Thyroid cancer... FNA vs core biopsy.. plus a lot of anxiety

Hi,  I've recently had surgery for hyperparathyroidism where they found a lymph node that was slightly dark around the edges. They did a biopsy and I was diagnosed with papillary thyroid cancer.

After a lot of research, I decided that I wasn't keen on having a full thyroidectomy so I asked to have an ultrasound and a fine needle aspiration. Unfortunately my thyoid shows 6 nodules and one larger tumour around 3.5cm. I had the left hand side biopsied and they have come back showing atypical cells. I'm having the right hand side done tomorrow however they may also show atypical cells too and then I'll be expected to have the full thyroidectomy. I'm really not sure what to do. I'm so keen to do the active surviellence route and have regular scans however I'm concerned that this larger one might be the cancer in which case I should probably get it taken out. The risk is that may come back benign and then I'll have chosen the wrong side of the thryoid to get taken out. I'm feeling so anxious about all the uncertainty around what the best route to take is.

All I seem to read is horror stories about people feeling so unwell after full thryoidectomies and how it can take years to feel slightly better. Does anyone have any positive recovery stories? Is there any part of the UK that carries out core biopsies instead of fine needle aspirations? My endo said it's too risky as they can cause serious bleeds. 

  • Hi Emilinum4,

    I can understand this is a really difficult situation. It sounds like the best thing to do initially is to wait until you have all the information from the biopsies. You can then discuss your concerns and any questions with your doctor, to get as much information as possible - and to see what their advice is on the situation.

    Your doctor/specialist is the best person to speak to with these questions, but if you'd like to talk anything through with our nurses then you can reach them on 0808 800 4040 - Monday-Friday, 9-5.

    Meanwhile, if anyone here has any similar experience to share then hopefully they'll be along soon - it may be helpful to browse or search the forum (using the button in the blue bar above) for any other similar discussions on here.

    Wishing you all the best,

    Ben
    Cancer Chat Moderator