Struggling after surgery

Hello everyone :happy:

I've recently been diagnosed with a gastrinoma and had surgery to remove it. Due to the sizing (T2) cancer protocol was followed so removed half my pancreas (where it was located), spleen, lymph nodes and surrounding tissue. Awaiting biopsy results in the new year.

As the operation was a big one the decision was made to do open surgery, so a longer recovery time. I've been in hospital for a week and just come home to my partner and 3 year old.

The reason for my post is I'm struggling mentally after the operation. Not with biopsy results etc (what will be, will be!) but with feeling generally useless and struggling with a body that feels so different with pain and pancreas that isn't fully functioning now. I know it's a lot to take in and I've done so well keeping it together until now. I was after some advice how people have coped after surgery to keep themselves going, especially in the early stages when I've been told not to do too much and how to stop feeling so useless?

Thank you x

  • Hi, 

    I read your post and felt I wanted to come 'round and give you an enormous cuddle.. Look at what you have been through both physically , which is major enough, but the emotional hurricane that is also going on.
    When I was venting on here a few months ago, one very perseptive responded asked me "where I kept it " , kept what? My superhero costume! Where do you keep yours? Of course you are feeling the emotions, now that the physical is done, I think it would be a little odd if you didn't have them.

    Your operation has been as big as they come, and you have probably been keeping it in and trying to be 'strong' ( I love that word, what does it actually mean and look like I always wonder) worrying about the op, now that is done, the strain of it all is catching up with you.

    So , time will heal . You will get there and come out the other side, but you are allowed to feel these things

    best wishes

    H
     

  • Dear Hilts,

    What a lovely supportive message and exactly what I needed - thank you. I think we are sometimes too ready to get on with things rather than take stock on everything important and address emotions which obviously are going to be even more tough this year! I hope you are taking your own advice too :)

    ZG x