Bladder cancer

Had TURBT 3 weeks ago, surgeon really pleased. Yesterday Histology results, high grade cancer. Urologist advised repeat TURBT and commence BCG immunotherapy. Will I still have chemotherapy, how do people cope with BCG treatment. Should I ask urologist to remove bladder, job done, no more worry. Thankyou

  • Hi, sorry to hear about your news. My brother was diagnosed with bladder cancer in June 2019. He had a carcinoma in situ and a tumour. Tumour was surgically removed but he needed BCG treatment. Since then his biopsies show no more cancer but the BCG treatment has caused incredible inflammation within his entire bladder and of course this treatment will continue for a while yet. He feels rough after his treatments and is usually very tired and unwell for a few days. However, he looks great and he has even started going for his early morning jog again which he really enjoys. He is 52 yrs old. He's a big strong lad, a former rugby Captain but he said from the start he wouldn't get his bladder removed without trying the treatment first. BCG isn't for everyone but you have to do what's best for you xx

  • Hi FredB,

    So sorry to hear of your diagnosis, it must be a very tough time.

    I do not claim in any way to be a medical professional and therefore couldn't answer your questions, but what I do have is a first hand and personal experience with bladder cancer that I would like to share - should you take anything from it that is up to you. 
     

    My grandpa was diagnosed with stage 1 bladder cancer in 2016/17, it was considered somewhat easily treatable.. he had three tumours removed from the bladder and then was on a long course of BCG. 
     

    All seemed well.. in February 2019 he was given the all clear. We were all completely thrilled, the battle was over! 
     

    Almost as soon as he had has this all clear he begun to feel fatigued, just not himself, and begun to have stomach pains. This went on for around a month, and he was diagnosed with pancreatitis....

    The pain and fatigue was ongoing, and in May 2nd he had a stroke.

    The doctors couldn't identify a reason for the stroke, only that it had 'weirdly' radiated from his abdominal region.. 

    He fought on, but continued to get weaker with no diagnosis or answers. Was unable to eat, and eventually hospitalised.

    In July, we were told that he had a new diagnosis of 'malignant acites' - a symptom of end stage abdominal cancers. The fluid within his abdominal area was rife with cancer cells, on analysis these cells matched the ones that were analysed on his initial stage 1 bladder cancer diagnosis three years earlier. The prognosis was extremely poor, a matter of weeks.

    I am in no way suggesting you opt to have bladder removal nor make any rash decisions, but thought I would share my very rare and harrowing story with you. There are likely thousands of people who opt for just BCG, maybe we were just the unlucky ones!

    He was 69, besides the cancer fit as a fiddle and had been laying a patio only two months before his Stroke besides feeling fatigued and unwell.

    On a personal note, I am now in the cancer fight again but this time with my father who is at stage 4 and fighting for his survival. I truly understand the devastation of this disease, but even now choose not to give up hope! We are fighting on. 
     

    Sending positive thoughts and always here if you have any questions.

    Thanks,

    Harmony