Please let me first say I am sorry about your husband and the anxiety this is causing you. I was 57  in July 2019 when I was diagnosed. I was told mine is incurable but treatable. It appears oncologists say GBM4 is always classed as incurable, standard speech it appears. So far i am stable no change. I have had the chemo and radiotherapy after my operation and am now on my medication on a daily basis. The doctors cannot give a timescale (I was told 12 to 15 months initially), but I am still here 18 months later. My wife and I dont make major plans too far ahead we just take each day as it comes.

How is your husband feeling may I ask?  My wife possibly feels as you do, and my perspective is on your husband's side. Initially shock and tears were the norm when first told  of my diagnosis. We hadn't  even heard of it. I had no previous symptoms so was a thunderbolt from out of the blue. Whilst I went through my radiotherapy my wife's family were my comfort blanket, just surround yourself with people who can support both of you. It is not all doom and gloom honest. The moulded mask for the radiotherapy is not flattering I must confess. 

I do yoga and have a shed converted into a gym. We walk my daughters dog daily and we laugh and enjoy ourselves.

The chemo is the kick  please tell your husband he will possibly feel like crap, I did had to reduce my dosage as my platelets kept reducing. 

My wife says there are support groups like Glioblastoma support UK who can help but please beware some others are more harrowing so she ignores them. 

 If you have any further questions please do not hesitate to contact me happy to try and help. 

Regards

John 

Hi John thank you so much for replying to me im actually crying as Im writting this. 
 

I dont even know what to ask you I am so confused and so numb.

My husband is currently in fight mode and wants to give this all he can. I on the other hand am in breaking down mode. 
 

We have a 2 year old daughter and 1 on the way  

xx

It's ok to be emotional, crying helps honest.  we had nothing to do on initially as we didnt have a clue what this was. Your husband is right fight it, when I go I want GBM4 to know I went out fighting. I listed 10 battles I thought I would have to prepare for. Started with D Day landings initial fight and then worked down to Thermoplyae were I had played all my hands. So far only had the landings. Ask anything you like if I cant answer it will find an answer somewhere. 

How long ago was your husband diagnosed? and when does he start his radiotherapy and chemo treatment. 

I have a son and daughter in their 30's  scariest part for me was telling my son as he was away on holiday when I was rushed in. I didnt tell him until he got back didnt want to spoil his holiday

 I started a blog called brainman.com just so I could reach other people like me. Have you contacted Macmillan may I ask? They helped me. I am now retired due to my medical condition. I have occasional bouts of forgetfulness and predictive speech ( like old nokia phone) my mind thinks one thing and I say another, frustrating for me but humourous for others. 

Please get as much help as you can because you cannot do it alone. 

In your corner as I have been there already and tell your husband fight the thing always you have both got so much to look forward too. Congratulations on the upcoming arrival of your additional family member too. 

X

Hi Tyke62,

Just posted something and was looking at your posts. They seem to fit my Wifes situation exactly, albiet her problem started last September. 

Be really usefully to talk (message) directly to 'compare notes' if you're comfortable with that.

We seem to be the mirror of each other, I'm looking after my Wife, your Wifes looking after you.

Thank You

Tony  

Hi Tony 

Please contact me. I will answer any questions you may have.  

Regards 

John 

Thank you John, will be in touch soon.

Tony