Invasive Ductal Breast Cancer Diagnosis

Hiya,

My name is Katie. I have been diagnosed with Invasive Ductal Breast Cancer today. They did not say what grade. They are waiting for my HER2 results etc. I have been told depending on these results I will have surgery and radiotherapy and depending on surgery results chemo. 

 

I am not dealing with things very well i am 34 and have a 5 year old little boy. I keep being sick all the time when  I think about him being without me. They have said its only small and treatable but how do they know when they don't have all the results yet. 

 

Please help me be positive.

 

Katie xxx

 

 

  • Hi Katie I was diagnosed with the same type of cancer in July and was her2 positive. I was told exactly the same that it was only small when I thought it was quite big !! I'm now 3 weeks post op as due to weight issues they decided the op would be better for me before I start chemo. I was supposed to have a lumpectomy but after speaking with my surgeon and her answering my many questions I decided to try and take back a little control and had a mastectomy. I'm so glad I did as the lymph nodes were clear. And I'm a worrier I would have been forever checking myself to see if it had come back. I only now need chemo and have gotten away with the radiotherapy side of it. 

    The only advise I can give is ask as many questions as you've got and none are ever silly questions and have a little note book with them all in then you can pop your answers in there and hopefully that'll give you piece of mind. 

    Thinking of you x

    Karen 

     

  • Hi Karen,

     

    Thank you for your reply.

     

    I am also a worrier. I know i am going to beat this but I feel like i have been handed a life sentence as I will be worried for the rest of my life.

     

    How long do you have to have chemo for if you don't mind me asking? I know it may be different for me.  Have you continued to work?

     

    I am not dealing with things very well at the minute. I am breaking down all the time. I even broke down on the school run. Its not fiar.

     

    Katie xxx

     

     

  • Hi Katie,

     I was diagnosed sat the end of April with oestrogen positive her2 negative, I had a lumpectomy and node biopsy early June and finished my radiotherapy at end of July. In the beginning I too was fraught with anxiety, sleeplessness, fear about my 2 children, dying etc etc. But having come out the other side, other than scars and taking tamoxifen the anxiety has subsided significantly (not completely) but I echo what the others have said that the healthcare professionals don't lie and don't give false hope. The waiting is the worst part, wishing you all the very best xx

  • Thanks for your positive reply.

     

    I need to try and keep going over the positives that were said and not making up my own negatives that aren't even here, if you know what i mean.

     

    I am going to beat this. I know i am.

     

    Katie xxx

     

     

  • Hi Katie 

    I've been told the chemo will be 6 sessions at 3 weekly intervals but that won't start until 8-12 weeks after my op so looking at Oct time. I was running my own business when I got the results so I decided to shut down with immediate effect as I work with members of the public and what with Covid still about I decided it was the best decision for me at the time. 

    It's the waiting which is the worse part I found but once the treatment plan was in place I felt better as I knew what was happening. So I'm feeling quite positive the moment I know I've got a tough time to go so I'm trying to prepare myself as best I can for it and planning a few things for next year as something to look forward to. 

    I found that talking about it makes me feel better about the position I'm in and you're definately not on your own so if you want to chat I'm here. Xxx

  • I just want the treatment to start now. I feel like there is no time to waste! 

     

    Some of my family have been really good and are openly talking to me about it but my mum is just talking about everything but and is constantly changing the subject. I know it must be hard for her too as she is already caring for my nan who has terminal lung cancer and if im honest she has never really accepted her illness. 

     

    Thanks for your offer too chat. I really appreciate it. I will let u know how I get on with my HER results next week.

     

    Katie xxxx

     

     

  • So sorry to hear about your nan it must be a worrying and frightening time for you all. I'm sure your mum is trying to deal with it all in her own way all you can do is make sure she's knows that she can discuss things with you when she's ready. At least you can talk about it with the rest of the family. Some of mine don't want to know much and others want to know too much :)

    I felt like that, just needed to get things happening and it can be so frustrating at times. 

    Please do let me know how you get on will be sending positives thoughts. Take care. Karen xx

  •  

    Hi Katie,

    I am glad to see that others have replied to your post and, you can see for yourself that you are not alone. There is always tremendous support on this site and, it really does help to talk to others who have experience of what you are going through.

    Here's hoping that you get the best news that you can. Don't forget to let us know.

    Kind regards,

    Jolamine xx

  • Hello  I'm 5 weeks out of my last chemo for breast cancer. I was initially diagnosed with DCIS and was due a mastectomy and immediate reconstruction. However due to Covid my operation was initially cancelled but I had the mastectomy about a month later. This gave the DCIS chance to develop in to two small tumours which tested HER2 positive, hence the need for the chemo.  I totally understand where your coming from as its all still so fresh for me. The only advice I can offer is that they got it early and now I've come out the other end I can see  that there is life after chemo (although I'm stressing about my hair not growing back!) I understand you feel as your diagnosis seems like the got it early, trust you constant and hold on to the fact that you will get through this. Good luck hun x

  • Thanks Jolamine fingers crossed. I will post my results on here.

     

    Katie xxx