Hi Beautiful life

Im sorry for your diagnosis - I too am almost 2 years since my TNBC diagnosis and mastectomy followed by chemo and radiotherapy- do let your team know what your doing - they truly are amazing people and will help you through this - I had ice lollies during my first 3 rounds of chemo and yes it does help to protect your mouth - it worked for me anyway - I wish you well and hope everything goes well for you - this forum was a great place to come when I was going through my treatment - ask anything - there's always someone who will offer advise and share their experiences- take care x

Thank you

ice lollies got it.

And wishing you well - and Hope life is going well for you post all this trauma!

Ah thank you - can’t  wait to be 2 years past this...but trying to believe that there is a life lesson somewhere in this new situation that I find myself in. 

Hoping life is going really well for you now!!

Wow..very wise words Lorraine

i guess there is no real getting beyond this...it’s a game changer

and as the oncologist said - breast cancer doesn’t kill-  its if it moves around...so yes

getting free of it - for now - is the best you can ask for

and then learning to  live along side that uncertainty

thank you

Hi Beautiful.Life

I'm a few weeks behind you - diagnosed with BC 21 Sep. Like you my treatment will be chemo first -  then surgery. My oncology appt is 5 Oct so waiting to hear how many cycles etc.

Have dropped you a friend request so we can private message if you'd like. 

Thinking of you this week in the lead up to it starting.

Ali x

Hi, 

sorry to hear of your diagnosis , I was diagnosed with grade 2 HER+ Brest cancer in June and am now halfway through 8 cycles of neoadjuvent chemo (actually at chemo now ).

i understand with the feeling too young as I’m 33 so not really what was expecting (2020 best year ever hey!) but your attitude so far seems positive which will take you a long way. We all have our down moments but most the time I survive on sarcasm and playing the cancer card at inopportune moments to the horror of my mother lol.

It depends what chemo you are having I think but I have had to have steroids for EC and now for docetaxel , sorry . Chemo is ok again has it’s ups and downs having the treatment itself I’ve found fine it’s more peaceful than being at home with 2 kids during lockdown was and the nurses are all lovely.

i too will have herceptin and pertuzumab which I’m starting today so see what hormonal fun ensues.

I quite like my breast too but as dcis was found on now I have to have mastectomy so hoping I won’t look wonky with reconstruction .

worst part so far for me was when my hair was falling out I had to shave it off as the malting was more depressing than it not being there.

ive enjoyed ice lolly’s at home haven’t found any need need to have them during treatment but I haven’t suffered too bad with ulcers , I’ve worn just a hoody or cardigan and a vest top to chemo and have been fine.

iv got 2 young kids at home and have to be careful for risk of infection but iv avoids any so far even with them returning to school. 

I think most people would be able to drive themselves home depending what chemo you have s how far, it hits everyone different so might be worth getting loff for your first one .

coudlnt tell you about fasting as I love food too much can’t imagine .

sorry for loonnngg reply, that’s how exciting chemo is  

good luck with your treatment x

Hi Ali

have sent you a message!!!

x lee

Don’t worry I’ve fitted in my fair share or eating crisps and drinking and still am well the crisps mostly :) there’ll be plenty of catching up on celebrations after and yes chemo should be finished before Xmas thankfully.

Not sure when will have surgery haven’t had my consultation for that yet.  I’m looking at the positive that at least it will all be gone and I hopefully won’t have to have radio after with the mastectomy which I would have done with lumpectomy so that will be a bonus.

And it is bearable, some days it’s JUST bearable but most days it’s ok and luckily we’re women as god help us if was our other halves lol.

i had longhair so cut it off too long pixie cut before first chemo but yeah once min started falling out it just seemed to get everywhere , I could tell at first when touched it was in my hands and brushing etc then it went to just falling everywhere, was in my food all over my clothes that was defo worse than shaving it off but I know some people don’t want to and I would still have hair as I look like a sprouting spud so defo still got some but I didn’t want to go down the patchy route trying to cover it either , basically I’m just lazy haha. I have a 9 and 3 year and although the oldest wasn’t too pleased for his street cred he soon got over it and my youngest used to still play with my hair when going sleep or having cuddles so I was worried how he would react but he was actually fine , now he just strokes my head :) 

and I keep telling other half I look like Gollum but he says not I’m not so convinced .

i haven’t got any wigs as was told they weren’t doing referrals cus of covid and tbf I wasn’t going out during lockdown so weren’t a problem but am thinking of looking into it soon....might avoid my Scottish heritage on this one tho .

iv got a port in , so it’s in my chest straight into vein so don’t have to cannulate every time and it’s fine now but was painful straight after having it in but I think worth it   As I didn’t realise that one of the targeted therapies for 12 months have to go have at chemo suite so will get its ‘moneys worth’.

Thanks chemo all done now for another 3 weeks so feel ok for now usually be pretty rough for about a week starting from tonight then pick back up , assuming it’s same pattern as the EC was .

im going to blame the drugs for me chatting so much as im proper wittering on but hope some of it helps put your mind at rest and into reality for you .

I hope your first chemo goes well 

vikki x