Bowel Cancer - support needed!

Hi all. Please bear with me, this is a long post and I do have a couple of questions if anyone can answer. I've just been diagnosed with bowel cancer and to be honest, I'm all over the place. I've had symptoms for roughly 4 months (loose stools, lower abdominal pain and blood in my stools once). I had a colonoscopy on Tuesday where they found a >4cm mass in my lower colon, it's so big they had to halt the procedure after 6 minutes as they couldn't get the probe past it. Of course, they haven't confirmed cancer, but they told me it was more than likely to be cancer and obviously they know cancer when they see it. They referred me immediately for a CT scan, which I had yesterday, and I'm now awaiting the results which I've been told I'll get next week.

OK, so on to my questions. I'm still having extremely runny diarrhea after my colonoscopy, is that to be expected or has the colonoscopy made things worse? Secondly, I've had this wierd sensation just below my left bum cheek for months and months, it's hard to describe. It's like a lump but deep inside (ie, it can't be felt from the outside and I only notice it when I'm sitting down). Has anyone else had this symptom? I always assumed it was to do with my nerves (i take medication for something else that can cause nerve damage), but now I'm wondering if it's the mass in my colon that I can feel.

Ack, I don't know. I'm not really expecting any replies, I just need to get this out there. It's all so new and so raw at the moment, I feel like this is it, game over. I'm only 49, I have a 12 year old daughter and despite my husband being amazing, I need someone to talk to that's not emotionally invested, if that makes any sense?

If you got this far, thanks for reading. 

  • Hello Steviebird,

                               comes as a shock when you get news like this.and really not very good.Your bowel does become inflamed after you have had a colonoscopy,its not designed to have foreign objects inserted,but it should ease back after a while.However loose stools are one of signs of a tumour being present so it may well be a case of symptom progression.The sensation you describe is most likely to be the mass in your colon pressing on nerves as you have suggested,especially since it appeared to be filling the bowel with inward spread

                                   You are a long way from being game over,but l can appreciate that this is how it feels initially.Until you have all the tests and scans done will you know the extent of the problem and the solutions available to resolve it.l went through bowel cancer with spread to the liver, and have come out fighting fit the other side,so there is nothing written in stone about potential outcomes.

    You need to be careful about placing too much stress upon yourself,again l realise this is easy to say,but having been there l certainly recognised the potential damage and overburden it would place upon my recovery,so practiced what l preach.You will get enough pressure from the surgery and Chemo/radiotherapy without loading more upon yourself

                          hopefully your waiting on the unknown will not be too long,but if can be of further help,just reply at any time,

                                  Take care,

                                                      David

  • Hi David, thank you so much for replying. It's very reassuring to hear that you're fit and well now after going through something similar, although I am sorry to hear you had to go through it in the first place! I appreciate your thoughts on both of my questions, if it is the case that I can feel the tumour, then I've had it a very long time. It does appear to have gotten worse over the last couple of days, as has the abdominal pain, but I'm putting that down to it having 10 biopsy samples taken. Either that or it's psychological, there's no way it could have grown in 2 days, surely?!

    You're right, I need to try not to stress too much, but as I'm sure you're more than aware, it's a HUGE shock. I'm fortunate in that I have a very supportive group of friends and family around me so I need to save my strength and get ready to fight the long battle ahead.

    Thanks again, I really do appreciate it. Hopefully I'll be able to report back soon with a brighter attitude! x

  • Hello Steviebird, I'm really sorry to hear your story. These times are the most worrying moments of uncertainty, anxiety and stress. 

    Your situation sounds very similar, I am recently diagnosed with colon/sigmoid after colonoscopy/biopsy - now waiting for CT scan results, the longest two weeks of my life. 

    Your insides probably will settle down, mine played up for a few days after the colonoscopy but my toilet habits haven't been normal for a few months so I'm not focused on that at the moment and I know what's causing it. 

    Try to focus on the positive, there are questions that we can't answer at the moment and everything is out of our control, we have to have faith in the process and acceptance for me is half the mental battle. 

    Stay strong x

     

     

  • Hello Jimbobski,

                                sorry to hear you are facing an eviction of a very unwelcome visitor.l think your comments were exceptionally well put,and exactly the right perspective to have on your side in a long term struggle.l hope they serve you well and that you carry your day,

                                                                                         keep looking for the light shining at the end of the tunnel,its worth the journey,

                                                   David

  • Hello Steviebird,

                             intrusion and the biopsies will account for the pain,and yes there is no way it would have grown in two days,it will have been far slower growing than that,and would gradually creep up in size until it reaches the point of intrusion versus expansion in the bowel which causes significant change to trigger awareness.Soft tissue sarcoids are considered fast growing in as little as 6 months,so bowel tumours could be present much longer.It is far better that it grows contained inside the bowel than going the opposite way and is safer to surgically remove.

                                               stay positive,

                                                                     David

  • Thanks David, that is nice to hear, I try to stay focused on the positives, until we know the full facts it's easy for us to jump to the wrong conclusions, the mind has a sneaky way of distracting us from the facts.

    Thanks for your words of wisdom. 

    Steviebird: you're in a haze, just like me but try to keep busy and stay strong, we need to know the full story before we can feel better about the next steps x

  • Hi Jimbobski, so sorry to hear you're going through a similar thing to me right now. Looks like we're at the same stage in the process, would be good to keep in touch and follow eachothers journey, hopefully both of us will come out of the other side of this.  

    I'm trying to keep positive, but I didn't get out of bed until 3pm today, not a good start! It's all I can think about at the moment and you can't worry if you're asleep, can you. I've also lost half a stone in a matter of days - I hadn't had any weight loss beforehand but I guess the stress really is getting to me. I've been trying to lose weight for over a year, very unsuccessfully, nothing like a cancer diagnosis to help shed those extra pounds, eh?

    @David, thanks for more words of wisdom. I really do appreciate and digest thoroughly everything you say. It's funny how my brain has switched from "I couldn't live with a stoma" to "a stoma isn't so bad" and looking up how to care for one. Typical example of my mind racing away with me. I'm going to try and enjoy the weekend, may even put the Christmas decorations up and at least attempt to get into the holiday spirit....