Diagnosed with Invasive Ductal Cancer

Help me!!! I'm so petrified. I'm Carrie turned 40 this year & have two beautiful children & partner who is my rock. I was diagnosed on the 2nd September which came as a big surprise numb with shock. I'm a massive anxious worrier. I have been diagnosed with invasive Ductal cancer grade 3 ( which has frightened me even more) I have two legions one about an inch in size which is HER2 ER0 PR0 negative & another smaller legion about 5mm which is HER2 ER PR 7/8 positive ( I think this is how they said it but just couldn't take it in) they've said I have caught it early & on my ultrasound on the 17th August my lymph were clear. My treatment plan will be chemotherapy surgery & radiotherapy. I'm now waiting for appointments for MRI CT Bone scans & to see the oncologist. Just feels like I'm forever waiting which is the same for everyone I know. I keep thinking horrible morbid things I'm trying to be positive but mornings are my worst. What if it's spreading? I've had to get medication to help me I'm so scared & frightened I want to see my children grow up I have so many plans. 
 

Thank you for reading 

Carrie 

  • Hi Carrie

     

    Thank you for thinking of me.  I got my diagnosis: IDC Grade 1, Stage 2 HER+.  The two lesions are separate cancers, the largest is 3.5cm which is quite worrying as my breasts are very small and this great big lump is taking up a lot of room there.  

    Good news is that they couldn't see any sign or evidence of it spreading to any of the lymph nodes however they cannot be 100% sure.

    I am going in again this Wednesday to hear the breakdown of my treatment plan.  I know its going to be full mastectomy surgery first, just the affected breast,  and chemo afterwards.   I also have to decide what type of reconstruction I would like: implants or fat transfer.  TBH, I am just glad to hear that its treatable and it hasn't spread  (which is where my morbid thoughts were leading me to), but I am now researching the pros and cons of both reconstruction methods to help me decide.

    Not told work yet, really dreading it, I love my work and respect my boss and I just don't want to add yet another problem to an already difficult phase that the business is going through due to the pandemic.  

    How are you? Have you gotten any further with your treatment plan?  Whats your next step?  

     

    Natasha

  • Hi

     

    Firstly dont be scared! It's not going to change anything! I was diagnosed 29 July 2020 with the same as you!

     

    last Thursday they removed a lymph node the blue dye went straight threw it so it was removed and now for testing!

     

    on the 24 September 2020 I have 8 hour surgery I am having my right breast taken off and reconstruction straight away. The left breast reduced in the same operation being cut from hip to hip for the blood line to right breast and fat moved from stomach to right breast! Belly button also moved up. 8 to 9 hours then I find out really where I stand at what stage and what cancer for definite!

     

    i sit here calm on my own my family have let me down in a situation like this as I have been the strong one always! I feel let down by them massively and yet I won't cry! Because nothing is going to change I will face this head on no matter what and hope to get back in my black cab in London next summer being a women in London is tough but I am tougher! Till the end but he is not having me yet I look up at the sky and say NO not yet not ready!

    keep positive strong mind is what you need! 
     

    You can do this!

     

    Maxine

     

  • Morning Natasha sorry for late reply it's been a rollercoaster of appointments at present so much so I feel I live at the hospital lots of scans I'm to go again for metal inserts & see my BCN. My treatment plan will be chemo 4 x EC & 4 x Dox plus 18 x herceptin I'll then have surgery & maybe rads & tamoxifen for 10 years in all honesty it's a lot to take in. It's very overwhelming. I'm still trying to be brave & not keep fearing all the time as I'm in the right hands but it's hard to stop the mind from wandering. 
    please let me know how you get on & feel free to add me. 
     

    carrie 

  • Hi Maxine sorry about your diagnosis. Everyone on here are very supportive & relate I'm glad I came on this forum as it's helped me. Your operation is not far away & then you can get on with your treatment. My treatment is different from your but just want to get on with it although I'm scared I know I can do it. 
     

    keep in touch & let us know how you go 

     

    Carrie