LLETZ - and I’m terrified - planning to cancel

I'm 29 years old and I have never been to hospital for anything other than a broken bone or sports injury. At the end of October, I had my coil removed and whilst I was there the nurse pointed out it had been 4 years since my last smear. This was deliberate. I hated the first one so I wasn't about to do it again. The nurse asked why and I said because I had pains afterwards and felt I had been stripped of my dignity and pride. The conversation went on and I ended up being coerced into agreeing to do the smear. (Huge mistake). I said I didn't want to know any results and that doing it was pointless. 
 

The results unfortunately came back a couple weeks later to say that I had abnormal cells and they wanted to do a colosopy. The run up to this appointment was terrible and when I rang up to cancel I was coerced once again into going the following morning. When I got to the hospital I had a huge anxiety and panic attack that they couldn't do the check. 
 

I'm supposed to be going back to the hospital next Monday to be knocked out completely while they do the procedure and treatment at the same time and I'm terrified. I haven't been able to eat, sleep or settle. My mind is on a constant loop with all the things I'm scared of. A phobia of pain and needles is just the top of the list. I recently started CBT but will only get 3 sessions in before the dreaded day. 
 

I want to cancel the whole thing and just forget about it but no one will let me. I feel like I am being backed into a corner and stripped of my choices. I'm angry at myself and the original nurse for letting myself get put in this position. If I could go back and change it, I would in a heartbeat. 
 

Thing is I am stuck in this position of limbo. A small part of my head wants to get it over with but the rest of my head wants to bury in the sand. I don't know what to do. I'm not prepared or strong enough to get through this but if I don't the consequences could be bad. 
 

I just need some help and advice where you won't get angry at me for voicing my negativity. I know my family have my best interest at heart, but the damage this is doing to my mental health is more than physical as I am not in any pain or discomfort so I don't see why I should let someone hurt me by going through with it. 
 

Thanks for reading

  • Hi Titch, 

    Come on - you can do this. They are nagging you because they can fix it.

    Ask yourself " what is the worst that can happen at your next appointment?" think about it really? With fact, before the brain gets busy with racing thoughts.

    NOBODY - likes getting their bit and bobs out, nobody.

    As for 'negativity' go for it- are you not human, with human emotions? If you can't sound off on here in private, where can you do it. I did'nt find you negative anyway, just scared out of your wits.

    One thing is for sure, that this isn't going to go away- so to be blunt- get it done!
     

    My mate had this when she was about 26, she was both horrified , embarrassed and scared, but went , done and dusted and is now 50.

    if you are getting an 'knock out' anaesthetic. Great. 
    As for your mental health- sure, but that is okay, we all on here have our 'moment' and when it is on full throttle it is extremely unpleasant! Thoughts going around and around and around.......

    But come on! You can DO this.

  • Thank you for replying.
     

    I'm absolutely terrified. I didn't want this in the first place so I wish they would just leave me alone to get on with my life. This outcome is exactly why I put off the initial test. I just don't want them to hurt me. I'm not in any pain or discomfort now so how can I consent to being put in harms way and coming out feeling like that? I've never had a period pain so I can't understand the pain im likely to experience. I have no pain threshold and feel like I can't cope with even a splinter.  The mental damage this whole thing is doing feels like it outweighs anything physical. 
     

    I'm at a loss and still don't know what to do. 

  • Hi its a worrying time for you .... no body wants to hear bad news but!!! If there is a problem the earlier its detected the better the outcome is I for example wasnt due a mammogram until June 2021 but for some reason they called me in this February I was found to have a small tumour which was removed and I'm now cancer free The earlier the better Think about it I'm SO lucky mine was found early xxxxx

  • C'mon Titch. You can do this!
    Tell me in honesty what you think your alternatives are? That is not being 'cruel' , but practical. Ignoring it would not make it go away 
    Being petrified is par for the course, no body want to be poked and prodded and absolutely dreads 'bad' news.

    As for pain....... yep for sure, no fun, but if you are having a general anaesthetic then no pain.

    As for period pain! Ah yes,  suffered for years, but a few paracetamol etc, job done. Annoying rather than debilitating . You said you've had broken bones- that is very very painful.

    You asked why would you consent to suffer pain....again ask yourself what are your alerternatives. I have consented to all manner of surgical procedures that involve short term 'discomfort', but it was have it done or suffer worse pain down the road- I have to be honest with you, all the 'procedures I have ever had ( including open abdominal under a spinal) pain control was amazingly good and tbh I've had worse toothache. Even the initial cannula was no worse than a rose bush scratch! The thought is almost always worse than the reality.

    So, come on  get your 'brave' face on get it over with.... imagine how good you will feel mentally achieving something you felt you could never do.

    i almost feel I want to 'cheer' you on, you know like they do at the race finishing line x

     

  • Your response made me cry - but in a god way. Thank you for being honest and for your encouragement. 
     

    I am going to do my best and try but I can't make any promises. I don't have a lot of fight in me to see this through but I'm going to keep hold of the small bit left.
     

    Will let you know the outcome either way. I will just be grateful for some relief from this nightmare. X

  • YES Titch you DO have plenty of kick ar*e fight in you!
    and I am waving flags for you girl.

    x

    ps - you said you'd a coil!!! Now that was one of the most painful things I have ever shoved in. Wow, coming out was no fun either (: if you can do that ,you most surely can do this x

  • Hello. Thought I would just give a little update and let you know that my nightmare is finally over and I ended up going through with the procedure on Monday. If it wasn't for my husband being there to push me forward there was no way I was doing it and I was ready to leave as soon as I realised that I'd been lied to by all the consultants / nurses. He literally had to drag me through the hospital down to the room where I had the anaesthetic but before long I was awake again and feeling like I'd made a huge mistake. To be honest I still feel that way and wouldn't make recommendations to anyone else to go through it unless you absolutely have to. It's not worth the pain and discomfort but the relief is nice! I have taken myself off the smear list and it is a huge comfort knowing that I never have to put myself or my family through this again. Thank you to everyone who was kind and was cheering in my corner. X

  • Well done for seeing it through. I have had a LLETZ and although not a procedure one would have lightly, let's remember WHY women have smears and how terrible cervical cancer would be.

    Personally I would rather lose a short period of time to pain, discomfort, indignity rather than losing my life to a disease when it could have been treatable. 

    I now have early breast cancer and am having a mastectomy. Again .... I'd rather lose a breast ... risking the pain and indignity that might bring,  than leave my family, son and rewarding career prematurely.  

    You obviously have every right to decline or permit surgery and treatment to your own body as you see fit. But perhaps imagine if your husband had a treatable early cancer but refused to have it removed. He would likely be choosing a very sad path indeed ......

    That smear and the LLETZ that followed may well have saved you from far worse.  

  • Hi

     

    I certainly wouldn't get angry with someone who is feeling the way you do. I had a normal smear result couple of years ago, got a fright as Iv been through breast cancer but with surgery, treatment, etc I'm here to tell my story. I Lost my younger sister to cancer a couple of years ago as her cancer was picked up when it was too late to do anything. All the screening in place is there to avoid that happening as much as possible. I understand ur worried and afraid of the procedure but I can assure u the letzz does not hurt, it was fine and my abnormal findings are gone. My sister always said she wished she could have been in that position but she didn't get the chance. You will feel so much better when it's done and ur family too. Let me know how u get on xx 

  • Hi

    All I have to say is : YOU DID IT. Yaaaay. I know this sounds a bit wierd as we don't know each other, but I am really proud of you.

    How are you feeling now mentally? After you faced your fears head on? Sure it was tough, but I am going to say it again YOU DID IT YAAAY!!!! flags are out as promised - well xmas light anyway

    xx