Secondary peritoneal , omentum, and bone

I went to my local hospital on September 22nd  as my stomach had been sore and swollen for a few weeks I thought I maybe had an ovarian cyst or similar , after a day of tests they send me home with nothing just said it was likely indigestion . I got progressively worse over the next few days so on September 26th I went to a different A and E department as advised to my my friend who is a nurse , I was given tests , a CT scan of my abdomen and was diagnosed with extensive secondary tumours to the peritoneum , omentum, liver and in my bones and large amount of ascites in my abdomen . I was told the primary source couldn’t be located but that ovarian was suspected as the primary , I then spent 2 weeks having tests in the gynae department  . From cytology reports from the fluid in my abdomen the consultant said it was breast cancer primary and referred me to a breast consultant for further tests . A mammogram and ultrasound found nothing in my breasts so a MRI breast scan was carried out this had shown a tiny primary source in my breast , I have been given a DS1500 form so I can now claim benefits , life insurance and pensions as the secondary cancers in my abdomen area are very extensive . I’m still waiting another week now for a breast biopsy , this will take it to 6 weeks since diagnosis and 7 weeks until I get the biopsy results  . Is this a long time to wait or does it just feel like a long time to wait ? I have got progressively worse the last few weeks , difficulty in eating , sickness and pains in my head constantly . I have a young daughter and my whole world has turned upside down these past 5 weeks . Does anyone else have experience of extensive peritoneal secondary cancer ? I have been told already that any treatment can only prolong my life and not cure it ,I’m currently on 6 months life expectancy and wanted some idea from others that have had similar , thanks x

  • Hello FrosyCat, I didn't want to read and run. I came across your post as my mum has primary peritoneal cancer and caking in the omentum. Are you starting chemo? Will that extend the 6 month estimate? Thinking of you xx

  • Hello FrostyCat,

    I seem to be going through the same at the moment, and I was wandering how you were now. Thank you, Eva.

  • Hi Frostycat

    I'm sorry to hear about your recent diagnosis and prognosis.  There's no wonder your head hurts and you're feeling worse with hearing this shocking news. I have secondary peritoneal cancer. It spread from the uterus cancer that I had 2 years ago. I was diagnosed last July. I have had 2 lots of chemotherapy which didn't stop the tumours from growing and I've just started a clinical trial immunotherapy drug. Don't give up hope and ask for as much information as possible from your oncologist. I've been told that I'm incurable but not been given a time frame.  Also, when you worry, your body feels worse and causes more pains etc in your body. I had these symptoms just after I was told so I know how it feels. Try to get as much information as you can abd also confide in a family member or good friend who can help you to deal with this. 

    Wishing you well. xx

    Just realised after writing all of this, that your post is 2 and a half years old!

  • Hello Nannan7 I'm currently supporting my mum through this. How are you doing? xx