Diagnosis delivered by slip of the tongue

My daughter has today received a call from a consultant oncologist arranging a contrast MRI for her. She has had a standard MRI and was told at he appointment there were some abnormalities but a doc would call as she was being "Fast Tracked". Last week she was told this next scan was to determine whether oncology or neurology would look after her. All this by phone with no warning or support. Today the oncologist called to say they were arranging a scan as they are 99.9% sure. Of what he didn't explai. He then called bak 20 minutes later to advise of a scan date and when my daughter, 22 years old, asked what he meant as it was al going so quick he stopped. She has not seen anyone since April when she had some hearing loss and this doc thought she already knoew she had cancer and the scan is to determine treatment. How can this be anOK way to find out. He even told her she was lucky as some patients have found out by text message!! I know COVID has changed everything but surely this is cruel and unacceptable. We now have 2 weeks to wait before the scan where he will meet her straight after and talk through the plans. No one can go with her and current restrictions mean I shouldn't even comfort her (she lives with her partner). How does someone support their child like this!!!

  • How awful for your daughter (and you/rest of the family) to have this experience. Last week my family had a similar call regarding my nan... "you know she has cancer, don't you" (we didn't until that point). Covid has made communiation around sensitive and delicate subjects pretty harsh. Difficult conversations face to face are horrendous enough, let alone when you're completely caught off guard by phone or letter.

     

    How is your daughter doing? I guess it depends on the hospital trust, because where I'm from they were slightly more lenient with the rules, allowing another person in to help support during the first main consultation, but my nan was already in hospital so maybe that was why. 

    I don't know where you live so not sure of current restrictions, but are you able to create a household bubble with them?

  • Hi there,

    This story really hit hard with me as my mother went through the same type of issue this year.

    She had a biopsy in march which we waited over 2 weeks for results for. When we called the doctor eventually to see if they were in, he just said 'yeah its breast cancer, i dont know the next steps' and practially hung up. The converation was less than 5 mins long. We were both just in a state of shock and panic and was just expected to carry on as normal not knowing what to do. I ended up calling the hospital number that she was given at her biopsy appointment to ask what on earth was going on and what the doctor has told her. The lovely lady down the phone as also shocked and horrified that the doctor had acted this way and that is was negligence. 

    When we finally had the consultation with the breast surgeon she also was shocked and upset that my mom found out about her diganosis like this , but the reason he didnt know what was next was because my moms test results had to go for extra testing to determine the receptor status for it.

    Its awful that i cant go to any of her appointments with her now, i feel so helpless. shes undergoing chemotherapy for an unfortunate recurrence in breast cancer after her mastctomy in june. Im so sorry your daughter has had to go through this it is so cruel and unfair. I can only hope you find a way to battle through this tough time and the horrific 'new normal'. 

     

    Tee x