Anyone here with recurrent invasive ductal carcinoma?

Hi everyone, I just joined and was wondering if any of you have recurrent Invasive Ductal Carcinoma?

 

More about how I got here...

 

I was diagnosed with Invasive Ductal Carcinoma, Grade 3, Estrogen positive, Progesterone negative and  HER2 negative, in January this year. Had Lumpectomy and Sentinel lymph node biopsy on 17th February.

 

Healed well...or so I thought.

I have other medical conditions which cause constant widespread pain and exhaustion daily, so I politely declined Chemotherapy, Radiation Therapy and Hormone Blockers.

 

The lump was 2.2cm and was high up on the inside of my right breast. Over these past months I noticed large, hard lump on the outside of my right breast, near underarm area. I asked breast nurse if it's normal and she told me yes, probably scar tissue. So I thought that must be because of the incision under my armpit.

 

For the past month, it's started really hurting and my nipple is going inward and quite flat (which hasn't ever happened before) I also went to my local doctor with pain under my right rib-cage, like something feels caught/stuck under it. She also felt the large lump down the side of my breast and referred me to hospital for x-ray and took bloods. All came back clear...

I then had a mammogram at hospital, then was asked to do another mammogram...(thinking oh the first one must have been too blurry or something). But I had to twist and turn more so they were more thorough this time.

 

Waited..then had ultrasound scan and realised he could see something, so I asked what he could see. "Suspicious mass, I'd like to do biopsy". I knew then, having been through it all in Jan/Feb. I'm one of those women who ask lot's of questions because I want to know what I need to know. 2 biopsies were done on my breast and fast forward  they came back positive for a new breast cancer. Surgeon and nurse said they're surprised it's so far away from where the original lump/scar was/is and also after just 8/9 months.

 

The ribcage pain wasn't checked that day but I now need a CT Scan from the neck down to see if the cancer has spread anywhere else. The surgeon said she'll be surprised if it has spread because I had clear margins and micrometastases in my one lymph node. So it's been 6 days since being told it is a new cancer and because the lump is so big...from the bottom of my breast up to just below my collarbone, I'll be needing a mastectomy, but CT scan will tell us more.

 

I'm 49, was diagnosed at 48. My younger sister who is 42 has just had a mastectomy, as she had a large lump on the outside of her breast which she just found in September this year (Invasive Ductal Carcinoma Grade 3). My mum, who passed away 6 years ago age 63 had Invasive Ductal Carcinoma Grade 3 too. So my sister and me are being tested for, is it BRCA? Genetic test at some point too.

 

My question is, is it normal for cancer to come back within months?

 

  • Hi New-to-this

    Sorry to hear you are going through this. I hope the health professionals can give you more answers and help you properly this time. I know we're told to stay positive, in an uncertain time, its difficult. I don't have what you have but totally emphasize with you and hope you get the correct treatment this time. 

    Regards

    Angela

  • Hi AngPat

     

    Thank you for your reply. 4 days until my CT Scan and wondering if anything suspicious will show up, especially in liver/ribcage area. The pain is bad when I lay on my side..weird feeling, something stuck under ribcage feeling. I know it's not my gallbladder as my whole gallbladder was removed with keyhole surgery when I was 22. It was full of stones which had broken down into sand. (Sorry, not sure of the correct medical name for it) It was VERY painful under my ribcage and made me vomit. Hospital kept sending me home with Gaviscon for months and months...until I was finally admitted. They said it's usually people who are "fair, fat and 40" who have gallbladder issues. I proved them wrong My female cousin and aunt also had the same operation in their early 20's too. 

     

    Anyway, I babble on a bit! Hope all is well with you.

     

    Take Care

     

    Donna

  • Hi New-to-this

     

    Not sure how common it is but both my neighbour and aunt had recurrence within a year of first diagnosis, both had mastectomies and neigbour is 15 years post-diagnosis and aunt is 6 years post-diagnosis. My aunt had chemo but neighbour only needed mastectomy and hormone treatment. There is a lovely lady on her [@Jolamine]‍ who had also had a recurrence and hopefully she will come and tell you of her experience.

    I hope that yours turns out to be local, good luck with your scans and keep in touch x

  • Hello New-to-this

    Sorry to here what you've been through. I'm starting my journey with invasive ductal breast cancer and experiencing the same sensation under the rib cage but not all the time. Just wanted to see how it went for you? Hoping it was good news.  

  •  

    Hi Esposito,

    I have only just come across your post. I am so sorry that I haven't replied to you after Magpiemaggie mentioned that I had a recurrence too. I know that you are a lot further along your journey now, but thought that my experience might still give you some hope. I had a lumpectomy, followed by Tamoxifen 11 years ago. Six months later I discovered a lump in my other breast. It took some time and a change of surgeon before this was examined and tested, but fortunately it turned out to be benign.

    Six months after that I found another lump in my original breast. My new surgeon was quick to examine this and, this time I wasn't so lucky. I had a double mastectomy followed by Letrozole for 6½ years. I'm not saying that it was an easy ride - It wasn't, as I had a lot of side-effects along the way.

    It is a new life, with more limitations than I would like and, it will never be the same as it was pre-cancer. However, I am still here and living a busy and fulfilled life. Would I do it all again? - In a heartbeat, as in that time I have seen my two teenage children go to university, graduate, settle in employment, marry and have children of their own - I never expected to be so blessed at the beginning.

    I am currently undergoing tests again, but, so far all is looking good. There is always the worry of recurrence, but this is something that anyone with a cancer diagnosis needs to come to terms with. It can be especially difficult to accept this, particularly when one has already had recurrences, but we have to if we are to get on with our lives. My mantra is that 'we only get one life to live and, I intend to live it to the full'. I have no intention of letting cancer take over my life. Others have different perspectives.

    I sincerely hope that things continue to go well for you and, please remember that we are always here for you.

    Kind regards,

    Jolamine xx