Hi C

you are never alone on here and are welcome to our thread any time or all the time i come on daily to check in. 

take care 

Hi Elona.

I'm not too bad at all thank you. 

My off days emotionally are few and far between atm. Concentration on my routine has given me better days. 

Went for my mask fitting a few days ago and Valdemort as we're calling it has been crafted they wanted to do my planning scan but they couldn't drop my IV in for the contrast so they've got me coming back this afternoon to get it done. Mostly my.own fault as I got my appointment time wrong and hadn't drank anything.. as I had to leave in a hurry (had a lie in ) they struggled. Making a point of drinking this morning! Just getting wee ones ready for school.

My therapy army starts its march 24/3/21. 1st Radio Session and Chemo 1 of 2. So got just under 2 weeks of normality before we get going. Got my Chemo pre bloods Wednesday as well.

Hope everyone is doing OK.

Hi ccec.

It's natural to feel this. For the first 2 weeks after my diagnosis I literally fell inside myself and became very very much close to depressed. I didn't want to hear what I was being told. All I could hear was Cancer.

From experience on here there's quite a few of us that have this somewhat unique Cancer. There's also a massive scope of ages. I myself am only 32 and until this I was perfectly healthy working 50/60hrs a week on an NHS Emergency Ambulance.

I'm now just under 2 weeks from starting treatment. Albeit I was lucky and had no major Surgery close to starting Treatment and all my teeth are healthy!

Albeit I didn't initially practice what I'm going to say... if it does turn out to be Cancer...

Listen to what you're being told by your team, take it in and take time to process it. Don't get hung up on the negative things because its the positives that will push you through your first few weeks.

If you don't understand something... ask! Write down questions as you think of them.

Have someone with you, partner/family someone to help with listening. Inspite COVID they should allow this if it becomes an Oncology issue.

Give yourself time to cry if you need it. The emotions good or bad are part of this so you have to take time to experience both.

I have been given a good prognosis now that I've had Lymph nodes removed, I had these lumps in my neck for about 12 months with NO SPREAD anywhere else. So now all that's left is a 3ish CM Primary in my Tonsil. I was told I could of been looking at 2 or 3 types of Chemo but because they're satisfied 1 on day 1 and 1 day 15 with the Radio should CURE this. Alot more oral Cancers are bring caused by the HPV Virus which is what a good few of us have make it alot more responsive to Chemoradiotherapy. Literally my team have said they've watch these things melt away within a week.

Its a scary process to be facing. The thought of therapy has me scared! The side effects I'm choosing to see as payment to get the chance of having my life back. That is what is keeping me pushed.

I plan to stay active. Mrs has a housework list ready for me as well as for as long as I can I'm driving to my own radiotherapy appointment. 

I hope that this helps, find some good, find a reason to push and hopefully you'll feel better if it turns out to be Cancer.

Take care 

hi Sam

glad to hear things are ok at the moment that is great. Keep on this track. Love the name for your mask how brilliant!! Enjoy these next days and week. 

Here if you want anything 

checking in peoples 

hope your ok. 

How are you feeling?

well weird weather today sunny one minite, gale winds then hail now it looks like it wants to rain had to drag Pedro in at one point to stop him getting pelted! 

planted some celeriac, butter nut squash and sweetcorn seeds fingers crossed. 

finished my job of the day cleaned the floor in the new kitchen area so tomorrow, sanding then waxing. thankfullly only a small area. 

gave the hens some toys today after listening to a webinar on them, they now have a hanging apple and ball and an orange cone hiding some corn. Hopefully they will peck at these and stop bullying Sir Reginald.

hope your partners have good mothers day tomorrow and hear from you soon x

Thank you everyone for you kind words advice and wisdom.

I have my covid swab tomorrow ready for panendoscopy and biopsy on Tuesday

I'm trying to sort the housework out got an extra shopping delivery and my son is now off school. We have been told we need to fully isolate for 2 weeks after my biopsy no one in or out the house.

Best wishes all

christine 

happy mothers day Christine. 

you can get special delivery spots if you get stuck if you telephone the supermarket and i have with Tesco and explain that you are a cancer patient etc they will put you on the priority slots in 24 hours so you can order that way. 

good luck with the covid test it wasnt too bad I had a nice nurse do mine and she didnt prod around. 

dont know if you have ever had an anesthetic before but it is fine as long as you are not a panic like me lol. the anaesthetic is given in two stages in a canulae in the arm the first drug feels like a cold medicine going up your arm then as they are injecting the second one you fall alseep straight away. 

when you wake you feel then suckin up your dribble lol as they remove tube. there is a nice nurse sittting next to you as you wake up. There were no side effects from panescopy. 

my hospital didnt tell me to isolate afterwards so thats different but said that was the length of time it would take to get the results back. They had wanted me to isolate before the anaesthetic. 

enjoy your special day today 

keep us informed and keep smiling. x

hi Al 

let us know how you are doing we are thinking of you. 

sun is smiling on the day today brings happineess to all. advise to suck up the suns rays as much as possible and remember we are all there for you. 

be possitive and be strong keep joking and smiling at your lovely wife. 

eat more icecream !!! or those roasted vegetables! 

(i planted my veggie seeds) 

Hubby made me a joey mothers day card from the Al capone club that accumulates nightly in the carport in the of chance there is anything around!!! he then said i am now introduced to the rattus club and has named them all even made up all sorts of stories like granddad unfortunately had his hair shved by mistake so has a toupe now on top unfortuantely he lost it the other night from too much high jinks! his old banger a camper van was sprayed in all sorts of colours granma was not impressed. Then believe it or not the other night an aligator holiday bus stopped by by mistake and joined in the fun! i am due to upset them soon because the hedgehogs have gone on holiday for a few weeks while i try and recover and have the opportunity to clean the arport out properly lol. 

imagination is a good thing x

monday morning peeps the start of a new week time to be positive that this week will be good and all will go well. 

still waiting for my appointment lol but fingers crossed you never know could come this week. 

spring is here there are loads of lovely chatty birds out there to enjoy listening too. My jackdaws are back on the roof making a mess in my redundant chimney. they use this every year it must be totally full of sticks lol 

hope your ok 

keep smiling x