Recently diagnosed with Melonoma Skin Cancer waiting for WLE

I have been seen very quickly so far at every stage, however now anxious about my sentinel lymph node biopsy and wide local excision to the ear. As my depth was significantly greater than 4>mm on my outer ear I have been told 2cm of my ear will need to be removed.

 

They're only recently seeing patients who've been waiting since February so I'm concerned it could be some time before I'm seen. Is this likely to increase chances of further spreading if it hadn't spread by this stage? Both my MRI and CT scans came back clear. And the excision biopsy clear as well.

 

I'm also overweight already checked the calculations online, I'm going to use this time to try and loose a healthy amount of weight while waiting. I read that it can otherwise be a risk with complications for finding the sentinel lymph node and the general anaesthetic. 

I wear glasses they're aware they need to make this work so I can continue to do so. 

I'm anxious about how long I'll have to wait, if and what complications and what my ear will look like after.

 

I find this all especially difficult as I lost my dad only last year to prostate cancer and I'm finding the hospital visits a huge emotional strain at times. I'm scared if I have to spend the night if I'd even be able to cope. I live at home with mum so until now I've been to all appointments alone but I know I need someone to come with me on the day that general anaesthetic is administered. How likely is it that I may feel sick on the journey home, are sick bags a good idea just incase?

 

Also I have a hard time swallowing pain killers this isn't particularly helped by the fixed metal retainer I have. Will those that dissolve in water be enough? Also should I be concerned is it likely they'd use a tube for breathing during the procedure?

 

I was told that it should be all done in a single day but certain factors / complications can require an overnight stay. What is an overnight stay like in a year of covid? and will I be made to have a covid test even though I've not been anywhere to be at risk?

 

I've also been told I'll be offered CT and MRI scans every six months , however I'm concerned about the added risks a frequent CT scan would present given that I'm already at an increased risk of prostate cancer already. After the CT scan other than the taste and brief stomach cramp when initially getting into bed that was sorted by drinking additional water i didn't experience any side effects. I'd assume this would be the same outcome for future CT scans.

 

I appreciate the time spent for anyone who reads any part of this.

  • Hi Gareth,

    Firstly, can I say that I'm sorry you have this worry to contend with, especially after the loss of your dad & the fact that Covid is making hospital care a little more challenging.

    You have a lot of questions that not many people on here can answer. I do, however, know someone who has had a WLE on their ear and others who can explain the SLNB procedure including your GA question. Because the information will be coming from 3rd persons I would rather reply to you by private message, so I will send you a friend request. Once you accept it I can send you a private message.

    With regard to biannual CT scans - under normal circumstances they wouldn't cause a problem but I think you need to speak to your consultant about this concern. I'm sure they can come to some agreement as to the best way forward. Some hospitals are still asking patients to self isolate for 14 or 7 days before surgery - you will have to enquire with your hospital as to their current guidelines.

    Best wishes,

    Angie (Stage 3 melanoma patient)

  • Hi Angie,

     

    really appreciate the reply and any experience / information that you have provided.

     

    Thankfuly I only go for local walks and other than hospital visits and a taxi ride recently to visit a distant hospital I had have not been anywhere since March.

     

    Kindest regards,

     

    Gareth