Recently diagnosed with Triple positive breast cancer

I've been on here a few days now but I hadn't had the guts to post until now.

 

I'm 46 and the last number of years had been a whirlwind of multiple miscarriages and IVF. We finally had our little girl in 2019 through Donor egg IVF and we thought all the heartache was behind us..seems naive now. 

 

I breastfed for a year and shortly after I stopped I noticed that I had a sort of mass in my right breast that felt different to the left. I put it down to just odd breast tissue from breast feeding, but my sister and husband pestered me to have it checked out by the gp. Even the gp thought it was breast tissue but booked me into the breast clinic to be sure. I wasn't in the least bit concerned really, even when the consultant started circling areas of concern, or when they sent me for a mamogram and ultrasound with biopsies, so it hit me like a train, when after that they said we think you have breast cancer. I had a 2week wait to find out it was also in 2 of my lymph nodes and that I have tripple positive breast cancer, hormone receptor positive for estrogen and progesterone and HER2+. Thankfully the CT scan has shown no spread (the only good news so far) I'm still awaiting the results of the bone scan. What I do know though is that I'll have 18weeks of chemo plus Perjeta, and 11 cycles of Trastuzumab, a mastectomy and probably radio therapy, with no guaratees it will be gone after all that.

 

So really I'm just wondering what to expect with this treatment. Usually I'm a very positive person, but I fill like I'm in some kind of sick nightmare at the moment. I'm terrified of getting an infection on chemo, so any advice would be greatly appreciated there too. I have moments where I feel I can fight this and other moments where I picture my little girl who we fought so hard to have, growing up without me and I struggle to hold it together.

X

  • Hey you know what, we all have our own way of dealing with things. You'll get no judgement here, or from anyone else I'm guessing..it's whatever works for you. I'm just learning how to cope with all this. Sometimes it's like a tsunami of jangley raw emotions all coming at me at once and sometimes I peacefully just acknowledge it (with a silent understanding between me and it, that I will win, because I'm not giving up my wonderful life without a damn good fight) and then just enjoy my beautiful 15month olds latest antics with the realisation of just how lucky I am to be her Mum. 

     

    That's my way...but you are right, there is no right way...just whatever works..

    xxx

  • Hello Lemongrass,

     

    I've just got my diagnosis of triple positive breast cancer and I'm still so scared. I'll find out my treatment plan tomorrow. I'm determind to be strong and fight this but I don't think I'm quite there yet. I'm trying to prepare as much as possible. Have you started your chemo yet?

     

    Corinne

  • Hi I am triple positive can I ask how your treatment is going please. Best wishes xx

  • Hi Shazlarr,,

    Firstly, I'm so sorry to hear you have been diagnosed with this too. I do hope you are doing ok. I'm hear to help with anything if I can.

    I'm now though all my chemo, surgery, immune therapy and radio and now just getting hormone therapy, which will be ongoing for the next 10years. Treatment isn't pleasant, I won't lie, but it is doable and believe me when I say it is over quicker than you think it will be. It also wasn't as awful.as I had thought it would be. You will feel very tired though, so accept all the help you possibly can..

    Xxx

     

  • Hi I have had surgery, what was your diagnosis, mine was grade 2 20mm er and pr positive and her2 positive with clear lymph nodes. I had my first chemo Friday. I am having fec-t. xxx