looks like i am in for another bad nights sleep but who knows painkillers in an hour. 

i think i may have been doing things wrong - read should have painkillers 30 mins before food (although mine say must be taken with food?) can try this tomorrow. i wince everytime i swallow but did manage smash and little soup for tea. 

last antibiotic tomorrow too so will be interesting to see if any changes occur. 

oh well of to watch new tricks 

4.30am, thought I would join you with the symphony of pain... Who needs sleep anyway lol.  Though to be fair if pain level was an Olympic sport you would win silver and I would be there just to make up the numbers....  Saving gold for week 3 of radiotherapy. 

So glad that you have managed to eat, good sign that things are going in the right direction.  You will be back on solids before you know it.   I found bread was good to help with that, you can swallow it as small or as large as you like, plus it helps to clean your throat and improve recovery. 

Can't believe you have a puncture!  Thankfully it's slow... online shopping has really been a thankfull game changer and life saver hasn't it... I'm going to have to watch that I don't find an addiction with it lol.

One of the dogs is very happy that Daddy is up and totally believes my sole purpose for being up right now is to give her cuddles.

I was so happy yesterday that the weekend means no appointments or phone calls, 2 days of lie ins and chilling, some much needed rest...  Sadly Dr Pain has other ideas.

Well Friday they were going to remove 4 of the 6 teeth leaving two for Wednesdays appointment.  Lost count of the amount of adrenaline injections, local anesthetic doesn't always have the desired numbing effect on me.  Three teeth came out fine, though I could feel one and two had to have the gum cut and stitched.  They didn't want to extract the third as the anesthetic hadn't taken completely,  but I got to the point where I just wanted it out lol.

The pain with the fourth was simply too much,  works out that there is an infection which prevented any chance of numbing in that tooth.  So later today we are off on an adventure to the pharmacy, script in hand, for two lots of medication for the infection... No idea why two,  can't read the writing on the script to look up what they are.

Looks at clock, not too long till the next lot of pain killers now. 

TV has become my new best friend.

To infinity and beyond!

Hi Al

wow you are very brave I am cringing just reading your events of Friday. 

Sounds like you needed at least that infected tooth sorting thats good. I remember my last trip for an extraction like you the injection did not work well and the dentist wanted to put it of as i t hurt but i told him if he didnt remove it then and then i would probably not go back so the poor nurses hand was gripped until it went white lol. i feel your pain. 

well you certainly joined me this morning I got up sat with the hubby who doesnt really sleep and just mindlessly watched TV. One hour later mouth was feeling okay enough to go back to bed and painkillers kicked in. Unlike your dog mine thinks any movement measn throwing ball outside! 

Managed to get some sleep yay! but am also going to take it easy today. Its raining hard an excuse not to do anything. 

good Buzz lightyear quote! 

enjoy your mellow weekend get plenty of rest. 

Hey you, how are you feeling today?

Hi

if i dont talk im ok if i talk in this wonderful husky painful throat then i get emotional lol probably typical female lol. 

consultant phoned to tell me about the biopsies to be done. He sounded annoyed that i already knew and not specific like i dont know anything! so more waiting game. 

more to the point how are you???? i hope not too sore and able to eat something. 

you take care 

Me and the early hours are becoming best friends, this morning I am introducing 5am to a painfull mouth and throat with a side of extremely sore gums lol.

Nothing wrong with being emotional you typical female you. In fact that's a healthy advantage as us typical blokes tend to keep it all in.  Not only that we tend to hide our mental wellbeing which is extremely unhealthy. 

Some consultants can come across as rude,  usually male ones...  again I think this goes back to the inability to show emotion, maybe they take an exam in detachment lol.  I wouldn't take it personally 

My two lots of medication prescribed by the dental hospital are both antibiotics,  rarely taken antibiotics let alone two different ones at the same time.  One of them a horse would struggle to swallow. 

Eating anything that's soft, scrambled egg, mash, baked beans,  ice cream...  Not all on the same plate tho lol.  Did try pasta but strangely struggled with that.

Had a call from the cancer hospital to arrange mask fitting,  supposed to start Radiochemotherapy on 15th Feb.  Due to the issues with my teeth i am probably going to have to wait until the 22nd.  I suppose one good thing about that is my body will get some rest before treatment starts. 

Be strong, but let your emotions free.

Hi 

Hmm early hours in the morning are not good, quiet but disrupts the good rest needed. I am getting into quite a routine at the moment - 4am, 10am, 4pm, 10pm medication and an hour earlier figedting hoping the time will go quickly lol. We start with BBC news at 4am to get an educational start to the day finishing with New Tricks /Vera/ER after 10pm! 

Like you I tried the spaghetto today hubbies iddea with soup as a sauce but there were a few incidents of intense pain it was not a happy meal. I used to love food now at the moment I look at it as a neccesity. I think I need some of your exercises as I dont like oening my mouth. Will have a word with hospital next monday if no better when i go for biopsies. 

You are right about consultants I dont think they are always aware of how they sound and also presume we are all idiots. At the moment they dont know whay I am like I am this the consultant admitted it can be that any cancer cells in lymph nodes have not been identified because aspiration not perfect but then why dont they just do proper biopsies and save money or good news no metastisis. What i dont like is not being told exactly what was found. I am going to ask to see a copy of what results they have so far. This is where our hospital is falling down. 

I know at the momment I am still having some of the symptoms of before and some more - i have had some bad earache, dizziness as well as the tiredness will mention this too. 

I am so sorry you have so much discomfort please take it easy too Have as much rest as possible regardless of time - hubby says you have to learn to cat nap whenever you need and he is probably right. 

Hope the mask fitting goes ok I presume this is to protect areas not wanting the radiotherapy? 

Hope your gums settle soon. 

Speak soon 

Hi Elona

Firstly  your emoji is great lol....  :laugh:

Me and ice cream have become good friends too, my favourite flavours at the mo are creamy fudge and salted caramel. We need extra freezer space so looked at getting back up table top freezer for extra storage  but I was shocked at the price... £104 from Argos.  Of course could no doubt pick up a second hand one for less than £40, but with covid and shielding that's next to impossible. 

I am really sorry that you are still suffering so much from your op.  If I was you I would get back to your Dr or specialist for better pain control.   To me your pain is becoming persistent/chronic which needs sorting.   Not being able to eat properly for so long can cause all sorts of problems both mentally and physically which will also slow the healing process.

I had my other three teeth out yesterday,  much worse than the first three.  Mainly down to the infected tooth even after 5 days of double antibiotics. The local anesthetic only worked about 80% on that tooth but between me and the dental surgeons we were determined it was coming out.  That was an experience I never want to go through again.  The pain since, well put it this way I had a kidney stone when I was 25 and the pain from that paled to insignificance compared to this.

The cancer too has been an ***, causing tear jerking pain.   Thankfully the cancer Nurse is calling this morning to help with the pain control.   I'll tell you something  that l have learned they don't like you being in pain once you've been diagnosed. 

its amazing the things you end up watching on TV at all hours.  Things you would never normally watch, yet find yourself getting slowly pulled in and learning things that you never knew that you never knew.

Funnily enough our bathroom too is in a dire state which was bad enough with my chronic condition let alone this new one.  Advised to apply for a grant, which I did.  I meet every criteria except that we've lived in the property less than 5 years!  Ridiculous!!!

sounds like your hubby has found an inner strength.   I lost many things when I was diagnosed with my neurological condition and by far the hardest loss as a man was my ability to provide for  look after and protect my family.  That made me more depressed than the actual condition itself.  Took a long time to come to terms with  and in many ways I haven't.   Perhaps hubby went through similar and has found a new mojo being able to care for you in your hour of need....just a thought.

Remember to be strong,  one day all this pain will be a distant memory. 

Al

Hi Al

was checking to see if you had replied and how you were. 

i am so sorry you are suffering not good - especially if it hs got worse already. lets hope they crack on with the radiotherapy and starts getting it sorted. 

i still cringe at those teeth extractions you are gobsmackingly brave and amazing! 

well bloods done this morning for full blood count. clotting and prothrombin in preparation for monday. 

lymph node is seeping out (have hole in neck lol) and has reduced a bit more in size because of this but am hoping they get a good sample and can provide a proper diagnosis. still feel bunged up a bit on that side with earache and swallowing pain. think things are already chronic and probably have been longer than I realised. 

new food wotsits can suck them to mush lol. 

salted caramel is also one of my favourite ice creams but finished the cookie dough last night so cant wait for the next tesco delivery! i have to be careful as allergic to cream so have to scrutinise ingredients that unfortunatley limits choice. Mint funnily enough hurts to eat must be something in the peppermint flavour that agrivates. 

hubby i think also went through the provision bit too and we did find it hard since he had been the beter earner veterinary nursing not a good choice for good pay a vocation they say lol and definately not glamourous. 

well make sure your nurse gives you good pain relief very important and keep checking in please. 

you be strong too i tend to think now there cannot be anything bad we cannot go through now after all this and especially what you have gone through. 

speak soon

Elona