Surprising diagnosis - grade 3 invasive ductal carcinoma

Hi all, 

so, after finding a lump last month on my tiny boobs I booked an appointment to see the doctor. I’ve got a slight family history of bc and knew the risks. But, I’ve had a scare before, so I was prepared for biopsy, etc, and a talking to about changes etc. 

I had a biopsy and scans on Thursday last week and was told it was a Fibroadenoma, not to worry I’m only 32, yadda ya. I got a call for results today.

As soon as I walked in the (lovely) consultant asked me to phone my husband and ask him to come in. At that point it clicked. 

So ive been diagnosed with a grade 3 invasive ductal carcinoma. 

I feel kind of weird. I haven’t cried or anything, I feel numb I think. I don’t want to upset other people etc. Weird situation to be in !

anywho I have to wait for a few more results to know if we are going for chemo or surgery first, and I’ll know in a few weeks. Right now I’m just looking for a mate

Parents
  • Hi, I don't even know where to begin, I'm sorry to hear about your diagnosis this year was the hardest year of my life; it was meant to be special and exciting but it turned out to be a nightmare.

    At the start of the lockdown in March I found out I was pregnant with my second child everything was great I was over the moon my partner and my daughter were so excited, then a few months down the line I felt a lump on my right breast.

    I booked an appointment done some test and got diagnosed with TNBC in July whilst 5 months pregnant at 30. I didn't enjoy the end of my pregnancy at all 

    I started chemo 3 weeks later, at first I was scared because I didn't know if the treatment would harm the baby, but the doctor's assured me that my baby would be safe. I think because my hormones were all over the place I used to cry non stop... I thank God every day for my partner he's been my rock through out this horror movie.

    I started chemo in August I would have treatment every 3 weeks but unfortunately my tumor was not shrinking. The my treatment was changed in October, I had to go in every week for 3 weeks and then stop a month before I was induced.

    I was induced on the 11th of November 2020 and my princess was born on the 14th of November she was born 2 weeks early. 

    For that moment I forgot I had breast cancer I  went home the same day because I had a natural birth and the doctors gave me the all clear.

    On the 19th of November I had a mastectomy I'm still coming to terms with it, all I could say to myself was im doing it for my children. They took some lymph nodes to check the staging.

    The surgery went well, my lymph nodes were clear and my ct scan was clear aswell. I due to start treatment again in a week.
     

    We will beat this beast and it will never come back again. 

  • Hi, [@Angelbless]‍ 

    Thanks for sharing your story.

    How awful this year has been for you, and it must have all been so much harder with all of the lockdowns and uncertainties surrounding that. But congratulations on the birth of your daughter, I am glad she was able to be the light at the end of the tunnel for you.

    How did you find chemo? Is that what you will be starting again next week? 

    I just want to get going now lol.

     

    yes, absolutely we will ! 

  • Hi!! 

    Happy new year!!! 

    sorry for the late reply, I'm starting my treatment again next week chemotherapy. I didn't have many side effects apart from being tired and not wanting to do anything.  

Reply Children
  • Happy new year! 

    How are you doing? I hope your treatment goes well this week, I’ll be thinking of you! 

    X

  • Hi Phil, 

     

    hope all is well, today is just not my day.... I don't want to get up and do anything.

    Just lay in bed and forget the world... I'm tired of treatment sometimes I don't want to do it, then I remember that I have to do it for my children and my partner.

    I find myself being angry at times..."why me?" That's what I say to myself, I don't understand. 
    My treatment is going well....

    With this Covid + lockdown makes it more depressing, hopefully I will be in good spirits tomorrow.

    Hope everything is good with you xx

     

     

     

  • [@Angelbless]‍ I’m sorry your having a tough day hun! 

    Thats ok! You can have slower days, because you’ve got to remember to rest and look after yourself. Your body needs it. 

    I think we all have the why me, days. It all feels so unfair and unkind. Express it in whatever ways you need to! 

    Yeah covid is sucking the little joys out of things. I’ve been feeling this lately too. I think it makes it hard not seeing family and friends. I’ve not been able to hug anyone other than my husband since my diagnosis and I’m not even a hugger, so if I’m missing it, things must be bad :laugh: I think it just seems to have gone on for so long now, we are missing the little things. 

    We should spin it around and think of the things we are looking-forward to doing once we are released again lol. I’m actually just looking forward to going for coffee and cake in a little coffee shop! Tragic :laugh:

    What are you looking forward to doing? 

    Surgery next Thursday, I’m looking forward to getting started.

    hope your ok hun, don’t beat yourself up xx


  • Hi Phili,

    I see that your surgery is now scheduled for next Thursday and, just want to say that I hope that it all goes well for you. You will feel better to make a start on recovery.

    Please let us know how you get on. We are always here for you.

    Kind regards,

    Jolamine xx

     

  • Thank you lovely! 

    Definitely looking forward to starting. I’ll give you all an update on Friday . How are you Jolamine?

    xxx

     

    [@WestieRuth]‍ I’m good thank you hun. How are you? What’s been going on? 

    Xxx

  •  

    Hi Phili,

    I have had a bone scan, but am still awaiting results. I have an an appointment for an x-ray on 31st and am still awaiting dates for a CT, Cardiology and a 72 hour heart monitor.

    I hope that all is going well for you. 

    Kind regards,

    Jolamine xx

     

     

  • Good morning Phil, How are you?
    How was the surgery? had another round of TC on Tuesday, it went ok just feel so tired after treatment and sick. The nausea tablets really help.

    once this lockdown finishes, I want to take the kids somewhere nice, the lil one hasn't been anywhere apart from hospital, Gp and home also the park. It will be good to see family and do family stuff. 
     

    I videochat with my sisters and brothers but it's not the same. 
     

    Hope your ok, I hope the surgery went well, thinking of you xxx

  • Hi guys. 

    Thanks for the well wishes.

    Sorry it's taken me a few days to update you all, it's been a bit of a tough week.

    So unfortunately the surgery couldn't go ahead. I had an allergic reaction to the blue dye in theater. It's quite an unlikely event, about 1:400 my surgeon said (lucky me :laugh:). 

    I was given adrenaline and steroids and had to stay in the hospital for 24hrs. Felt pretty rough for a few days. But the staff were amazing and really looked after me.

    I'm expecting a call to rebook to surgery early this week so I'm hoping it will be soon. Obviously the lymph biopsies will be taken without the use of dye. My surgeon is totally on the ball and she's going to make sure I get tested for the cause of the allergy. All in all, a bit rubbish but it's nobodies fault so we just plod on. 

    ​​​​​​Sorry you haven't felt great after you recent round of chemo. Have you tried those anti sickness bands too? I've read they are quite helpful. Lovely ideas. So much for us all to look forward to. 

    @jolamine any results yet? 

    hope your all well xx

     

  • Hi ladies

    Sorry for gatecrashing but I have read through your posts and you are all giving me so much hope. 

    I was officially diagnosed with triple positive breast cancer last month. I should be starting chemotherapy in the next couple of weeks.

    Im 32, have 2 children (6 years and 2 years) and with no history of breast cancer in the family.

    I found a lump in my right breast which was confirmed to be grade 1 breast cancer. As of yet no sign of it in lymph nodes. Had a MRI which showed lump is now 22mm, but they have found a second lump in same breast (6mm) and have concerns about my left breast (found small nodules on MRI). 

    I've certainly had the "why me" days, broken down in masses of tears, and my mind is constantly going to the not so great places.

    I have better times too but it is hard to stay positive sometimes. 

    Your stories have given me a bit of a pick me up today, knowing you are all so strong and beating this horrid situation gives me a bit of hope that I might be able to beat this (fingers and toes crossed).

    Amy x

  • hi amy 

    im 54 and triple positive have you started chemo yet