Vulva cancer

I have recently been diagnosed with vulva cancer. I don’t know of anyone with this. Would love to hear from someone who has had or has this cancer 

  • Thankyou. I’m home now and feeling great.had all my right lymph nodes removed. I’ll get the results of that on Wednesday. I honestly can’t believe how well I feel. The aneathatist recommended I have the op with epidural I was a bit dubious at first but I am so glad I took her advice I didn’t have any pain whatsoever and still don’t!! I’m just so happy. District nurse didn’t have a clue what she was supposed to do today which upset me a bit as I was laying down legs open and she asked me what I wanted her to do. So cold. 

  • I'm glad you have come through ok , I'm sure the district nurse just didn't have a clue as  she had never seen this type of op they didn't seem to get much info before visits  keep an eye out  for swelling  in your leg lymphedema is commen with lymph removal  and the quicker you see the team for that the better if needed keep your chin up 

  • Hi there I am waiting biopsy results for vulva cancer and just wondered how you were fairing. What were your first symptoms? And how do you stay calm? Thanks Jess 

  • Mine showed just lie an abcess in fact that's what the hospital  thought it was first time but I think that's unusual  I think normally it's a red spot like bump that itches 

    Don't worry either way you wil be fine just don't panic don't think the bad stuff!! easy to say I know but if you focus on the fact that you will be ok  even I'd the diagnosis  is positive i believe  that helps  the power of positive  thinking is a marvellous  thing mine was advanced but I had an amazing  hospital  team a huge operation  and chemo and radiation  and that started last Feb and ended  end July  nearly a year later im still clear no reoccurring so far so good 

    Any time you want to talk feel free im always here for a chat if you need it 

    And give yourself something  to do I weirdly made a shed load of chutney and sauces all through my treatment it gave me something  to focus on other than not dying !!  Just anything  to give you a focus is good