegetable growing by you and Elona not very good at gardening but thought might grow some tomatoes on windowledge so hopefully can get some good tips from you both

    Have a happy day

    Alli x

  • Morning Elona

    How are you today hope you are ok, have had a bit more interest in the bird table had a couple of wrens and I think a blue *** the only trouble is its that far down the garden now I think I'm going to have to get binoculars lol, all ok her a I'm just waiting for call from Macmillan nurse to tell me mdt meeting outcome so had a bit of a restless night, the sun has come out again so will try and persuade son to do a bit of mowing while I tidy and weed, hope you have a nice day planned

    Alli x

  • Hi Al and Alli 

    morning to a sunny day looks cold and brr it was last night freezing! but it looks lovely today may try and get outside for a short while. 

    love hearing about all the veggies being grown i love growing things from seed it gives such pleasure seeing the tiny heads peeping through the soil and emerging into the daylight. then eac day seeing the small seedlings grow bigger anbd bigger, stronger and stronger. 

    AL i would ot transplant until the seeds have grown to about 1.5 times the depth of tray or you can see the roots well. otherwise it gets a little difficult. if they are growing too tall and 'leggy' you mayneed to give them a little real air by putting them outside in the sun during the day for a few hours to harden them of and encourage some root growth until they are older and redy to produce. 

    some herbs are hardy like rosemary and some thymes so even in wales should be ok outside. 

    Alli i decided not to grow tomatoes this year as i get over run with them and currently have 5 tubs of tomatoes sauce in freezer! they are though a good plant to grow and you can grow in any good compost it does not hvae to be tomoato compost; start in a smallish pot that you buy it in then when you see roots at the bottom of the pot replace with one twice the size. you dont want too big an pot at the end or all growth will go into roots not tomatoes. whn it grows get a bamboo stick to hold it up and gently tie it to the stick belwo a stem so it does not slide down and you will get a nice tall plant. you will need to pick out stems growning between arms but can advise later on if you want. 

    ahh hedgehog houses have five in the garden - three in outside area and two in rehab area. not in usea tmoment but the feeding area is. miss my l;ittle prickly friends but dare not have them back yet. have written chapter on equipment for hospital just deciding what next. have also written introduction to research paper. 

    Al mini mafia is the rat population lol hubby makes stories about them for me because there is obviously a good rat run underneath the houses here and we get tunnels emerging and sometimes little mafia appearing. 

    Hubby informed me last night gradad was a bit tipsy because he had found out two niece were pregnant ! i told him to let him know not to get too excited as they will have to move on. 

    going to take it easy today hahaha.

    oh i have a butternut squash emerging thankfully i realised the silly seed was growing the wrong way so had to help it a bit not very intelligent!!!! quite a few celeriac now and sweetcorn but diasppointed with plug plants a quarter of them are not doing well. i suppose that is the risk you take with these. think i will get enough though to make a good display. 

    anyway keep smiling and stay strong soak up the rays! x

    Alli - love the birds on your table yay!!!! enjoy xx

  • hi 

    bit of a duller morning but thats ok over did it yesterday and feeling it. keep saying mellow day thenkeep pushing myself  sometimes a bit too much. for instance i dismantled  half the old hen run yesterday lol

    listening to the news this morning does not bear well for my appointment all those people still waiting on procedures and surgery wow, (4.7m) scary for them. 

    Alli fingers crossed you hear as soon as possible after your MDT - i had to wait until friday to hear from mine. 

    Al hope your getting some rest and not doing too much too soon, after getting better. take it easy andlet body do its work. 

    in door jobs today and perhaps a little fitness on the nintendo ring lol (i should say i can only manage 2 minutes at the moment but that two minutes is fun!). i also cheat !!!! i cannot squat due to my back so i sit down on a chair lol, i cannot run so i fast walk because me leg goes so it is all about adaption but i did like pplatform games or sonic when younger and this brings the child back. a couple of minutes of fun is worth hours of nothing. 

    started another chapter on hedgehog book about the diet. and nutritional properties of insects and found an interesting research on insects as human food - yuck!!!! i dont mind trying many things but not sure about eating insects. hmmm what next!  - mind you i watched master chef last night and dont fancy trying sweetbreads either - the texture puts me right of. 

    i saw the blue *** couple last night was really happy they have not been into the box yet it maybe because i have taken the run down there or is still too early for them i dont know but lovely to see them in the garden. hoping eventually i will get a more bird friendly garden but the baby trees need to grow up a bit more so i can put some more bird boxes up. Pigeon visited again this morning he is not scared of the table and where it is so pleased even if pigeon he is quite handsome. 

    well must stop being too lazy no wonder there is no day left by the time i get up - mind up am up at 4am for meds so my exscuse. !! 

    take care keep smiling and stay strong x

    Alli - try not to worry - distractions needed today because whatever you do will not change outcome, and your interest is their purpose. they will choose the best course for you. positivity needed. thinking of you x

  • Morning

    Another sunny day so will get tidying done in garden still have a pile of leaves to rake up, hope your ok Elona and not trying to do to much the Nintendo sounds fun I think your more likely to do exercise when you enjoy it I don't understand people's obsession with the gym, maybe I'm just lazy lol, Al the day bed sounds fantastic and will be a lovely place to chill when your friends come to visit and hopefully we will have some lovely weather soon, the Macmillan nurse called after the mdt meeting and said they were going to give me the chemoradiation and its curative so was very relieved, she thinks it will last for 7 weeks and will be daily and I can get transport there and back as I don't drive and Garys back at work now so that helps, don't know the details yet she said I'll have an appointment with the oncologist next week, Al how does it work do the sessions last long I think its 3 lots of chemo and the radiation is every day, the bird tables been busy the Mrs blackbirds stopped patrolling around the bottom of it and decided to try it out its obviously the new place to be and the birds are bringing there friends its lovely to watch

    Hope you have a lovely day take care

    All I x

  • Brilliant news Alli and wow that was quick they are obviously on the ball where you are. Think Al got this telephone call the following day. what i suggest is to enjoy yourself now and relax for a day or two then plan lots of things to keep your spirits up and soft food very tasty to help those taste buds last as long as possible. Also high calorie food easy to eat - sloppy. remember keep smiling and whenever you are too tired just read our posts or sleep we will be here. 

    the sun has emerged here eventually but it is cold have loads to do and geting frustrated not being able to do anything when i want. did clean a little bit of my floor in dinning area and cleared a bit more of the hen run. I also managed two minutes on the nintendo lol but they introduced a different exercise so have to work out how to do it another way lol. 

    So pleased your bird table is a huge success have you got your binoculars yet? lol. 

    Al you and your wife are amazing inventive sounds great and lovely to have friends over, something to look forward to and entertain in your lovely sounding garden. the peacock sounds beautiful. Your wife has good taste. 

    it is going to be abeautiful evening shame it is still cold. 

    keep smiling and stay strong x

  • Hi Alli

    Good news that it's curative :)

    Mine too is very curative and I was given a 6 week treatment course of chemoradio, which I thought was the max that they could give.  I would go in early on a Monday for potentially 6 hr Chemo, my chemo was cisplatin.  I say potantially as depending on how well the chemo went, sometimes the machine would keep stopping and you have to wait fo a nurse to start it again.  If all went well chemo would be closer to 5 hours.  After chemo on a Monday I would then go to the radio department.  Radio was over very quick and I actually found it quite relaxing and theraputic.  The hospital is 20 miles away so the whole day took around 8 hours from home and back.  When you are closer to your chemo I will give you some tips on making the day go quicker.  I was worried about sitting there for 6 hours, but to be honest the day went by really quickly.

    Tuesday, Wednesday, Thursday and Friday I would travel to the hospital for radio.  The radio itself lasted from 10 to 20 mins, but with the travel the day took around two and a half hours.

    Pre treatment I had to see a restoritive dentist and go for a mask fitting. 

    The restoritive dentist looks at your teeth and looks into the future.  He/She has to decide if any of your teeth are likely to need removing for the rest of your life.  If they decide that this is the case they will remove them pre treatment.  I had 6 teeth removed.  The reason behind this is because the radiochemo/chemoradio can destroy teeth that aren't strong.  If this happens during treatment it can cause a lot of problems.  Hopefully you won't need any removed.  I now have a strict daily teeth cleaning regime.  I have to use prescription toothpaste and this is for life.  Also my own dentist is no longer allowed to remove any teeth.  If they feel any need removing I have to go back to the restorative dentist who will try and save them.  if you do need to have any teeth removed it may put your treatment start date back a bit.  They have to wait 10 days after removing any teeth before starting treatment to give the gums time to heal.

    The mask fitting was like a spa day, I can only imagine as I have never actually been on a spa day.  I found it very relaxing.  They warm the material up and then mold it to your face where it hardens.  The mask is to keep you in position on the radio machine.  It has lots of holes in it so you can still see and breath.  If you are at all claustophobic I would tell them.  They can't do enough to make you comfortable.

    I also went in for an op to remove my good tonsil and take some biopsys prior to treatment.

    I only completed 5 of my 6 chemo sessions.  Prior to my 6th I felt that my body could take no more, I took advice from my MDT and they were happy for me not to complete my 6th.  They did say that there was a good chance that due to bloods I wouldn't be able to do the 6th anyway.  Today I still feel that that was the right decision.

    They will probably talk to you about having an NG Tube fitted at some point during your treatment.  I was determined not to have one fitted.  I felt that it would be a battle lost.  However around the end of week four I had lost too much weight due to not eating properly.  This was down to loss of taste.  They talked me into having an NG Tube fitted. I could have cried, but better to lose a battle to win the war.  I had it fitted and now it is the best thing ever.  Without it I would never have been able to fight back as hard.

    With regards to weight there is no ideal weight that you can go into this with.  They will weigh you at the beginning and then you'll have a percentage that you can lose before they start to worry (you may have to ask how much you can safely lose).  losing too much weight not only means you are not getting enough nutrition but your mask wont fit properly. I spent a bit of money on some scales so that I could keep an eye.  My scales matched the weights at the hospital.  I did go for a lot of walks to improve my fittness pre treatment, and carried this on for as long as I could during treatment.  We also invested in a rowing machine to help with fitness pre and post treatment.  I am not a gym bunny by a long shot :)

    Alli there are loads of bits of advice that I can give you, but this post would be a book long :laugh:  As you reach each step I will  tell you what happened. helped, didn't help me.  Do keep in mind that we all react to the treatment differently.  What I will say is never be in pain, if you are in any kind of pain let them know and they will sort it for you.  

    I hope that this has helped

    Stay strong

    Al x

     

  • morning 

    AL you are quite amazing reading what you have told Alli the fight for fitness and eating etc. The journey has been fought through sheer determination I can see. I am so glad you are through this and able to help others now. 

    I hope everyone has a good day today the sun is out again. We had some rain yesterday but not enough to water the plants. However, good news some butternut squash are emerging they just needed a push and a talking too! Al has your wifes plants arrived yet? My little plugs are struggling to cope half of them seem to be pulling through the other half are battling the battle of survival too. 

    Have made a list of questions for my doctors for monday so am going to print a copy of and drop it of at the doctors so they can get an idea for monday dont want to speak to someone with no knowledge. Managed to find a paper on necrotising granulomas in the head and neck which was quite interesting. Unfortunately did not say about management. My lump is being christened Fuego -spanish for fire because thats what it feels like when it gets inflamed. 

    right had better finish my cuppa and get myself motivated for the day! 

    keep smiling and stay strong x

     

  • Good Morning Elona :)

    Thank you for the veggie advice...  I'll have green fingers before I know it!

    Well the day bed come garden bench is complete and 'chained' to the front of the house.  Not that I don't trust anybody, but there has been a lot of garden thefts lately.  Its very big, but very comfy.  We also purchased a cantilever parasol to keep the sun off, gets very hot out the front, but now need to purchase weights which cost more than the parasol, bloomimg cheek!

    Also in the process of converting the old garage/shed/stone/brick outhouse into a multipurpose building.  It's 10 x 15 feet inside.  We want it to be usable as another room with bed for people to stay, a party room, a workshop and art room.   We've been watching a lot of George Clarke for ideas lol

    I have visions of you on your Nintendo, I did think about getting one for fittness...  Are they any good?  Sounds like you are having fun which is very important.

    Loving hearing about yours and Alli's bird table visitors.  Think I may have to look at making an anti cat bird table when my shed is finished.

    I have eaten many insects, and they weren't that bad.  I spent some time in Asia where it is common place, they are very high in nutrition and protein.  It wouldn't surprise me if in the not to distant future insects become part of the western diet, mosy burgers and flydogs lol.  I did draw the line with fried terantula though!

    Sunny here in the valleys today, time to be outside and make the most of it.

    Hope you have a great day.

    Be strong

    Al x

Reply
  • Good Morning Elona :)

    Thank you for the veggie advice...  I'll have green fingers before I know it!

    Well the day bed come garden bench is complete and 'chained' to the front of the house.  Not that I don't trust anybody, but there has been a lot of garden thefts lately.  Its very big, but very comfy.  We also purchased a cantilever parasol to keep the sun off, gets very hot out the front, but now need to purchase weights which cost more than the parasol, bloomimg cheek!

    Also in the process of converting the old garage/shed/stone/brick outhouse into a multipurpose building.  It's 10 x 15 feet inside.  We want it to be usable as another room with bed for people to stay, a party room, a workshop and art room.   We've been watching a lot of George Clarke for ideas lol

    I have visions of you on your Nintendo, I did think about getting one for fittness...  Are they any good?  Sounds like you are having fun which is very important.

    Loving hearing about yours and Alli's bird table visitors.  Think I may have to look at making an anti cat bird table when my shed is finished.

    I have eaten many insects, and they weren't that bad.  I spent some time in Asia where it is common place, they are very high in nutrition and protein.  It wouldn't surprise me if in the not to distant future insects become part of the western diet, mosy burgers and flydogs lol.  I did draw the line with fried terantula though!

    Sunny here in the valleys today, time to be outside and make the most of it.

    Hope you have a great day.

    Be strong

    Al x

Children
  • Hello 

    I'm having a few technical issues and thought I'd posted a message but it didn't work hope I have more luck now lol, hope all goes well at doctors Elona and they come up with a course of treatment for you its sounds awful that its a burning pain in the lump like the name though lol, Al its really helping knowing that you got through the treatment and are still smiling and positive its giving me hope that I can do it, hope I'm as brave as you, I have day bed envy its sounds lovely perfect for lounging on lazy summer days, nearly forgot Al how did your mdt meeting go hope it was ok, all ok here I've been feeling really healthy for a sick person just get a bit tired I've been trying to go for a walk each day or do a bit of vigorous cleaning and eat a bit healthier as I'm not the fittest and lockdown and being furloughed didn't help, the bird tables been a bit quieter since we mowed but there is a family of wrens that are regulars think they are nesting in the hedge its like I've put a birdy restaurant there for them the wood pigeons a regular as well it's sussed were the food is now, saw the robin round the other side of the garden so have hung a bird seed feeder there for him if to encourage him to come back he's so cute

    Hope you all have a lovely day take care

    Alli x

  • morning 

    well sun is shinning again but is quite cold have had to turn on the heating back in my room. 

    Al Day bed sounds brilliant you two are really clever, shame about the thiefs that you have to tie it down to the house. a cat resistanbt bird table sounds like a good challenge for youj next! 

    Alli wonderful to hear boaut the birds in your garden a family of wrens - how cute! and love robins, 

    my back garden is getting a bit clearere each day the hen run is now down just got to dismantle the hen house - shame as it is a good one but things dont last and would have to be really disinfected for a new family. lots of heavy stones to move and place around the garden one at a time me thingks and some help maybe needed too. the previous owner was a reclamation yard person and this garden was littered with all sorts of building materials, some of the stones thoug are huge and not unpleasant to look at also i dont think i could lift into a skip if i had one so i am raising flower beds with them. 

    did not do any fitness on nintendo yesterday as had done enough but i do find it a lot of fun. the ring is an adventure game like sonic the hedgehog but to move you have to use the ring - you squeeze it in, out  al depending upon what you want to do and do squats of knees up. the good thing though that i like is that it is based on your ability so it measures you doing things so if you cant you can pretend. - for instance i cannot lift heel to ring so i do ring to heel. for me it has been worth it. hubby quite likes watching me. then we play some games like bowling, shooting aliens together! 

    having hair cut today for first time in a year - yay! am going to go radicle and change the style - long on side of lump and short on other side with slope on back. this will also remove some of the red hair dye am going au naturele at moment until i know i can dye my hair again lol. 

    well thats my excitement for the day - and sadly will watch the funeral later. 

    aaah just caught baby mini mafia on bird table the rat! literally!!!! i need a mini mafia plan! 

    have a good day everyone and keep smiling x

  • Al think we have done it agaain written at the same time lol!! 

    your veggies sound great yes good idea to repot by the sounds of things. 

    the outbuilding sounds wonderful and the idea of its multiuse brilliant but yes dont blame you have a weekend off - besides if yiu have friends coming sunday you dont want to be too tired. 

    amazed how you are managing doing so much where do you get that energy from! 

    have great day x

  • Hi Alli :)

    Glad that I can be of some help :)

    The MDT went well, they have signed me off from the cancer hospital.  I now have another MDT team at my local hospital who called the very next day to arrange a zoom type meeting in a couple of weeks.

    I did suffer terribly with chronic fatigue and depression half way through, but they believed the depression was more linked to my neurological dissorder and the effects of the meds.  Though I did get really down when I lost all sense of taste.  But remember you may not lose all of your tatse.  To be fair I didn't suffer too long or too much with anything else, so in reality the loss of taste was a small price to pay.  All in all my attitude was that no matter what the treatment threw at me the alternative was always worse.

    Its two weeks post treatment and I still have a way to go with regards to taste.  Although I can now taste coffee and cucumber.  I tried a Bacon Frazzle yesterday, I could tell what it was, but the flavour wasn't great.  I just try new things every day.  I have tea with two sugars, but cannot taste the sugar.

    I have two swollen, painful feet which may be down to water retention.  Had blood tests yesterday as they need to check how my kidneys are doing before they can give me any meds for it. 

    I still have a very sore throat, which now has oral thrush to contend with too.  Apparently oral thrush is quite common at this stage. 

    In the mornings I still have to take 7 meds, 3 pain killers (2 morphine and 1 paracetamol), 1 anti sickness, 1 anti acid reflux, 1 thrush, 1 mouth cleaner.  I also have a spray for my mouth if it gets too dry, which is another common problem.  The reason for two morphines is one of them is a slow release and the other is an as and when which I can take up to every hour if needed. 

    I am getting a lot of back pain too, but this is down to the 10 hour tube feeding through the night.  With tube feeding, for safty, I have to sleep with my chest above my stomach, which I find uncomfortable no matter how many things I have tried.  But you get used to it and like I said earlier the alternative is worse.

    Just read back all that I had written,  what a poo thing to read.  I do believe that forewarned is forearmed and I would be doing wrong by you if I was to make it all fluffy and sweet.  And no matter what you will get through this a day at a time.

    I was reading Elona's post, great idea to write down any questions you may have for any professionals that you will see from now.  You will forget if you do not write them down.  And ask anything, that is what they are there for.  There are no such things as stupid questions.  You will probably have weekly meetings during treatment, do tell them how you feel both physically and mentally.  They really do want you to get through this as best as you can and they will do anything in their power to help.

    Now and for the next weeks, enjoy every bit of food, chill, make the most of every day. Savour everything.  Before you know it it will all be a distant memory :)

    Hope you have a great weekend.

    Al'

  • Morning

    Another sunny day a bit of cloud but hopefully will clear later as I plan to get out and have a read after I've done my jobs, thanks  All for giving me an idea of what to expect I do believe that knowing means less of a shock later and I will take anything they give me if it gets rid of this, funny you should mention frazzles I've just had a bag bought them to put in sons pack lunch but have been munching my way through them, so much for healthy diet lol, still haven't heard anything from mdt about appt I'm wondering if Macmillan nurse got it wrong hopefully will hear by Monday, the new hairstyle sounds lovely Elona don't know whether to cut mine as its really long now and not sure if it will fall out during treatment, try not to overdo it the garden lugging stones around spend some time relaxing 

    Hope you have a fab day

    Alli x

  • I think we did :laugh:

    my energy comes from years of boom and bust training lol.  No matter how energised I feel I plod along, resting in between.   I do get fatigued by around 4pm ish.  I doze on and off in the evening and then sleep on and off through the night.  I probably get at least 10 hours sleep in every 24.  I also make sure that I have rest days no matter how I feel.   

    I am now sat out the front on the day bed with the dogs watching the world go by.  Lots of cyclists,  posh cars and motorbikes passing by.  All headed up the mountain roads and onto the Brecon Beacons.  The wife is painting the bathroom. 

    We will be watching the funeral in a bit.  I liked Prince Philip,  one of my favourite royals.

    Al x

  • We reached 200 posts on this thread yesterday!

  • congratulations on the 200 posts.  

    the funeral was lovely to watch and really personal for Prince Phillip. Feel for the Queen she will miss him. 

    I also painted yesterday lol i painted a wall in the living room in the dinningroom area. it is gettting there. Might do the bit of skirting underneath day. 

    sun is shinning and did get outside yesterday moved 2 stones but they are heavy and i should not really move them due to my back but am like a bull in a cina shop plough on regardless !! you need that determination to get through anything you have to in life. it was quite cold outside and looks like the same today. 

    Hair done - yay respectable again !! not that iam the sort of person who really cares what people think about my looks but feels good and long side hides my lump nicely. Not sure what made me go radical perhaps I need a new episode in my chapter now. Things to mell over. 

    Glad Al you liked the day bed i love watching the world go by so i bet that was fun and relaxing. 

    Alli dont worry about the appointment - try to chill it will come when it does. as Al says enjyoy the time you have at this moment find something lovely to do today with your son, or on your own and enjoy every minute. 

    finishing cuppa with pedro lying next to me. have a good day. 

    keep smiling x

  • Morning

    A lovely sunny day hope it is sunny by you Al and you have a fab day with your friends today on your lovely day bed, I couldn't watch the funeral just looked at bits it was to sad but he had a long and wonderful life, just feel so sorry for the queen, off out for a drive today I'm a bit nervous going anywhere were its to busy but maybe we will find somewhere quiet will just be nice to be out, finally managed yesterday to rake up last of leaves and went for a walk to I'm paying for it now I ache in places I forgot I could ache lol, hope your new hairstyle turned out nice Elona I'm sure it looks lovely and good luck with the doctor tomorrow hopefully they can give you an idea of treatment and when it will start the waiting to know is no fun

    Have a great day

    Allison x

     

  • HI

    had a good day yesterday watched coming 2 America and laughed no end it was a really good and funny film. If you liked the first one then you will like this one only it is on Amazon unfortunately so you have to have that. A good distraction. 

    hope Alli you enjoyed your drive it is good to get out hubby and I are planing to go into town Wednesday. 

    Hope Al you had a good enjoyable day with your friends yesterday.

    Dismantled the old hen coup yesterday boy it opens up the garden no end with space !!!! hard work so no heavy moving around today. as it is quite glum outside will concentrate on doing a job indoors. still sticking to a job a day keeps me going or i probably wouldnt bother!! Have also started writing the chapter on hedgehog diets quite interesting finding out that the first person to discover what hedgehogs ate was part of the Bronz zoo. 

    Hubby is entertaining Pedro outside who is being a true adolescent dog these last couple of days!! a true pain in preverbial lol constantly wanting attention and barking at everything. even the dog bone i got him yesterday didnt work lol. So iam left drinking my cuppa with Rasputin curled up next to me. He is an adult cat i rescued before i moved. he had been coming round to eat and was getting a bit used to me then one day i noticed a lump on his face and swelling poor man he wouldnt let me see then and it wasnt until a week before we moved that i grabbed him got him in to be castrated and notied that the injury had been from hitting a car and breaking his jaw so now he dribbles all the time has hi tongue out and a lumo on chin. We called him Rasputin after the Russian and because as an adult he had probably sown a few oats in his time lol. 

    sun is trying to emerge so enjoy, have a good day everone. 

    keep smiling x